I've been using it for years without any problems at all....
I hope you feel better and find some relief. My body also doesn't like Pentasa. My GI at the time kept increasing the dose thinking my symptoms were just getting worse but it was the medication....
How are you doing on it? I started during my flare last summer and am doing pretty well. I was on Imuran for over two years and was in remission until last year. We are not considering surgery as...
Are you treating your internal hemmies? I just made a post about this but I was advised to try placing some KY on my fingertip and inserting a couple of times a day and using epsom salt sitz baths...
I was having a real problem with hemmies during my flare last summer. My GI told me to put some KY on my finger and insert a couple of times a day. He had a reason for using KY and not petroleum...
I would love to send a card even if it is an ecard. It is important she know that people care for her and are thinking about her....
I was on it for about 3 years and it worked great. Had a pretty bad flare this summer and started on an trial drug that is infused once a month. They did stop the Imuran and all I am taking is the...
I had a friend who had a pretty severe bout with pancreatitis last year. It took him a couple of months but he did recover. I hope she starts to feel a lot better very soon. She has certainly been...
I am so sorry to hear about this. We will be praying for you....
Can you give us an update? I have been thinking about your niece....
It was about 2-3 months before it kicked in if I remember correctly. I was in remission on Imuran for about 2.5-3 years....
Aunt Betty, we will be praying for your niece. UC is difficult for people that are older. I can't imagine what this is like for a 15 year old. Our hearts are with your niece and your family....
It put me in remission for about 2.5 years without side affects....
While I agree there is a connection between UC and diet (at least what causes flares), I don't know if we will find a common link. My personal experience and that of most I have talked with seems to...
JSE, I am so sorry you are feeling as bad as you are. I have been there and went through a similar flare this summer. I think a clear liquid diet and actually a two day fast started me feeling a bit...
You know you have UC when... you squeeze your cheeks more times every day before breakfast than Jillian Michaels does in a "Great Buns" video. All of your family buys stock in Kimberly-Clark due to...
I can eat it without problems when I am in remission. You may want to try it in very small doses then gradually increase after you know it isn't going to cause you problems. That is how I test to see...
Thanks all! I am definitely going to be drinking plenty of water . I was reading up on some natural diuretics which I will eat when I need a snack such as cucumber pieces. I have to be careful though...
Have any of you found a good way to expedite getting rid of the bloating and weight gain associated with pred? I have gained about 18-20 lbs after my recent round of pred. I have finished my taper...
Fantastic! Congratulations. One step at a time. Good for you!...
I have similar symtoms. Try drinking plenty of water (and I mean drink at least 8 oz an hour) and applying moist hot packs to your head. Mine are usually located on the back side of my head almost at...
I am getting ready to do the same trial and have been told they want to be having some symptoms. They wanted me below 30mg pred before they would start. I have tapered completely off and am feeling...
Don't take this the wrong way (maybe there is only one way to take it) but your ex-boyfriend sounds like a dirtbag and you are better off without him. I wouldn't let a friend stay four days in the...
I haven't really cried - I've come awful close - but I have gotten really depressed over it. Flare ups are very depressing and there are times when you wonder if it isn't worth it just to go ahead...
I do miss it! My wife understands but people at work really don't. They don't understand when we are traveling and I really don't want to take the 5:30 or 6 a.m. shuttle to get to the airport. They...
Yes, Kazbern, and sorry for not including that part. When we discussed it he was indeed talking about an x-ray study and not an MRI....
I experience the joint pain but it is when I am on prednisone. After I mow grass or walk for 15 mins or so my knees feel like someone has beaten them with hammers. If I really try to exercise my hips...
My GI was talking about needing to do a barium swallow upper GI, small intestine study so yes I have heard of it. We have not done this yet. I think I read sometime back that barium enemas are...
You're correct, Tournevice. I usually go 3-4 times in the morning when I am in what I call remission. When I am flaring it is usually every 15-30 mins for the first three hours I am awake. The meds...
I have dealt with this from both sides as well. My experience - and I am definately qualifying my comments as being based on my experience only - is that being up front and honest is the best thing...
quincy said... If your doctor says they don't deal with the entire colon (it's a BS line), they're not supposed to nor have any expectations to do so. UC's "hotspot" is the rectum...my opinion is...
I agree with the previous post in that there is no way I could only leave myself 45 minutes. On a normal workday I have to give myself at least two hours and if I am traveling I need three. The...
My hair started greying and I definitely started looking older when I was diagnosed. I am 43 and look 53. There probably isn't a direct connection with UC but I believe feeling down for so long,...
I take Imuran and it is the only drug that has ever put me into remission. I am currently having a flare but during the last ten years I have never felt as good as when I did after the Imuran kicked...
I am just now going through the paperwork and will be starting this trial in July. We think this may be the last shot before surgery may be indicated so I am hoping it helps. I obviously don't have...
No advice just want to say best of luck and we will be praying for you. Please keep us posted on how you are doing....
I had intolerances to both Pentasa and Asacol which my doc absolutely didn't believe. I know my body though and know exactly how I felt when taking them. After researching a bit I have found it isn't...
Thank you. Well, since my appt yesterday I have had what I would say moderately bad time. The cream, as predicted, has done nothing and my somewhat formed stools are quickly becoming just bloody...
summerstorm said... I don't have a jpouch and wasnt listed in somedudes post, but I do have a permanent ileo, the bag! I just want to say don't let the thought of ending up with a bag scare you away...
Thanks for the replies. I am going to try probiotics I just haven't yet because of being a little nervous about starting during a flare. I did see my GI this morning. Apparently, my insurance won't...
So I am having a current flare and wondering where to go from here. I have been diagnosed with UC for about 10 years. The last 2.5-3 years I have been on Imuran and been in remission. Really that is...
I am seriously considering writing my congressional representatives and encouraging them to oppose the FDA's position referenced in the above report. I am getting seriously close to surgery and the...
Sorry for what you are going through. I know exactly how you feel. I hope you feel better real soon!...
I tolerate it just fine and can even eat it during flares. It doesn't affect me one way or the other. So, for me at least, I wouldn't say it is good or bad for UC. I like it and I it doesn't affect...
Either with the GI clinic or the surgical department? We may be going there for a second opinion. Any comments are appreciated. I have been told the CR surgical dept is doing some pretty neat stuff....
Thanks for the replies. I thought about doing it mid-day but just no way to do it with my work schedule. I do have some sick time but am going to have to save it because it looks like the surgical...
Red_34 - I noticed your sig says unable to tolerate all mesalamines yet you are taking Colazal? Isn't Colazal a 5ASA? I am just wondering because I would like to find (if they exist) an...
My doc has ordered the steroid enemas for me to do twice a day. I already have the Rowasa enemas which I am trying to do at night - without a lot of success retaining them for very long. Tips on...
It seems the most common are the Renew Life products and the VSL#3 in both the OTC and prescription doses. I had a previous post with questions about the VSL#3 products and I appreciate those...
Imuran is what induced my first remission about 3 years ago. It was a miracle drug for me and I think is the only thing that kept me from going ahead with surgery at the time. I am currently having a...