Maybe try eating like you do at home? If your room has a little fridge in it maybe go buy some lunch meat or snacks to eat before you head out. All those premade Mickey waffles might have a ton of...
Ooo I'm jealous! Lol my dr is soo blah it's disgusting. Everythings like "you could.... Or you couldnt.... It might help... But it might not..." ugh and his dad started the practice he works for so...
The only things I left not taking was the morphine and the protonic. They had me on a fentanyl patch for pain too I was wearing it in the hospital and when I came home i put on my new patch. I was...
Lemon Italian ice yeah! My doc does too also they make this jello that has fizzles in it from sprite or whatever you put in it and it's like actually chewing on something. Gives it a good texture...
Hey Rookster! Congrats on getting into your program and good luck with school. You're desciption of your BMs totally sounds like mine when I first start a flare and the enemas can def make it more...
Thanks for the feedback! The low pulse lasted about 4 days. And I did feel like I had a cold for the first 2. I feel much better now that my pulse is normal. Still having abdominal pain but nothing...
Hi all! Never been on the Crohn's forum before but at the suggestion of a UC moderator I'm over here to post. I finally got my first Humira injection at the hospital last Thursday. I was waiting a...
Yea I am hoping the Humira will work but I just don't care anymore if it does long term. Bostwis1 I wish you luck on your surgery and I'd love to chat with you more about it!...
Oo good point Sherry forgot mostly Crohn's take Humira. I'll go post over there as well. Yea I hear ya on the lack of fight. Im over all of these meds and side effects and missing life. I hope to...
So should I somehow make this post more snazzy or there just aren't that many Humira takers? Lol I mean I know I'm on some pain pills so maybe my sentence formulation isn't that good. Just want to...
I def agree 9 months is a long time for prednisone and I too have had some problems with the long term use affecting my bones and joints. And I'm with Cadillac lover has your GI given you a reason...
I finally got my first Humira injection at the hospital last Thursday. I was waiting a month! For my prescription services to get it to me but wound up flaring in between remicade and the Humira so I...
Does it hurt when you lay on your left side? Maybe you have some inflammation. Or maybe a stool softener might help if you've eaten something that's having some difficulties breaking down and causing...
Like a cold sore? Or a canker sore?...
Mudua guess what??? I was adopted. Adopting doesn't guarantee not having a "diseased" baby. I will definitely be having children of my own. Afterall, who better to spot a serious disease than...
Ooo I unfortunately don't have any advice. I can just tell you what happened with me. I was scheduled for a colonoscopy once during a really bad flare and the prep made me so much worse the morning...
Hey carlie! Sry to hear you have to take the Love/HATE drug that is prednisone. I hate it and after multiple uses cannot stand to take it again. At my worst I was scrubbing the baseboards in our home...
Thanks for the responses! I am def frustrated that this happened and saddened. I live in Pennsylvania and I'm going to start all my research tomorrow. My manager finally talked to me to tell me I was...
:cry: So today I was let go from my job due to my UC flare. I've been out for two and a half weeks on a dr's note and was scheduled to go back tmrw for half days when they told me to not bother...
So I was able to avoid the hospital. My first infusion was this past Thursday and did take OTC heartburn meds first and it helped. The nurses in the Remicade room were awesome. I took an immodium...
Hi Donna! I just had my first infusion on the 19th so yesterday or today depending where youre at in the world. I was allowed to have my husband come with. I ate a little before I went and they had...
Yearly. I've had UC for 14 yrs now. I believe one of the main reasons for my yearly colonoscopies is because I was adopted with no family history to consult for possible cancer issues. My UC has also...
My PCP is an internist and he's great. Sometimes when I feel like I might start a flare hes quick to get me in run some bloodwork and get me a script for cortifoam right away. He works with my GI...
Thanks notsosickly! I will now dive deep into that forum. It didn't even dawn on me that they wouldn't be lurking around here anymore lol yes I am female infertility is my only scare. Well beside the...
Yup my doctor has told me this and I've had two...
Hey all! I'm seriously considering a j-pouch and I haven't started my Remicade yet so I'm not at the end of my options yet. However, I feel like I'm emotionally at that point I've been diagnosed...
Oh and the 29th is World Digestive Health Day....
It's tmrw! And its my first Remicade infusion. I'm going to take that as a good sign and I'll wear purple tmrw. Wonder how many of my friends will wear purple for me....
I've had about 19 flares since I was diagnoised. I was in remission for awhile too. I noticed that when i was younger before my remission I got a flare 2 to 3 times a yr and almost always at the same...
Chicken broth, pretzel sticks, and strangely enough french fries all help. Not mcdonalds or anything but home made. Baked is good I can't tolerate any fruits or veggies the fiber just rips through my...
Ive never kept a journal with my adult flares until today I just downloaded GImonitor for my iPhone. When I was flaring as a teenager my mom was constantly writing in my journal. This app I just...
Well I'm glad to hear its going good for u! I'll def be posting once I get my first infusion. I might actually be going into the hospital tmrw and maybe starting then. I went 21x yesterday and I...
Thanks again for the responses. I'm actually kinda excited to have my first infusion. I just want my life back! And I'm def calling Monday morning to ask about taking some sort of preventative...
Hi shortnsaucy! I've never used Moviprep but after doing some research I found the same stuff you did. Lots of vomiting and from what I found it was either from heartburn or taste. I did find hints...
Short term side effects: Moodiness Night sweats Insomnia (taking it in the morning or afternoon helps) Rapid heart rate Hunger pains (I do my best not to snack) Bloating Muscle pain (aggrevated by...
Thanks for the info! I feel a little better. I'm normally extremely positive about all my treatments but after putting off Remicade for so long and hearing all the horror stories and studies about it...
Harrisburg, Pennsylvania....
Bloating*** lol autocorrect on my phone...
I start mine next Thursday May 19th. I'm getting mine right in the office in their special Remicade room. The nurse said it should take 3 hrs. I'll keep u posted on my experience but you'll go before...
For me the first signs are joint pain especially in my ankles, sometimes I get an eye infection, and then fatigue. The absolute last sign before blood is loud digestive noises and bloating. Ugh the...
Most likely a barium x-ray. Just a suggestion, but don't drink all the fun flavors of barium. They are worse than the plan especially the chocolate!! Yuck!...
Oh I hope mine goes the same superdoo. And it didnt put my signature in. I have UC. Are all the infusions scheduoed the same? It seems i have one next week then beginning of next month then 3 weeks...
I'm a little nervous about getting my first IV treatment and I would love some personal experience on the issue. Did symptoms subside for anyone after the first treatment? Was anyone sick after?...
My husband is great when I have a flare he stocks up on all my tummy approved snacks, food, and drinks. He understands that with prednisone I can't sleep sometimes so he makes up a comfy loungin spot...
Yes I've had my current GI dr say that. But my age of diagnosis is the youngest in the practice so I think that's why. Although it has it's perks : ) I get the head of the practice as my Dr and I can...
15 mg can be somewhat affective if its not a serious flare. I would keep pushing for what you believe is best for you though. Have you recently had a colonoscopy? How does your GI dr know "how high"...