Yes a more solid stool will help. It took me right up to the day I got take down surgery to get the hang of an illy bag (3 mos). Hopefully the surgeon will be able to give some insight on the issue....
Thought I would give y'all an update. Haven't been on here for a long time. I'm not great on long posts with great detail - so if there is any questions let me know. I had the second of two surgeries...
This is an odd question to me. I've had a pouch for 4 years now, never been able to fart since I got surgery. A girl told me that I have in my sleep, but when awake I rarely ever have. I release gas...
Anyone live in Charleston, SC and have a GI they would recommend that has special interest in UC/Crohns?...
I don't really lift much, can't help ya there (I keep in shape through kiteboarding). Although, I can tell you that I usually eat (6) times a day. Since food is going so much quicker through you,...
Pros: When your with friends and someone passes gas, you can tell them it wasn't you because you physically can't hah. -I had open surgery so I have an 8 inch scar. Although I don't really mind it -...
Sounds like she's sick of the cold! I support this move! Considering I went from PA to SC....
Good Luck TC, you'll be fine. Hmm tips, well in the day or two after surgery - make sure to ask questions. I didn't figure out that you were allowed to blast the epidural button three times in a row,...
This is so on point Sue. Mine was a mash-up of 1 & 2. For me I just knew that is was time - ended up getting it done after my 3rd consult....
I've never encountered someone that bashes on surgery as much as you. I feel really bad your current condition, but most of your comments are very close minded and uninformed. Almost makes me think...
You should be totally fine doing this (after your healing/adjustment period of course). I go once when I get up in the mornings before work then I don't use the bathroom again (unless I have to pee)...
Love this post, well said Sue. Key part of this for me is "I can keep commitments." There's nothing worse than setting up plans months in advance while your in remission - then panicking every time...
"pleasantly stoned" LOL, well put....
I agree. I wasn't offered sedation, but I wouldn't see why? The entire flex sig process is less than 5 minutes....
Do what? I just use the bathtub as well....
I second this, and what Gary said about Limited Networks. With this disease I feel its very important to have as many options as you can when deciding on a doctor / meds....
They will match your steroid dosage (liquid) through surgery, then will have you continue to taper afterwards. Okay I see - Aza (Imuran/6mp) and a 5ASA. Aza might effect the number of stages for...
1. Kind of hard to answer this bc I don't know what other drugs you have tried, or what condition your colon is currently in. 2. I had (2)stage and I was on 20mg pred when I went in. I thk your...
Happy to hear you're doing well! What is your diet like post surgery? I ve read some articles etc. about how we still need to watch our diets (not that I plan on going back to eating the junk I did...
Thats too bad about not being able to choose your surgeon, if that changes I would shoot for someone with a higher rating (And many more years of experience) - like this guy: McLaughlin, Christopher...
No regrets on my surgery, gave me my life back. I'm pretty closely living life the same as I did before getting the disease. Had to make a few minor adjustments (I don't drink beer anymore or eat...
I'd recommend Paleo....
Yes it works. My experience with it: It completely removed pain from cramps and also turned red stool back to brown. (And increase of appetite goes without saying, I hope.) Although keep in mind that...
Yes, he should have started you off on 5ASA's first. I would shoot for Lialda....
Hah oh trust me I tried that, my bed kinda sinks in - so I didn't have a prayer....
Good Luck Halo! I want to give one more tip, and this might seem minuscule and its not a huge deal - but will help you avoid extra stress and pain: When you get home from the hospital you will not...
Haha yeah I hear ya, "Good night sleep for me" - exception: gf's cat decides to sleep on my face....
In my experience, I would wake up in the middle of the night when my bag was full of #2 and air. I think the air was the main reason though, from maybe eating gassy foods the night before. In the...
Is this true? Once you have surgery you never get a good night sleep again?? This is true to a degree. Some nights I get up once to go but many nights I sleep through. It depends a lot on what I ate...
Yup, I haven't been on for awhile - first thing I did when I logged in was search for somedude posts, where ya at kid?...
Good Luck rguyer! Another happy poucher here, 8 months after surgery. I agree with KS, find a high ranked surgeon with plenty of experience. I went to Duke Hospital and had a great experience. Had a...
Also well said Probiotic - I thk im in your same boat. And about the whole surgery debate, most of y'all are stronger than me with this.. I went under the knife before even trying Humira. I really...
Ok Somedude here it goes: Once upon a time there was a boy named Somdude. His UC got so bad that he had no choice but to have surgery. He recieved a j pouch and from that point on he pooped rainbows...
Hey team! Sorry I've been MIA. Been doing very well, living like normal again with my new J-pouch! So about 4 weeks after surgery I had a minor setback, was feeling so good that I overworked myself...
Liz, why did your surgeon choose three steps? Because of all the meds your on?...
I'm probably going 6 times a day - once in the middle of the night. Really depends on what I eat and drink and when. I plan to improve on these numbers as I continue to heal. I had leakage in the...
Yeah - so I live in 1 unit with a roommate. Then rent out the other 2 units. One is a studio, and the other is meant for a store....
So last surgery went very well. Was in the hospital three days total. Bowels started to work on the second night. I was definitely getting a little bit worried about when they were going to start...
LOL - well said....
This is awesome awesome awesome to hear, considering I'm going for take down surgery in two weeks. I hope I have a similar outcome!!...
Yeah in agreement the posts above. You'll know when the time is right. I met with 3 surgeons before I decided to go through with it. During my last flare, I finally was tired of it (5)yrs is long...
Wanted to keep y'all up to date with this.. Take down surgery is scheduled for May 3rd - very excited!! So after the first part, I went completely off pain meds within 4 weeks (Only (1) script of...
The only meds im on right now is pred, tapering down from 30mg. And yes I feel awesome. Surgery was way easier than I expected. Barely any pain the entire process....
Yeah I went into surgery on 20mg of pred. They did screw one thing up though while I was in the hospital they bumped me up to 30mg. So I have to taper off of 30 now instead of 20. Most surgeons wont...
Hello! Thought I would share my success story with y'all. So as much fun as I had with this disease in the last 5 years - I made the best decision of my life! I tried all the drugs (supplements and...
Byebye, who was your surgeon?...
ByeBye, who'd you have your surgery down by?...
I have a friend that is med free and in remission. Only because she doesn't have health insurance at the moment. She got into remission with Lialda and pred. I don't really understand it. She drinks...
http://www.nytimes.com/2013/01/17/health/disgusting-maybe-but-treatment-works-study-finds.html?_r=1&...
Does any one use Dr. Sullivan out of mechanicsburg, PA - and if so, have you recently had trouble getting ahold of him? I left two voicemails and havn't received a call back....