I tend to get bleeding if I get constipated and the Vicodin can make you constipated. I take VSL 3, 4 to 8 capsules a day, and the constipation and the bleeding both go away....
LDN is low dose naltrexone....
Just a follow up note...I posted about Remicade and fatigue almost a year ago. I finally stopped the Remicade; last dose October 2012 (after an abnormal pap smear). I am really starting to feel...
I was going through a similar period in my life. Blahs, fatigue...just couldn't shake it. I saw a therapist and tried several meds. Nothing really helped, until I went off Remicade. After much...
I also seem to get extreme fatigue and joint pain starting after my infusion. But my UC is doing well. My doctor just keeps telling me to tough it out. But it is so hard, I'm a single mom and have a...
Not so much with the UC, but if I sleep poorly, I have aches and pains all over, I guess it's fibromyalgia....
I have been on Remicade since May 2008. I started having severe fatigue about 2 or 3 months after I started it. It took about a year and a half to achieve remission (by increasing dose of Colazol). I...
Ischemia means an area of the body isn't getting enough blood. I believe ischemic colitis is usually a disease of old people with the same risk factors as coronary artery disease and stroke. But I...
I was in a focus group about fecal transplants 2 years ago: http://news.uchicago.edu/article/2011/06/09/patients-bowel-disease-eager-test-fecal-therapy As far as I know, the University of Chicago...
The enemas work well. My problem was finding that time at night when I wouldn't need to get up again and falling asleep while waiting for that time before I did the enema so I would miss doses. I...
I am not on Colazol now, but I was doing well on it from about 2005 to 2007. My mail order pharmacy switched me to those bright orange generic capsules. I can't remember all the dates, but I am...
I am horrible at following any kind of diet. I can do it for a day or 2, and then long hours at work, teen aged kids at home that are picky eaters, cravings and especially extreme fatigue makes me...
Is the Remicade making you tired or is it the flare of your UC?...
I would try enemas. If things are really bad, the cortisone helps me more than the rowasa. I have also used a foam form of cortisone when I was unable to retain the enemas due to the inflammation. At...
Good luck with your Remicade! I think that some ppl respond immediately to Remicade but it can also take up to a year. For me, I think my abdominal pain decreased within a few months, but it was more...
I had experience similar to bookworm21. Only remistart isn't paying. I believe the Remistart people told me that they will verify your benefits for you. Be sure to check it out before the infusion. I...
I have been on Remicade a few years and have started getting warts - on my back, toes, etc....
I'll have to check out this publication. I participated in one of the focus groups....
I got a call from University of Chicago today about taking part in a focus group about this topic. I guess they must be considering doing some research, and want to know how patients would feel about...