Hi, So. I had my colon removed in Feb 2013. Rectum removed Aug 2015 (Ken Doll butt surgery). I never had any problems with blockages unless I got really stupid. Like, eating a huge salad and a big...
I realize this post is quite old but thought I'd chime in. I had my colon removed in Feb 2013. Around Dec 2014/Jan 2015 I started noticing a million little gold flakes in the toilet after I'd pee....
Hi everyone. In the past I have taken upwards of 10 pills per day of VSL#3. Initially I had some cramping but it subsided. I have been off the VSL for a while now and decided to start it up again....
Been a while since I last updated. In short things have sort of leveled out I'd say. No real huge improvements from where I was at a month ago. Still using the sfRowasa every night. I also started...
Thanks for the positive vibes :) I actually ordered some pysillum seed powder (per the advice you gave in another thread). I haven't it yet. Maybe this weekend (in case it screws me up I like to...
So, things have continued pretty much the same as my posts above. And then this morning I definitely passed 2 solid stools! Yippie! Haha, they came at the end of a lot of mush/semi-formed stools. The...
The big-D is common with Virgin Coconut Oil. Even for people without IBD. You can build up a tolerance to it (My limit when starting is 1 tablespoon before the big D hits). Or you can switch to a...
Good point!...
Just a little update/question. Things are still looking pretty good! Nothing worse or better then when I've reported so far. Into my 3rd week now on the SfRowasa. I have seen TINY little spots of...
Did you take a look at the link I posted? Again. Science doesn't stop. The process doesn't stop. And that is why the old view of fat = sick/dead is being disputed (with current evidence to support...
People dispute it because it's clear the the studies that have been conducted in the past were poorly set up (for different reasons). The science was "bad" you could say. Check the link I posted...
no way man. I don't think those grains/starch/sugar cause diseases. It's the preservatives, additives that do that.[/quote] Preservatives and additives are no good for anyone. But I'm not sure what...
The reason you aren't gaining weight eating paleo is because fat doesn't make you fat (You mentioned fatty meats). Neither does protein. You could eat all you want and struggle to gain weight. I've...
Thank you everyone!...
Update - I have been having stools that are DAMN close to being normal. As I've said above I've seen almost nothing but flat, spaghetti, mushy nastiness for over 2 years. My doctor had mentioned that...
Just an update. This morning I didn't have the waterfall that I've had in previous days since starting the Rowasa. Normal gross consistency that I've explained above came out. Then I heard a couple...
I never had diarrhea and still don't. My symptoms for the first 2 years were mucus, blood and pain. Stool's were completely normal. Not narrow at all. Huge log's....then I unknowingly misused my...
You'll never look at peanut butter the same :) Thank you for the encouragement. I've improved in the past 2 years but O MY GOD it's been such small increments....
Gotcha. I've been on the max dose of 4 pills per day since June 2010....
Yea I was thinking 3 and after a month I'd let the doc know if I thought it was helping to see what he says. Orrr....I'll just go to the doc and ask before I try it :) Just left sided. I don't blame...
Yea, I got a little carried away. Venting a bit I suppose :) Thank you for sharing! Same as I said with Quincy. It's encouraging!...
Thank you very much for sharing! It's encouraging to stick with what I'am doing! I ordered some psyllium seed powered to add to my arsenal. See how that goes. I'm also considering lowering the...
Thank you Quincy/Sherbear for the responses! I'll respond tomorrow. But one quesiton...when you started the Rowasa's did your symptoms get kinda of wacky for a while? I actually felt good today...
Im' not sure if this is allowed so if its not feel free to delete (Mod's). I have about a 3 months supply of Generic Rowasa enemas. I had to switch to the SFRowasa version. The pharmacy can't take...
Thanks, that's the site that Amazon directs to. I think I'm going to give it a shot. To be clear. When you say it's firmed up your stool. You mean made it look more like log's instead of soft, mushy...
Can anyone recommend a good brand/place to purchase the seed powder?...
Don't mean to hijack the thread. But as far as burning fires you are completely right. It's one of those things that people just assume is OK. And they get emotional about it quickly! The evidence...
Fruitgrl - Awesome! Gives me hope. DBwithUC - Maybe with more time the rest of your colon will heal up. My doc always stresses this...patience. Mindoverbutter - That's great news! Nososicklygirl -...
There is very solid evidence that shows the benefits of smoking cigs in relation to UC. It's a combo of the carbon monoxide, nictoine and cyanide (at least at this point thats what it seems like)....
Yea I forgot to mention that :) I'm not on SCD (I eat plantains). But rice never seemed to bother me....
Just curious to see how many people are in remission (verified with a C-scope) with just 5asa's....
So...to continue my story. Summer 2010 I had been off the Prednisone since late June. Only taking Lialda (4 pills a day) and Canasa (2 per day). The bleeding had stopped completely. But the...
Yea, I'm impressed you made it all the way through! My current doc is the one who HAS faith in 5asa. His opinion is that people just don't give them long enough to start working. They want a magic...
Gotcha. Have you been in complete remission in the past from just 5asa? Are you now? I've had stool testing done 3 times. When I was first diagnosed in Jan 2008. Again in December 2008. And in late...
I've taken that in the past. Seems like a good company/product. However they use maltodextrin in just about all their products. Which may be a problem if you are doing the SCD diet. Also they do not...
Hi Quincy, yep. You may remember my postings last week. I take the max dose of Lialda (4 pills a day). My inflammation is left sided but seems to be most concentrated in the rectum. Fiber...
I wouldn't call it diarrhea but almost every morning since starting Rowasa a little over a week ago I'll pass what's basically watery poo. I dont' have any urge to go to the bathroom. No...
Regular Whey Protein has lactose in it. That could be causing people's problems. I'm very sensitive to Lactose. But I can handle Whey Protein ISOLATE just fine. Which should be lactose free. I've...
Thanks italo!...
Ah! Duh...yes that's what I was diagnosed with (Migraine associated Vertigo). Thanks for the link. I'll check it out....
What is MAV? Singulair is an allergy med? No problems with allergies thankfully. I ruled out allergies/sinus problems as the cause of my vertigo by being put on allergy meds and nasal steroids once...
I intend to! If I'm still having the vertigo/headaches by mid next week I'm going to ask for the sfRowasa. I don't take any meds for migraines. Avoiding certain foods has eliminated them for me...
Thank you for the responses! Does anyone know if migraines have been associated with the sulfites in Rowasa? I get them from dairy and chocolate (which I strictly avoid). Started using the Rowasa 3...
I know the max oral dose is 4.8g. But I havent' heard of a max rectal dose. I take 4.8g of Lialda. And I've added 4g of Rowasa nightly. I also want to use a 1g Canasa during the day until things get...
Hello. I was wondering if anyone knows what the total max dose of 5asa is using both oral and rectal forms? I tried searching but couldn't find the answer. Thank you!...
Just came across this study - "There is overwhelming epidemiological evidence that smoking protects against ulcerative colitis" http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2014383/...
How does that study support nicotine use("might improve its course") let alone cigarette smoking? :skull:[/quote] The evidence from which he based his conclusion on was from numerous studies done...
I had a follow up appt with my Gastro doc last week and I brought with me all the documents I've posted here. He knew of Dr. Hanauer and all of the smoking related papers I brought. He got a laugh...
No worries. Check out this post and be sure to read the comments as well. Another one of his patients chimes in username Susan O'Connor -...
Would you mind sharing who your Dr. is? I don't see any options for private messaging. I'm just curious if it's Dr. Hanauer in Chicago....