I have been med-free for about 2 months due to my own choice. Lower class of drugs made me worse, I am allergic to Imuran, and bioligics cause migraines. My doc wants me on Uceris but it was...
I seem to have been the exception but also got HORRIBLE headaches with Remicade. I to would never get headaches prior to being on Remicade. I saw a neurologist to make certain nothing was happening...
Imuran worked for me but caused an allergic reaction in the lungs. Currently on Humira which seems to be working but causes HORRIBLE headaches every week or two. I get a second opinion on 4/29...
Any recommendations for safe allergy medication? Specifically I am looking to rid of sinus pressure/headaches? I have been using a saline nasal spray a couple times a day but starting to feel a...
Do I need a prescription for LDN? Where do I purchase Slippery Elm? I am leaning towards switching docs anyway because I don't feel I am getting the support. thanks for the quick response. BR...
Good morning (or afternoon). I will try to keep this post short but really looking for advice. I was DX'd with Left Sided UC 2/14/12. At that time I was in the hospital with 20+ (attemped) bloody BMs...
I could not breath: ) I had an allergic reaction in the lungs. Doctors kept trying to tell me it was pneumonia but I knew differently. No other signs. What is going on?...
I told my wife when we got married I would do anything to not get her a Valentine's Day gift: )...
that made me chuckle:)...
I was running three high profile and important projects with nearing due dates. Actually it was 51 weeks ago today I ended up in the hospital and DX on Valentine's day. I knew I was under stress but...
Unfortunately I don't really have words of wisdom. I was told yesterday that my liver enzymes are slightly elevated so I could potentially have the same problem (or worse). I started Humira about 8...
Tomorrow will be my fourth dose of Humira. The first three I got a horrible headache the day after. I had a two real bad headaches over the past week so hoping that is just a fluke. However, I...
Good morning. Remicade gave me daily headaches with a sporadic nasty one. I went and saw a Neurologist but nothing came up. She perscribed Fiorecet and Neurontin but neither helped at all. After one...
Friday was my third dose of Humira. So far I have yet to see any improvement. I do get a killer headache day after my injection so hoping we can find something to manage that....
I mumble so it comes out "Twente thirtin"...
I luckily use the pen. As much as I hate needles I just cannot imagine a shot....
I was taking my second loading dose of Humira on Friday. The first of two injections backfired (my wife claims I counted too fast...no way: ) The problem is Humira seems to give me a HORRIBLE...
I was on Remicade until the headaches got the best of me (and wasn't working effectively). I just had my loading does of Humira last Friday. I am still flaring mildly in that i have blood/mucus,...
Good morning all. I thought this morning might be good to begin an inspirational topic. Basically I was driving into work this morning feelingl horrible...again. I was only DX in Feb. of this year...
I doubt you have what I had...as a warning. Imuran caused an allergic reaction in my lungs. My only symptom was shortness of breath. They kept trying to diagnose me with pneumonia. It got worse as I...
Just the mainstream meds. I ask my GI if there are any alternatives I should try. I am hesitant about going down a long path to be honest....
I complain but I really feel I have it better than 99% of the people around (hell I would say 100% but that might offend someone: ). My work is very understanding and I just hit my 10 year...
I was only dx with UC Feb of this year. Four separate trips to the hospital, dozens of tests, and most medications later, I think surgery is my only option. I had my fourth Remicade infusion last...
I had my fourth Remicade treatment Friday. Saturday went really well but then I had blood Sunday morning. Today I have one of those brutal headaches. I am not sure at what point I throw my hands up...
Thanks for the reply. Yes I am premedicated with benedryl, tylenol and a steroid....
I have been off Pred roughly eight weeks. So far it has been the only thing to put me in remission (besides Imuran which caused an allerigic reaction in my lungs)....
Good morning everyone. I have had three remicade infusions and my next one is scheduled this Friday. My BMs had been fine except for mucus (but I can live with that). The only other side effects were...
I have my third treatment 9/17. I just tapered of pred so its tough to tell whether Remicade has worked or not. I do know I feel wiped out and have a headache all the time. Deep down I think I am...
The noises are the most embarrassing thing for me (I don't have the D and urgency most have). I am in meetings a lot and dread when my stomach starts singing. I was in a meeting once with our Chief...
I drink a lot of water throughout the day. However last Wednesday and Thursday I just felt horrible; nautious, light headed, sleepy. I improved dramatacially about an hour after I chugged a Gatorade....
I might have the wrong philosophy but I pretty much eat/drink what my body tells me I can. I just started drinking coffee again yesterday after 6 months without. Same thing with alcohol; if it...
Thanks very much. I put a call into my GI. My hunch is nothing is going on and this is all normal. However my short experience with this disease is when something doesn't feel right there is a decent...
I had my first Remicade treatment last Friday (8/3). There were no issues and was actually doing great; energy level not bad, no sign of reaction. Unfortunately starting yesterday I have taken a...
I am similar (currently going on). I was DX this year and am either fighting my second flare or my first one never ended. I have swelling, which I can feel, that does not allow normal bowel...
Thank you very much for the replies!!! Have a great day...
I am getting scheduled for Remicade here shortly. I know it is roughly 3 hour procedure. Question is should I plan on having ill effects the following day and be cautious going into work? I know its...
I just spent four days in the hospital for a reaction to Imuran. As I was tapering off Pred and had been on Imuran for a couple months, I started getting shortness of breath (only symptom). Was...
I am kinda at a loss right now. The GI wanted me to go on Remicade and while I am sure it works for some people, I just do not want to go down that route. I have only been diagnosed with UC since...
I was diagnosed with UC back on 2/14 this year. I initially was sent home from the hospital on canasa, llialda and something else. After a week of it doing no help with my flare, i was back in the...
Thanks for the responses. I did try a couple drugs (mesaline i think) when i was released from hospital with initial diagnosis mid-February. However after about 10 days I was back in the hospital...
I finally ended up in the ER last Wednesday when I was out of breath sitting on the couch. The doctors continued to feel it was pneumonia because my lung X-Ray showed "foggyness" at the bottom of...
How about....a good excuse when I don't want to go to the in-laws?...
I had a chest x-ray just today and they said i had a lot of gas in my stomach; expect to burp a lot. Well hours later nothing and my (usually loud) stomach has been quiet. Our bodies are strange.......
DX with UC on Valentine's day this year by colonoscopy at hospital. From Feb 12 to March 6 i was in the hospital 16 total days off and on while they worked out my med mix. Finally sent home on 60 mg...
I try to meditate, do yoga, listen to different types of music, get outside for fresh air, or anything else to change my outlook. Unfortunately I have mornings like this morning where I am ticked off...
Thanks for the responses. I have yet to try meditation music but will download Christian and give it a shot. I actually had my doctor prescribe 10 Ambien pills hoping to only use when needed (but not...
I was hopicg for some suggestions on sleep. I am newly diagnosed and currently on 50mg Prednisone (tapering down today to 40) and Imuran.The meds have helped greatly as I have one (fairly) normal BM...
I was going to post a new topic but thought I would piggy back here. I was diagnosed on 2/14 and after 3 separate trips to the hospital I have improved on the Predisone. I came home on 3/9 on 60 mg...