UCyousee, Remicade has been in wide use for the last 10 years and people have done very well on it for the long term. Mount Sinai in NYC has a state of the art facility that opened up last year where...
Wow! Looking back on my original post over 2 years ago is interesting. I am happy to say that Remicade put me into remission very quickly. It has really helped me. After the inital 2 loading doses...
I spoke to 2 doctors here in NY and 1 in Canada and all three told me of cases where patients have taken Remicade for almost 10 years with only good outcomes. FYI- one of those doctors has Crohn's...
Sorry I am so behind---Just saw your post! Remicade has been amazing for me. I haven't been on the forum in ages because I actually have other things to think about other than my UC :) The bleeding...
Hi Seasons, Didn't you try 6mp? What happened? Why are you back on Prednisone? I just had my 5th Remicade infusion and things are almost back to normal. My face has lost all of it's puffiness, I've...
I just had my 5th infusion today and feel amazing. I have been flaring for a year and was on Prednisone for 8 months. Remicade has really given me my life back. There are 3 loading doses and then the...
I have similar joint and ankle pain after 2 months of stopping prednisone. I thought I was just feeling old. I was taking a lot of stairs at my dad's house carrying my daughter and after two days my...
With bleeding that bad you may need a steriod foam enema for the AM and a 4g Mesalamine enema nightly. At times I would take Cortifoam twice during the day (foam enemas are easy to stay in as you are...
It has been 2 months since I have been off of Prednisone and I am still having bouts of depression & lethargy or swinging to the other side where I burst into a rage and am short-tempered. Not sure...
Hope the Remi works for you! I was also very nervous the night before my first infusion. Prepare for it like taking a 3 hour airplane ride. Bring your headphones, laptop or a good book. Once you get...
Hi Seasons, Glad to hear that your symptoms have subsided! Are you still taking 6mp or are you off of it completely now? I know that you struggled with it for sometime. How long did it take before...
I have had tendon pain as well. It can be aggravated by wearing hard soled flat shoes and walking up and down stairs. Try wearing a shoe with a small heel to give the tendon area a break....
love the floor tiles and herringbone pattern! Nice!...
Quick tapers are possible for some so keep your hopes up. Controlling UC is an unpredictable rollercoaster ride that involves part body, part stress and part luck. There is no one quick fix solution...
I also started off spliting the dose 20mg/20mg but it did not clear up my symptoms. My GI recommended taking at 40mg before 8am with food and this should help. You may find that it wears off in the...
Try squeezing out the air of the enema before inserting for less gas. Also, you can warm up the bottle under hot tap water or under your armpit for a few minutes. The warmer temperature makes it...
Balazalazide disodium is generic for Colazal and even though everyone told me it was fine it definitely made my symptoms worse. More people have success using Colazal as a maintenance med. Not sure...
Have you tried gas-X? That clears up my bloating and gas very quickly. Also dairy always gave me terrible gas during a flare. Try to cut it out completely and definitely none before bed. You can try...
I just got a juicer and started juicing once a day in the morning. I had a juicer over 8 years ago and I am impressed at how far they have come along. They are still a pain in the butt to clean but...
Unfortunately having symptoms return at 20mg is fairly common. From my own experience I went back up to 30mg and tapered by 5mg every 10-14 days instead of every 7 days. No one wants to stay on pred...
My GI only suggests it in case I am in an emergency situation (i.e. keep it in my carry-on when traveling internationally) I have actually never used it but it gives me peace of mind. Other than that...
no dogs or cats in the loo with me...just two kids (age 3 and 1). i haven't had privacy in the bathroom for over 3 years. my 3 yr old thinks that noisy, splashy poops are normal and he even brings in...
Sounds like the taper was too fast. From 10mg to Omg you can taper by 2.5 every 5-7 days or by 1mg every 7-10 days. It depends on your body, how long you took it and at what dose. Some go even slower...
Looks like you are not taking any maintenance meds (i.e. Colazal or Lialda). Never been in remission since 2005? When was the last time you saw a GI? Do your flares ever seem to get better or do you...
Janey---just know that you are not going crazy. The pred makes it harder to deal with EVERYTHING! Vent and let it out---we are here for you :)...
I tapered by 1mg from 10 to 1mg after starting at 40mg 6 months ago. YES! They do have 1mg of Prednisone so you don't have to split pills. Just ask the pharmacist. Even though I had a VERY slow taper...
I was having some pretty bad body aches and headaches after my taper of Prednisone (started at 40mg and was on it for 6 months) so my GI prescribed T3. They made me super drowsy during the day and it...
Hi Seasons, Sorry you are going through this. Prednisone has quite the yo-yo effect doesn't it? How are you feeling now? I finally got off the Prednisone two weeks ago and was having terrible body...
I always attributed the hair loss to prednisone or colazal but my new GI told me that it the stress of the UC itself that makes the hair fall out on your head. The pred makes it grow on your chin! He...
I have been suffering terrible fatigue and joint pain during this last flare. I always attributed it to the pred or tapering on pred but my new GI told me it is from UC. The body is under a...
Somedude, You are certainly giving it your all to fight this disease. I don't have any advice on what to do next but just wanted to send out some good vibes to you and your colon. What doesn't break...
You can always ask your GI for a recommendation for an OBGYN. Talk to your GI about your plans on starting a family. He/she may want you to wait until after you taper off the prednisone....
Seasons you are doing great. That is definitely an improvement and what you are doing is working so keep at it. Take it week by week and you will see how far you have come already. These meds work...
This disease if very unpredictable. Even if I ate the exact same thing 2-3 days in a row my movements would be different during a flare. The only way I was able to get rid of the blood was to try...
Glad you are feeling better---yes i live in the city. I started Remicade about 3 weeks ago. The day after my first infusion the bleeding stopped and after the 2nd infusion I had no urgency issues and...
Thanks prednisone for making those few strands of grey hair fall out....along with the huge chunks of long, shiny black ones too....
If you do an internet search on "sleep hygiene" you can get some good tips on how to create a good bedtime routine. They actually say to AVOID taking naps because it will make it harder to fall...
Hi Seasons, Sorry I've been out of touch lately but I am feeling better and spending more time with the kids and less time thinking about my UC :))) I had my 2nd Remicade infusion on the 4th and I...
After your diagnosis did they give you any kind of maintenance meds? (i.e. 5ASA, Cortifoam, Mesalamine Enema) Were you in a flare at the time? If so, how did you get into remission then? The answers...
Glad you are feeling better and the pred is working for you. It does give you a high. I did a lot of online shopping while at 40mg so be careful of that euphoric feeling if you are making any life...
So sorry you were feeling so sick. Nausea is the worst feeling in the world. When I was pregnant I took a B6 vitamin in the AM and it helped with mourning sickness. Not sure if it will help for this...
Turn, So sorry you are feeling so down and are suffering so much. We all have been there when the disease seems to take control over our bodies. If you are so weak and tired it is time to check in to...
Seasons, Glad to hear that you are feeling better! Great news and so happy that things are going in the right direction for you :))) How are you planning on tapering off the pred? (dose/how many...
I was on 40mg for 8 weeks before my symptoms improved enough for me to start tapering. The decision to taper is an individual one and one you should make with your GI. Please use this forum as a...
Hi James, I started having a mild flare in November of 2011 and I continued with my Colazal (2pills/3x a day) and started on Cortifoam. Things slowly got worse. I moved to Cortifoam 2 times a day....
Congrats! Your hormones are adjusting after so many months of changes during pregnancy. My UC has always been affected by hormones and menstrual cycle. With my son my UC was great during pregnancy...
I've been taking my Cortifoam enema daily for the past 7 months. For the first month I took it twice a day but all of my symptoms were getting worse. The blood finally stopped after my first Remicade...
Oh yes! I just did the same kind of shopping. I am trying to survive by living in my black leggings but thinking I may have to expand the waredrobe just a tad :)...
Foam enemas are very easy to retain. I take one in the AM and take a retention enema before bed each night....
I've been on Colazal for 8 years. I take 2 pills after each meal. I try to space them at least 5-6 hrs apart....