I did well on Lialda a few yrs ago, but changed to Apriso due to price. Rechecked it this week and it's crazy expensive, even higher than the Apriso. But they are both mesalamines, and I'm just...
I just got off the phone with Express scripts myself. Researching other options since Apriso is now so high. Anyone taking the generic version of Colazal? Looks like that may be my best option. I've...
I just found this thread, hadn't been on the forum for about a yr. I can confirm that Apriso, another Salix product, has also shot up in price!! I went to my GI today to talk about my options. He...
Today my hairdresser found a small bald spot, or alopecia, on the back of my head. It is well covered, for now at least. It is about thumbprint size. Has anyone else experienced this? Is it related...
I know too well. I took Lialda for about three yrs, paying only $10 mo with the discount card. This yr, my insurance company discontinued the copay and the Lialda skyrocketed to $775, or $675 with...
Yes, think I must have done it too soon. Thanks for all your encouragement!...
Yes, as I said in my 9am post, this last week I had started alternating 3 and 4 Lialda per day to try weaning back to 3, which was my usual dose for a couple yrs until it was increased due to flare...
I had been feeling ok, though wouldn't say things were always perfectly formed, before I started the spin/SF diet. Then they became loosely formed. I was just really hoping to get off all these meds....
Can you clarify on the amounts in my last post? Is a whole pkg of frozen spinach right, or does it need to be more? A frozen pkg is 10 or 11 oz, but appears to be about 2 cups when cooked. I don't...
Kiss520-I've increased my spinach intake and saw blood this morning, the first since august. Frozen spinach seems to come in 10 or 11 oz pkgs. So do you eat a whole pkg at a time, or even more than...
Will try it...thanks!...
1000mcg...
Sherry - Hadn't linked the two, but had other issues with the cortenemas. I haven't used them much for the last month or two. Faith - thought biotin was supposed to be for hair and nails, is there...
I take multiple supplements but not a multi-vitamin....
Whew, never thought I wasn't eating enough, but I'll try increasing. Thanks!...
No, they have never been thin. They've been getting more brittle over the last few yrs but seem worse over the last few months....
Two tbsp of sunbutter. Harder to measure the spinach intake, usually either a large salad or approx 5 oz cooked. Both daily....
No, none of the above. Other than sunbutter and spinach, my diet hasn't really changed....
Does UC, or possibly the meds, affect your nails? My nails are so brittle and break, split or snag so easily anymore. I keep them fairly short. Or maybe it's just the effects of aging in general. I...
I wasn't flaring when I started, at least no blood or mucous, but stools still quite loose after about 6 wks. Wondering if I'm eating too much sunbutter and spinach...??? Should I try cutting back...
Thanks!...
Can you tell me how to find the old posts by the guy who discovered this diet? Thanks....
I started on 3 Lialda a day a few yrs ago. Last yr I had great results on my colonoscopy and my dr said I could cut back to two. I did, and then flared a few months later after vacation, which always...
I've been doing this diet about three weeks now, though one week was on vacation so not as consistent with the spinach that week. I'm feeling pretty good. Have cut down on cortenemas and rowasa,...
I found the sunbutter in the health food section of Kroger, rather than the peanut butter aisle. Never knew it existed but found it the first time I looked for it. Hope this helps....
I think it's worth a shot, it sure sounds more doable than some of these other diets. I'm on vacation and bought sunflower seeds and sun butter before I left and tonight ordered a spinach quesadilla...
Interested in trying the sunflower seeds and sunbutter but not sure I could make myself eat cooked spinach on a daily basis. What about spinach salad? Also, is it hard to find the sunbutter? I'm...
Please post when you start up your blog, I wasn't able to find anything from your link. Also, what UC blogs do others read? I know of a couple about surgeries, but don't know of any active no...
Very familiar with those noises. People think you must be starving or have horrible gas, when neither is the case. It can be very loud and theres no stopping it. I say my colon is angry. When in...
Sara14- I had the exact reaction a few weeks ago, water retention, and posted about it then. Gained 10 lbs in one week. Called the dr on a Fri but didn't hear back until Monday. In desperation, I...
I took Accutane in my 20s but wasn't diagnosed with UC until age 44. That seems too long to be linked, but who knows? I do recall one dr visit I made for persistent diarrhea in my late 20s. He...
I started a new probiotic recently and have read that it can cause bloating, etc the first few days. I'm on day 3 and so far seems better. Fingers crossed, evenings have been the worst time of day....
Yes, as far as I know. My dr gave me info on it when he first prescribed Lialda. Google "Lialda pharmacy savings card" and it should lead you to more info. With my insurance I'm required to use Medco...
Sherbear46-have you looked into the discount Rx card Lialda has? I've used for over 2 yrs now (have to renew each calendar yr). Normal cost is $100, I pay $10!! (and thats 120 tabs) I can't use it...
4 years, diagnosed at age 44. Seems most diagnosed at younger age, guess I should be thankful I wasn't!...
Welcome, just sorry you had to join this club. Been at it 4 yrs now. I've just started coming back to this forum recently since having more issues. Good luck on your journey!...
Or a conversation stopper!!!...
I have an upcoming 2-day seminar and am dreading the noise from my gut. Others think I must be starving, don't understand that it's not just a growling stomach from hunger. The first time I mentioned...
Citrucel powder, aka my evening orange cocktail!...
I started my most recent flare with stomach pains. I really didn't think it was UC related at first. Took pesto bismol but didn't help. Even went to my IM because my GI wasn't available. She ended up...
Guess I'll try that today, does seem counterintuitive though. I guess at this point I should be happy that it seems to be water retention rather than true body wt gain due to overeating, hopefully...
I've only used it 6 nights! Not sure how to prevent water retention other than cutting salt, which I already am doing. Thanks for the reply!...
I havent been on here in quite some time. Dxd in Aug 08. In my worst flare yet, started differently, thought it was just a stomach virus. First treated with flagyl and levaquin. Im now on Lialda x 4,...
subdued-- I noticed in one post a warning of taking the curacumin if you take anti-depressants, but then I noticed Lexapro listed on your signature. Do you take both? If so, is there a problem? Did...
I was diagnosed with UP with a colonoscopy in Aug 08. Went into remission easily with Canasa and cortenema. Then in Oct 09 I went into a flare. Tried Canasa for a while but did nothing. Went to...
I had noticeable hair loss last summer when I was in remission and not taking any meds regularly. I started taking Bcomplex supplement and it seems to help. I'm losing what I would consider the...
Oops, didn't notice it was Dec 07! (need to look around and figure out how to do the signature) Good to know what all can be affected by this diagnosis. My GI dr hasn't discussed anything other than...
Yes, please let us know what it is. Mine isn't as bad now, but it's not quite gone either. Looking at your info...what eye symptoms do you have? Congrats on "heading into remission"! I'm hoping I'm...
No, I haven't had any blood work done recently but maybe I should....