sorry to hear this.. I also had the reversal done 3 weeks ago. before the reversal did the doctor perform an examination of the rectum and pouch and do a barium enema to make sure there are no...
Hi Sara, sorry to hear to that. What's the plan now? Are you scheduled for another barium?...
Yes. the reversal. As much as I love the bag, I just want the whole thing to be over. Thank you for the encouragement....
I'm due for closure soon, last Wednesday I had a barium enema xray done to make sure there are no leaks. Unfortunately, the xray showed a small tiny leak. The doc said I need redo the test in 6 weeks...
UCWarrior -Can I have your email so I can ask you a few question? I just had my second meeting with Dr. Bauer today. He wanted to do the surgery and I want him to do it, but money does appear to be a...
Liz, just sent u an email. Mine as well to ask you question here. how soon were you able to schedule an appointment with Dr. Steinhagen? is he one of those doc where you have to book months in...
Thanks everyone. Pluto, looks like Dr. Steinhagen is in Aetna network. I'm going to call to see tomorrow if I can meet with him. Thanks a lot!...
Hey all, I just want to get your opinion on something. I have severe UC and is considering surgery. I have met with Dr. Bauer in NYC and done all the preliminary tests. He believes I'm a good...
glad you are making some progress. I got some eye issues before Humira. My eye was red, and the eye doc says it's from UC. I was prescribed pred eye drops. Ask your eye doc dilate your eye so he or...
when does this drug becomes available to the general public? anybody know? I read summer, fall 2013, 2014.. FDA needs to approve it quickly!!!...
I started Humira beginning of October and was doing every 2 week maintenance. I didn't feel it helped at all, urgency, blood, trips to the restroom, you name it. This past Friday I started giving...
See article below. This is for real? Time to try slipper elm powder! http://www.dailymail.co.uk/health/article-2226171/Eating-tree-bark-cured-Crohns-disease-says-grandmother.html...
Some encouraging news Data On Mucosal Healing With HUMIRA In Patients With Active Ulcerative Colitis Of the 494 patients included in the analysis and who responded at eight weeks, significantly more...
faithmac - I just had my first 4 injections last Friday, I felt a sting for few seconds. Maybe next time you want to check the needle is inside before the injection?...
hey matt, I'm kind of in the same boat. Clinical trial maybe a good idea if it's open-label or if you know you will getting the actual drug after a certain period. There's a new drug coming out next...
it says it's for both CD and UC. For UC, it has a remission rate over 40% in phase 3 of the drug trial....
supposedly the new drug Vedolizumab has a much higher remission rate. Coming out in 2013, can't wait!!!...
did you have a reaction with the slowed infusion? ...
I was just in the hospital for my 5th remicade infusion. In this infusion, my GI increased my dosage to 10mg from 5mg, as I wasn't responding to the early doses. Same as before, I was premedicated...
Hi Beth - Thanks for sharing you story. I'm kind of in the same boat. After the 4th infusion, I felt really good for 1 week, then started to flare again. My maintenance period already shortened to 6...
Thanks for advice guys! I would love to give Remicade more time to work, I just hate the wait until the next infusion, heck, I wish it's tomorrow. Guategirl/Active - I never heard of this HACA thing,...
I'm a 29 years old male, diagnosed with UC in 2007. In my colonscopy performed in May this year, there were inflammation in the last 25cm of the colon. I'm currently taking Asacol HD - 6 pills, VSL...
banana girl - PCP should be fine. the form asks for doctor's license # and expiration date....
I got mine approved and am expecting my shipment tomorrow. You do have to demonstrate a financial need though because they ask for your bank statements, statements for 401K, IRA, your recent tax...
are hydrocortisone enemas better oral prednisone in terms of side effects?...
Thanks for the info. Just spoke with the customer representative about VSL #3 DS, she mentioned that if approved, there would be no cost....
wow. that's great news.. where were your symptoms like before the transplant? Seeing improvements in 5 days is amazing. Are you still on HBT once in a while for maintenance?...