Thanks everyone, it is really hard not to get depressed and my back and hips are killing me too, all part and parcel of this horrid disease I suppose. Edbar, I was worried that the poop may be bad if...
I was reading a blog and another forum, where some people said that they freeze it and have success, however I would say that it would mostly be spores which survive freezing though? Due to allergies...
Well I have not had the best week for FT's. My donar is starting work earlier this week and I have not had a FT since the weekend. I have been using the inulin instead but today my BM was not good at...
Excellent Thanks Edbar! This is really good information, just what I have been looking for, so it definitely appears that it needs to be done long term. Now it would be good to know how many mls they...
Borody Protocol https://docs.google.com/View?id=dc4nwm3v_216gznsqmg8 This one is Dr Borody's famous 6 which were treated for UC http://www.cdd.com.au/pdf/publications/paper17.pdf The rest are just...
thanks for all the responses. I'm not sure about compatibility and how one would be sure of compatability (would it be like blood type etc?) I know for sure that my donars bacteria are totally...
Thanks Edbar I just think the more fluid the more likely to coat the villi and the protocol also recommends 400mls. This is another reason I prefer to strain the donation rather than blend, maybe...
Hi summerstorm, I don't think Borody does it this way any more? I think it could actually be non beneficial and actually cause SIBO if done NG tube. The reason I think this is because I read research...
Hi trojen, I think you might be right but the Borody Protocol says 400mls so not much difference really? Have you noticed an increase in your sons energy levels since being in remission?...
To add, I can not use the Donar Microbiota fresh. My donar makes the deposit at about 4.30am and I don't relieve myself until about 7.30 am and because of being an IBD sufferer I doubt if I am...
Hi everyone, I started doing FT on Sunday the 1st of april. My donar is a Floater and I am a Sinker. My symptoms at the beginning of the FT procedure had become multiple. After years of IBD...
Hi bananagirl, Havn't been online all week and was stoked to see that you have your appt booked! It's been hard for me this week with the FT's, i definitely need imodium and or codeine to help retain...
Oh that is great news!!! Sounds like a very promising change of plans! It might happen quicker than you expect now! It is not much different for the GI doing a colonosopy and he would have his nurse...
HAHAHA Thanks Insofar I know I am so Happy about it. I have become used to experiencing the Placebo effect, so I take it all with a grain of salt but no Placebo has ever given me a formed BM. However...
Yes I was on sl oxycontin for a long time (years) which helped with cramping and and firmer stool, it actually did help my cfs too, it was the only thing that helped me to continue working. However I...
Hi bananagirl, I just wanted to say if your FT works out like my first one you are going to be so so happy!!! No D for me! For the first time ever I have had a formed bowel motion that looked...
Hi InsoFla, that's some great info, but yes I have tried everything and I am not one to give up easily. I have been on many diets and now am on the Fail Safe diet by Dr Swain of the RPH, it is very...
hi I don't really understand the term remission, if it means cessation of symptoms, nope never in my entire life. I have never had a normal bowel motion and always have symptoms to varying degrees...
hi Johan46 not much I can say except All the best mate! JohnScott...
Hi PennGirl75, As others have posted it is associated with IBD (UC,Chrones) I had a spontaneous allergic reaction to Ibuprofen which sent me into Anaphylaxis and now I have been diagnosed with...
I hear what you are saying, the airline tickets and hotel costs worked out to be more than the medical costs for me. Which are a lot by the way! more than I expected and insurance and medicare don't...
bananagirl The Borody Protocol which I am doing, says that a low fibre diet for two weeks prior to transplant, which I have been on for months as I am on a very low chemical diet also. The day before...
Hi bananagirl, I have been following curl3D thread and read your predicament, i am glad that you have been able to convince your family to help and you are on the way to getting this treatment. I...
Hi, I've been following your progress and would like to say well done! Your Wife must be looking forward to having a sh*? in peace instead of anticipating it to be examined, processed and reinserted...
Thanks for that, I will have a good look at the Forum. I'm trying to get as much info as I can and am interested in other peoples experience. In a weird way I am looking forward to starting this...
Hi Long time lurker here! Firstly I would like to start out by saying that this is a great informative website! Mostly I would like to say 'a real big thanks' to all the brave FTer's out there that...