Hi. I just got notified that Cigna will no longer be covering my Remicade infusions. Ugh! I’ve been on it for over 10 yrs. and I love their copay assistance program. I’m waiting on a response from my...
I drink an Arbonne protein shake every morning. It has 20g protein & is vegan & gluten free. I’ve been drinking them for several years. I use coconut milk and some other vitamin powders. They have...
I’ve been on Remicade from the beginning. It’s worked really well for me. I’ve only had minor flare ups while on it. I attribute my flare ups to stress (getting married). I used to be super tired...
I got my Remicade infusion last Weds (3/11) I went to the grocery for a few items and worked half a day on Thurs. I’ve been home since (3/12) I personally decided to stay home because after my last...
Thank you John. That helps alleviate a lot of anxiety....
My calprotectin fecal is at 527 and normal is 50 or under. Should I be concerned? I’m going in for bloodwork tomorrow to see if my Remicade is doing its job? I’m super concerned about this. Any info...
Thank you CCinPA & poopydoop...
Thank you Spring & Notsosicklygirl. I see my GI at the end of March & will ask her about those options. Has anyone had any experience with Turneric healing their inflamed colon?...
I really enjoy this forum, it’s very informative. The day after my remicade infusion, Jan. 15th, I started to have flare up symptoms. First mucus when I go to bathroom, then tummy cramping on left...
I am mot a fan of antibiotics. I had a sinus infection and had tried everything else. This was my last resort. It was Amoxcillin 875 mg one pill twice a day. That was on Jan 10 for ten days. It seems...
Thank you everyone for your suggestions. I am looking for a more natural approach to my flare up, since I feel it is in the early stages. If there is a build up of bad bacteria in my digestive system...
I have tried enemas in the past. But it was when I had a really bad flare up and was bleeding with my BM’s. I have tried canasa and a hydrocortisone enema in the past. I never noticed them helping...
Yes. I forgot to add that I have been taking Lialda(mesalamine) 4 pills once a day. I went off them for a couple weeks in January because my Insurance deductible had not yet been met. I am now back...
I am looking for suggestions or remedies for a possible flare up. I have been having left sided stomach pain and nausea while eating and soon after. I wake up in the middle of the night flushed and...
I’m back from the eye dr. He said I was allergic to the eye drops I had been using. He recommended preservative free eye drops. And I’m on a steroid eye drop for two weeks to reset my system. He also...
Thank you everyone. I was reading about Sjogren’s and have a few of those symptoms. I’m going to the eye doctor tomorrow morning. I will let you know what he says. I’ve already been to my MD this...
Has anyone experienced extremely dry eyes with UC? I am using eye drops every hour. I’vetried Refresh, Systane & Bausch & Lomb. I’m taking special Thera-tears fish oil onc3 a day. I know the area I...
Thank you so much for the tip hateuc! I’ll try it....
Thank you KCFLY....
Does airborne contain echinacea? Michelejc & FlowersGal? Thank you for the tip....
Does anyone have any helpful tips on staying healthy during the winter months? I get remicade infusions every 6 weeks and it seems to set my immune system to zero. If I’m already coming down with...
Thank you everyone. I tried the grapefruit seed extract last nite and it did not go well. I'm going to try curcumin and slippery elm. I've taken that in the past and it helped. I'm going to a 3 day...
I've had a flare up since my last remicad infusion about 4 weeks ago. It's progressively getting worse and my GI prescribed me prednisone. However, I'm not a fan of the side effects of steroids. I...
I'm in remission and am thinking about trying the Dr. Oz approved diet pills, all naturual: garcinia cambogia. Has anyone taken them? I'm just wondering how my system will react to them. Any input...
I looked it up and this is what it said: " RemiStart® rebates are determined by medication cost only. Rebate amounts are not determined by costs associated with administration of the IV infusion."...
Red_34. What is the Remi-Start program? I get assistance for Remicade infusion from the mfg. Johnson and Johnson but was not aware they would help with the treatment center bills. Please provide...
I wanted to know if anyone else has had to deal with this situation. I currently have no insurance, have not had insurance since being diagnosed with UC. I receive my remicade through the...
I would highly recommend shirecares.com for Lialda assistance. The max amount you can make to get assistance is pretty high. I've been taking it for over a year now and there is no way I could afford...
VIEW IMAGE Thank you so very much AZYooper ! I would never have found this Candaian pharmacy without your help. I had not idea the name of the medicine changed. I am in the process of sending my...
Thank you notsosicklygirl. I did try this link and it only gives me $60 off the prescription. This would be great if I had health insurance but it only lowered the price to $500 a month. I even...
I am currently on Remicade an 8 week I.V. infusion medication to keep my u.c. in remission. You may want to research that. I have a wonderful doctor in the Cincinnati, OH area. I also take Lialda 4...
I am currently taking Canasa suppositories 1000 mg once a day. I have no insurance coverage. I was receiving assistance through the pharmaceutical company but it has expired. I've scoured the...
Zack, So sorry you are having a rough time. I have moderate to severe ulcerative colitis. For almost a year I have been receiving remicade i.v. infusions every 8 weeks. They have helped me...
Has anyone ever tried marshmallow root tea? My cousin recommended it for my flare up. I have been flaring for almost a month. My doctor asked me to try hydrocortisone enemas for a couple weeks to see...
I have been experiencing a pretty bad flare up the last two weeks. It started gradual, not making it to the bathroom in time about twice a day. Now it is full blown flare up. I only make it about 2...
Thank you AZYooper and Eva Lou. I will check out the website you recommended too. I appreciate your input....
Thank you everyone for your advice and suggestions. I am seriously considering the Mesalamine enemas. I think my doctor said she had some suppository samples set aside for me. I was reading about a...
ion medications. Which I thought NO WAY! She realized I wasn't going to do that reminded me to take Ulcetrol one hour before taking my Lialda. Has anyone tried this for their ulcerative colitis?...
Thank you everyone for your replies. I appreciate all the helpful advice. I am seriously considering cutting out dairy and going on the SCD diet full force. It would be worth the effort to feel...
Thank you so much notsosicklygirl for your speedy reply. I am taking samples of Lialda from my doctor and she said if the hydrocortisone enemas aren't working to call her next week. I am retaining...
Currently taking: Lialda 4 mg a day and Hydocortisone enemas twice day, along with probiotic, multi-vitamin and fish oil. ...