This is just trickle-down thinking....how much of the sky-high price we pay for drugs actually trickles down into STEM research? For a generic, that number is zero or very close to it. For a brand...
Thanks but I don't quite understand...I saw a press release that Mylan was launching a generic Lialda a few months ago. This other website (https://www.drugs.com/availability/generic-lialda.html)...
Is anyone else in the US puzzled by the price they are seeing for generic Lialda? I thought it went generic almost 2 years ago and other manufacturers were supposedly starting to make it. Seems like...
My first flare lasted for months, I went into the hospital severely anemic, and I took two weeks in there before showing any response at all to 60 mg/day of methylprednisolone. But a decade later,...
I guess what I am trying to figure out is: do such doctors exist? Because every GI I've seen believes in a protocol as strict or stricter than the one I go to.... Basically what I need to...
They don't know either, and it probably isn't...but I can only assume they are worried about getting blamed if you develop cancer. Of course if the inflammation-causes-cancer hypothesis is correct...
Does anyone have a GI that does only a few biopsies for your regular surveillance colonoscopies? I've been feeling fine and just went in for my surveillance scope ... my doc is traditional and took...
Sorry to hear about this. Many of us have been hospitalized for a week or more and we understand that it can be extremely stressful for patients and family members. However, it sounds like your...
Are you talking about the delayed release stuff? I too would be interested to hear if there is any new research or products available. I remember reading before that a German company was selling it...
"Can't you just control it with the right diet?" unscientific bs...
Hmm, my NJ doc gave me the same "choice of 3", wonder if we see the same guy! My verdict was for the remicade. It's been in use the longest, has the biggest track record, and was the only one...
If your doctor is recommending you continue for the time being, I certainly wouldn't dial anything back until you are solidly in remission for several weeks or months even. Mucosal healing takes...
Sounds like you have tried the typical options short of prednisone, so if your doc recommends that as the next step, I'd just do it. Don't beat yourself up about the diet thing. There's no...
Yes!! Shove that thing up there every day, or twice a day if that's what your doc says. My god, if only I could go back to the time when I could control this thing with just a suppository!...
Methotrexate is a textbook example of why public funding for medical research is so important. No one in the private sector is going to pay for a study to find out how effective the drug is for...
Whatever you do, don't beat yourself up about what happened on the prednisone. The drug messes with your mind too, so it's not as simple as saying you just needed more will power to not eat as much....
I understand. All I'm saying is that, ironically, in certain contexts I think that being perceived as lazy or lackadaisical might be superior to being perceived as "damaged", which is the label that...
Sorry to hear about your diagnosis. Unfortunately, as a means of encouraging people to live healthier lifestyles, it has become fashionable to use a very broad brush to blame health problems on poor...
I'd need to know your disease activity state to say one way or another. It's interesting to me that you are averaging twice a month at the GI, since this is well above average for all but the most...
I can't think of any reason why mesalamine would worsen symptoms when given orally but not rectally. I believe the rate of actual 5ASA-induced exacerbation of UC is much lower than anecdotes would...
One surefire solution is not to make any excuses. Just don't do things when you don't feel well enough. Let people think you are indifferent, lazy, or just don't care. Of course it's something that a...
Baloney! There is nothing subjective about bleeding from your rear or going ten times a day. The cells in your intestines obey the same laws of physics and chemistry as everything else. To say that...
It's hardly as clear cut as you might think. A lot more research is needed before antibiotics will become part of generally recognized UC therapy. And it's naive to think there can't be any serious...
I have read several of your posts and I admire your detective work. I am a scientist myself but I can't keep up with everything while maintaining the research I'm actually getting paid to do. Are you...
I have had problems with (what I think might be) warts from my last prednisone round. I got in line to see the derm too (will eventually be seen in a couple months or so!)....
I am very sorry to hear that. My inclination is that this situation is somewhat above the pay grade here, but I wanted to say that you are doing the right thing by bringing another doctor on board....
Are you not taking prednisone? Thiopurines are generally not used to induce remission....
Hang in there man. My second round of pred was about a year after my first and it sucked to go through it all again. But then I was in complete remission for almost 3 years, and got in great shape...
Congrats and hope you're feeling better. I don't think there's any magic to losing weight, you said before that you work out and I assume you eat healthy. You may not have to do anything new, just...
This one is for the rich folks among us: http://my.microbes.eu/contact.cgi You can volunteer to participate in a study where your gut microbiota will be sequenced. Participants have to cover their...
I have found that stool consistency is not an especially reliable measure of UC activity. I was surprised to find significant active colitis during my last scope despite having relatively reasonable...
Don't worry, you'll lose it. Actually this is a great time of year to be winding down your course of pred. You'll have all summer to get back in shape. I don't even bother going to the gym while I'm...
I'm not mad, only somewhat surprised that you seem to realize you were misled and consequently repeated erroneous information, only to, without skipping a beat, cite another overtly biased source...
Just wanted to point out that this is a baldfaced lie that was started by a press release from a conservative congressman and was subsequently circulated among low-quality media sources. It's hard...
Though it is an excellent source, the studies indexed on pubmed are not in fact published by the NIH. While for the most part they appear in good to fairly good journals, It takes a lot more than an...
Current knowledge of UC pathogenesis suggests that dietary antigens are not responsible for the inflammation that is characteristic of the disease. Elimination diets including gluten-free were...
My rant about UC: a lot of even otherwise-well-educated people think we "got" UC because of something we did--bad diet, poor hygiene, etc. Maybe this is why your sister conveniently ignored your...
As others have noted, it is hard to imagine what in the gluten-free diet might have exacerabated your daughter's UC. Perhaps the worsening was unrelated to the diet. Have you also considered the...
There is no evidence for gluten in the pathogenesis of UC or for the effectiveness of a gluten-free diet as treatment. I would not bother....
Your guess about what foods your doctor was referring to is most likely wrong. The typical recommendation is to follow a "low residue" diet during flares, meaning avoiding fresh vegetables and things...
Anyone know of doctors or centers that are performing chromoendoscopy or fluorescence endoscopy? The idea is that the application of dyes or use of fluorescence during colonoscopy makes cancerous or...