I see I'm a little late on this but wanted to comment on the stealth belt. I recently had part one of my jpouch surgery which gave me a temp ileostomy, and bought the stealth belt immediately. It has...
Congrats on your success!! I just had part one of j pouch surgery on Wed. I am doing extremely well already. The docs and nurses all tell me Im getting the award for fastest recovery! I also only had...
Still tapering from pred but symptoms starting coming back a little stronger so I am going next week for my second infusion. Don't want to take any chances....
I have been on apriso, mesalamine enemas, cortifoam, and nothing worked, not even the pred the first time around. I was initially diagnosed with mild proctitis which spread to full blown UC in a...
That was supposed to say I felt really good before i took the remicade, not telltale....
I have had UC for about 6 months. A month ago it flared so bad I was hospitalized for four days and got iv steroids and was released on 40mg of pred a day. The doc wanted to start remicade and I was...
I'm one if the fortunate ones who doesn't have have of the bad side effects of pred. I've been on and off it for five months and actually lost weight, no puffy face, no mood swings, nothing. I was...
I was hospitalized last week for 4 days to get iv steroids after my colonoscopy showed severe full blown pancolitis. My doctor said it was so bad I needed to get tested and approved for remicade. I...
I have been on varied doses of pred for the past 5months, as high as 40mg a day for a month. I was fortunate and had no side effects, but the pred also did absolutely nothing for my symptoms. I am...
It's amazing how fast this disease con progress! I was diagnosed back in Jan with mild proctits, and told there was a slim chance it would spread but likely that it would be under control shortly....
Well after my colonoscopy, I was found to have severe UC affecting my entire colon and large intestine. It was far worse than the proctitis that I initially presented with. So I have since been...
The liquids are there all the time, just sometimes worse.than others. It's like my intestines are not absorbing anything....
I am going this morning for my second colonoscopy since being diagnosed with proctitis roughly six months ago. So, last night I prepped, drinking all the miralax to clean out my system. Now let's...
I was diagnosed with proctitis about five months ago and have the total opposite symptoms. I would kill for a solid BM!! All of mine are very loose unfortunately. The way my doc explained it to me...
I used a mesalamine enema for a while and it didn't really do anything for me. I recently saw a specialist who started me on cortifoam. It's a steroid based foam enema, much easier to retain in my...
Hi all, I was diagnosed with proctitis in January. In the beginning the symptoms were not bad at all but in the past month, they've become horrible. Up every couple hours in the middle of the night,...
My doctor is leaning towards remi because nothing else has worked and I have a very stubborn case of UP. Just wondering what if any side effects anyone has had from this drug. And is it possible to...
I was diagnosed with proctitis about 4 months ago and have been in a flare since then. After trying multiple medications that didn't work I reluctantly went on prednisone. Been on it for almost 3...
And whats everyone's experience with 6mp been like? My doc keeps talking about it but I've heard some bad stuff about it. So I'm a little reluctant to take it....
Anyone have any experience with splitting pred? I've been on 40mg for a few weeks and have been taking it all in the morning. Then the rest of the morning all the way through the evening I'm pretty...
I have the same exact issue! I had a really bad flare a few weeks ago and now I've been on 40mg of pred for about 10 days. But as you said, lots of action in the morning and every 2-3 hours at night....
That was my initial symptom for UP. All I had was blood. No pain or cramps, just blood. All the other nasty symptoms came a few months later. God, I hate this disease!!...
Sitting down is ok for me, but when I lay down to go to bed Ive been getting pretty active. Usually up every couple hours to go to the bathroom. But during the day while I'm active, not nearly as...
I never had any problems with urgency until very recently and they only seemed to be in the morning when I first woke up. I would have to go multiple times in a short period of time. But since the...
I started out on 20mg of prednisone, apriso, and a daily mesalamine enema. After weeks of this my proctitis didn't get any better so I started tapering off the pred, and stopped taking the apriso and...
I was diagnosed with UP three months ago and have tried all kinds of meds with no relief. At first I was taking 20mg of prednisone, Apriso, and a mesalamine enema every day. Nothing worked so I...