I've traveled with my enemas in the box unopened with no issues whatsoever via carry-on luggage. No issues with individual enemas either. However I've been asked to open my luggage by TSA but when I...
It works but expensive. I now use a cheaper version (droplet) I found on Amazon. I use it mainly at work and it does the trick....
So on Friday 9/19/2014 I had my 3rd Remi infusion. It's been working for the most part (no bleeding, 1-3 BM's, no urgency, etc.). On Sunday I noticed a small quarter size rash on my shoulder. It...
Diagnosed in 2005. I now get scopes every year since I'm approaching the ten year mark. After my initial diagnosis and pred cycle back in 2005 I went into remission for 4 years. However after that...
Great news! Hope you achieve full remission and get off the nasty pred!...
I can't agree more with all of the advice that Dreadsteel provided. Very good information....
No other illness except for UC that I know of right now, but I'm sure as I get older the list will grow....
Congratulations!...
Thanks for all the input. The infusion center is actually right at the doctors office itself. My insurance is a PPO not a HMO plan. My GI is considered in-network since I've never had any issues with...
So after two infusions I just get a letter in the mail saying that my coverage request for Remicade was denied. I have CIGNA PPO health insurance and thought that all of this was covered when I spoke...
Great news!!...
Usually in the mornings the initial BM is never really formed because it's an expulsion of the enema liquid and stool all mixed together. After that the BM's are sort of formed but 'mushy'. How...
Welcome. Sorry to hear about the pain. Have you had a colonoscopy? How bad was the inflammation? The pain could possibly be due to the ulcers. What kind of meds are you currently on?...
I joined a CSA (Community Supported Agriculture) program where I get a large box of fresh organic veggies and fruit share for 23 weeks once a week from local farms. I've been eating more fruit and...
Pre-UC: 1-2x daily Post-UC diagnosis but not flaring (no blood or mucous present): 1-3x daily Flare: 3-10x daily I've never been constipated much in past but needless to say there are times when I'm...
I was also called in for grand jury duty and I was able to get out of it with a doctors note explaining my UC symptoms and also a letter from my employer stating how I can not be removed from the...
The ice bucket challenge became an instant social media phenomenon. Now whether or not some people just poured ice water on their heads and didn't donate it still brought attention and awareness to...
There's a loading phase with Remicade. I'm told it's the initial infusion, 2 weeks, 4 weeks, and then 8 weeks from then on out. I received my first infusion on 8/5/2014 with no issues. Post infusion...
Sorry to hear this news Katmom. Hopefully this thing kicks in soon and your daughter starts seeing some symptom relief. :smile:...
I make sauerkraut, ginger brew, pickles, beet kvass, and a bunch of other stuff. I purchased a fermentation book off amazon and realized that I can almost ferment and jar any veggie.. Here's the book...
Welcome!...
I'm currently hooked up to the Remicade and an hour has already passed. So far so good. No allergic reactions, pain, or anything else that could possibly happen. Funny thing is Fridays are apparently...
Hi Emma, I hope Remicade works for you. I'm actually getting my first infusion as I type this right now! If Remicade doesn't work there are other biologics such as Humaira, and Entyvio that are worth...
Thanks Aliseayah!...
Everyone thank you so much for all the info! I greatly appreciate it. I'm pretty anxious now and can't wait to get this thing started. I've decided to cancel all of my meetings tomorrow and just go...
I'm starting remicade tomorrow (if remicade fails then entyvio is next on the list) morning at 8am. Uceris and pred were not really putting me back into remission but just helping me manage symptoms....
Hope it works for ya!!...
I agree most energy drinks on the market have super high amounts of caffeine and other chemically processed ingredients that are not good for our body. I've seen "All Natural" energy drinks sold at...
Gary honestly I wouldn't go in if you're feeling well right now. I know I won't. From now on I'm going to ONLY go in if things are really bad. Personally I think it definitely has something to do...
Hey hardhughes - Thanks for the input. Hope the rectal meds help get you back to where you were and relieve you of the blood and mucus....
Had my colonoscopy on Friday. According to the GI I still have "mild to moderate" inflammation on the left side. Now prior to the scope I had practically no symptoms of a flare. I had no mucous and...
I have a colonoscopy tomorrow to see how things are actually going down there. My GI wants to see how much inflammation I have currently. Plus it's been a little over a year since my last scope. As...
Katmom how did the infusion go? How do you feel?...
Let us know how it goes UCHater! I hope it works and relieves you of all your symptoms. Keep us updated! :)...
I had to go over and take a look for myself as well but it looks like they cleaned it up. I like how the UC forum is free of spam thanks to the admins (Thank you). Hopefully it stays that way....
Well at this point my throat is sore, my head hurts, and my nose is beginning to run. So I'm pretty sure this is a cold. Going to up the vitamin C intake and try to get rid of this cold. However I...
It seems like our body is trying to fight off something. Is there anything that you guys do to help relieve yourself of these symptoms? Cold shower? Extra garlic supplements? Vitamin C? Anything? haha...
Does anyone ever experience fever like symptoms? Like you feel like your catching a cold, body gets hot, etc. However when you take your temperature it comes back as normal? At this point I have a...
Coconut Bliss is awesome! Trader Joe's also carries a coconut water Popsicle that tastes great. I think it's called Coconut Water Fruit Floes. It's a great post workout treat after a long run or bike...
I've competed in many triathlons from sprint to iron distances. I've trained while in remission and in a flare and I can honestly tell you that while I'm training my symptoms seem to disappear. I...
I live in the Washington DC area. Independent software architect for a couple of government agencies. I work from home every now and then if my flare is bad but overall it's easy enough to find a...
I agree with Kazbern. It's probably HSV 1 and there's really nothing you can do about it but let it heal. Different things may cause outbreaks such as stress, weakened immune system, etc. An ointment...
Why now, I'm traveling to Mexico tomorrow! I was having the same worries but I think everything will be fine as long as you take your meds, eat smart, and not worry so much! Have fun!...
No side effects from Lialda. I've been on it for over 3 years now. However in some people it does change the color of your pee or stain the porcelain with a purplish color. Just make sure to keep the...
I did this method once and just like others it took a lot longer to kick in than the GoLytely jugs.....
Thanks notsosicklygirl. It just feels like I cheated myself out of benefiting from the full potentials of what Uceris could've done for me for 2 weeks now. I actually go back to my GI on Friday....
Thanks for the reply.. Looks like I've been doing it wrong all this time....
I like my numerous trips in the morning. It's sort of like clock work. Wake up expel all the mesalamine/stool from the system. Then eat breakfast and wait about 10 mins then go again. After that I'm...
I was prescribed Uceris approximately 2.5 weeks ago. It started to work great and all the bleeding stopped. I was taking Uceris in the morning but was also taking psyllium husk in the morning as...
I used to have relatively bad spring time allergies and it seemed like each year it would get worse. A month ago I started taking local bee pollen & honey. I am amazed with the results! So far I...