Hi All, Been feeling good, although I have felt better - so I can't complain. My GI left so I transferred to a new physician...did a slew of new bloodwork, the usual. Anyway, my hospital doesn't...
15mg/kg is the highest - there are three levels :)...
Hi All, My new (yet another new provider since my move...) has suggested I start a tumeric supplement. I didn't think to ask at my last appointment. How much is everyone on? I'm looking to purchase...
I've had headaches on and off for about two years now. Have never had the gi or the migraine clinic link them. I find that going to the chiropractor every month once they've been under control I'm...
Constant for the most part however I do notice by the end of my work day I am squinting even more. Cataracts and glaucoma? Dear god....I'm 26! (: #IWearMySunglassesAtNight No...I get it. Thanks!...
I've read through many different websites and the drug information pamphlet and it just says vision changes. That's pretty much my thing, it's blurry and I have to squint alot. My realization was...
Hi All, Just wanted to check in to see if anyone has any experience with their vision changing pretty rapidly (I usually only have to upgrade my contacts .25 every year I see the eye doctor) after...
I know it's been around awhile, that's why i was more ok "taking the leap" with this than with the newly approved vendolizumab. Just curious, why did you stop taking it? I'm worried about the...
Also, I know the standard is 8 weeks (after you build up your 2-4-6-8) but if you do seem to feel crappy the week before can you move your 8 weeks up a little or back a little? Not sure if the docs...
Hi All, I started my first remicade dose on 9/22 while in the midst of a flare...and the next day I immediately felt better from where I was (no blood, formed bms, urgency only in the morning) and I...
i had my gall bladder removed prior to my uc dx (2 years exactly) and quite honestly may have had uc prior but it's hard to tell when you're lacking the secretions from your GB to help with your food...
Thank you everyone!...
Any suggestions on what to expect? :(...
Hi All, My stubborn self convinced my doctor ONE LAST TIME to try out VSL #3 (ds 4x a day) while tapering off my pred (currently down to 2.5mgs every other day...hopefully stopping next friday). I'm...
This is great! Thank you so much everyone! I took two packets last night and I'm going to stick with the two a day for now recognizing I probably need to cut back to one a day potentially depending...
Why do you suggest starting small and going big? I'm doing 2 ds packets in the am and then 2 ds in the pm. She wanted me to start high and then move backwards. The capsules are cheaper though my...
Just found out my insurance company is going to cover the DS rx for VSL3. YAY! One more step in between my guts and infusions (pre-auth for remicade is in though...) Any suggestions on what to take...
My doctor did bring up the Vedolizumab, but we're kind of treating it as the option after the remicade. I haven't read much about it, yet, but she wants me to research that as well. Still not on my...
Thanks for the literature and suggestions, all! Keep them coming! I want to go in with as strong of an argument as I can....
Any inspiring stories of hope? I'm going to try VSL3 (if I can afford it) but my doctor wants to prepare me to start Remicade (yay for putting in my prior auth). How long does the infusion take? Does...
My doctor wants me to try VSL 3 before I start on remicade. I have capital blue cross and it isn't covered. Any suggestions for those out there? Do they cover the DS? It doesn't say anything in the...
I haven't upped a vitamin supplement. But I do tend to double my probiotic and add in an extra strain when I know I'm sick. Nothing out of the ordinary the past 4 days. Definitely didn't consume as...
So, I haven't noticed this before (prior to my last cold), but when I get a cold, why is it that my stools turn black? It isn't a flare, the last time I had a cold I had black stools for about 2...
I had some hair loss with taking 6mp, but tribute it mostly to the stress and anxiety (have had this happen 2x now). It'll take about 6 months before you can see some fuzzies growing out up top. My...
See below: Budesonide has a high topical glucocorticosteroid (GCS) activity and a substantial first-pass elimination. The formulation contains budesonide in an extended release tablet core. The...
Unreal. Can I have your doctor? I'm on 6mp now..100mgs. Maybe that is why it isn't working for you?? Where is everyone else's UC in their colon and what did your doctors say about the absorption of...
Hey guys - So I'm literally in my GI's office as I'm writing this. I've heard such wonderful things about Uceris and I approached my dr. about taking this vs. the prednisone and he said that even...
@ScienceGirl. You are amazing. I'm defiantly going to look into Richard Doyle as I'll be working across the street from BIDMC. Accessibility has always been an issue with me and my previous 2 GI's.....
I'm totally functioning in the 'simmering' phase but remember, you don't want that! As long as we are having some type of symptoms, your body is telling you you are inflammed and when your body is...
I would never ask a chiropractor for GI advice. I noticed he sells the same line of supplements as the naturopath I visited a few months ago, but don't continue to see as her bill is quite steep, and...
Talk about specialty city. Any recommendations? There are a ton of them up here so instead of blindly choosing I thought I'd get some input. Thank you thank you!...
Love Love Love when I can see this coming (thank you added stress of a new job and transitioning to a new city). Some urgency, no D, but definitely bloody, a little mucus. What's all the hype about...
I've always seen occasional bouts of blood. So what do you think about the feeling the colon? Should I call up my doc?...
So, this night sound weird... Maybe I'm just being oversensitive because I'm away for 6 days, but I feel like I can feel my colon. It's been feeling like this for a few days now, but sitting on my...
Probiotic 10 billion from vitamin world. Acidophilus. Is that ok to take? Interesting... Well see how tonight/tomorrow goes before I call....
Hi guys - I had a feeling this would happen. My 6mp was lowered to about 75mgs back in November and my blood tests have been coming back that my therapeutic level was way too low for a few weeks now...
I also felt "flu-ish" and my final symptom was nausea for about 2 weeks with the grand finale of tossing my cookies for about 2 days until I could get it out of my symptoms. I started on 6mp and...
Ill take my head Hurting anyday just to remind me never to go back on such a harsh drug! My uti has been cleared up for like 2 weeks though.. So that doesn't make sense. Honestly, between the time I...
Hey guys, So I just got back from my primary care doc since I thought I had a kidney infection (had a uti about a week ago) and he did a urine test and found sugar in my blood. We did a sugar test on...
Thanks guys! Just to reiterate I'm transferring to Highmark. BCBS has been so nice so far but unfortunately I don't have the option to stay on it anymore. Ill look into the patient assistance...
Hi all, I'm about to change my prescription coverage from Blue Cross Blue Shield to Highmark. Lialda isn't covered on my formulary list. Does anybody take anything in the generic form or is that the...
I had my gallbladder out when I was hospitalized for mono for a week (REALLY bad case). I attribute having my gallbladder removed to the beginning of my UC problems, however it wasn't that bad...
Interesting - definitely will!...
I haven't - do you say that because of how i described the bm or just symptoms in general? i love cheese way too much :(...
Oh my gosh, thanks so much for writing all of this guys!!! My current symptoms are pretty much non existent. I started on a vitamin world brand of 10 million? billion? probiotics when I felt a flare...
Silly girl. I'm the one that posted that my colonoscopy looked good. Doc called and said my biopsy showed active UC and we need to discuss a different drug. Silly girl. About 3 months ago he downed...
Also, what are your thoughts on the UC "improving"? He seemed very surprised that it looked better from my first and I believe I heard him say that it doesn't usually improve....
Oh boy - Absolutely. It would take a MUCH larger flare for me to consider changing medications. A few months ago my Lialda was doubled from 2x to 4x a day. I also recently decreased on my 6mp. I went...
Hi Guys! So I got my colonoscopy Dec. 27 (yes I know, terrible timing) midst a snowstorm (sorry nurses, front desk, doctors for calling/harassing to make sure you have 4 wheel drive and you run your...
She liked the probiotic I was on, but wanted me to up it.. I'm on 10 billion. Where can you obtain VSL3? In all honestly, any step higher what I am doing now is better than what I was doing. I...