I was on 40mgs of pred and I tapered in exactly 2 months. I read too many stories of people growing dependent on it so I wanted to get on and off asap. I went from 40 to 30, 20, 15, 10, 5, 0. I'm...
I've had 2 really horrible flares and am now enjoying a great remission. When I was first diagnosed I had been suffering, and getting progressively worse, for 7 months. After 3 days on Lialda, I hit...
I always had that happen to me when I was flaring. Now that I'm in remission, I can finish all my meals and grocery shopping with no problems. I might feel the urge sometimes, but I can hold it if I...
I have been on lialda for over 5 years and love it. I dropped down to 2/day a few times, but always have to go back up 4. Maybe you could try alternating between taking 2 and 3 a day....
I started taking Kyolic garlic capsules with Candida Cleanse a month ago and have been doing so well with that I dropped my other supplements except probiotics. I will still take Vitamin D and l...
60 mgs seems like a really high dose to start off with. I'm no expert since I've only been on pred once. My symptoms were the same as yours. I started at 40 mgs and tapered over 2 months. I got off...
Good for him! I can't imagine having that kind of job....
It took 3 weeks at 40 mgs for me to see enough improvement to feel comfortable tapering. I didn't start the taper until blood was gone. I was on pred for 2 months total. And for chrissake use enemas!...
Usually 2 times a day. Once in the morning and again around 3pm. If I have a big dinner I might go a third time and sometimes I only go once. No blood or mucous. The first one is mostly formed, and...
Definitely keep up with the enemas nightly. I used Hydrocortisone enemas on my taper days for about 2 days. Then it was back to the Rowasas. I also used Canasa after I finished my morning BMs. Is the...
No doubt it is a very dangerous drug. BUT it got me out of a year long flare, and I was easily able to taper from 40mgs to 0 after 2 months. I had moon face for a month and lost some hair, but I'm...
Dr. Stanley Stein is in Sugar Land. He is a jerk, but a good doctor. It was easy to make appointments with him too. I am seeing Dr. Abraham right now. She is at Baylor College of Medicine downtown....
Hi seasons, The day I would taper down I always noticed a bit more urgency and not so formed stools. I was using mesalamine enemas, but on those taper days I would use the hydrocort enemas for a...
I did a search on wikipedia and 40% of ashken@zi news can be traced back to just 4 women. So yeah lots of inbreeding! I never realized it was that bad. I had to have special genetics testing when I...
It all makes sense in hindsight, right? I had zero idea about IBD, but if I did I sure as he'll wouldn't have taken all those antibiotics at once! I moved to Taiwan a year before diagnosis. The...
Isn't it amazing how happy a big ol' box of enemas can make us? :)...
I smoked pot almost everyday my freshman year of college in 1999 and smoked cigarettes very occasionally until 2002. Worked in a smoky pub from 2001-2005. My fathers side are Ashkenazi Jews from...
LOL Such a funny story!...
From when I was a vegetarian, "Every vegetarian I know has digestive issues. It's just not a healthy diet." -My obese mother-in-law My sister was telling me about how her 2 girls (11 and 13) were...
If you're flaring really badly, I would definitely wear depends. I remember a story about a guy getting arrested because he was trying to go to the bathroom while the plane was taking off. They never...
[quote="tournevice"] and it's not like you can fart on a plane to release the pressure. Haha Thats what I used to think. Now I let rip all the time! I get really crampy otherwise. Granted, I'm...
Good luck and happy healing!...
I have Aetna, and originally they said they wouldn't cover generic mesalamine. I called them and my doctor's nurse called and told them i NEEDED it so they cover it now....
I was on 2 rounds of antibiotics when I had my first UC symptoms. Clindesse was one and I can't remember the name of the other one. It was for a sore throat, not even strep. I had NO idea about good...
Thank you, I will pick some of that up! I'm thinking it has to be the enemas so I'm going to discontinue them again. I saw some blood after I had a couple glasses of red wine at a wedding so I...
I shed a ton of hair when I was tapering prednisone about 3 months ago. It didn't bother me that much because I knew it was from the meds. It grew back pretty fast and I forgot all about it. But, for...
I was breastfed for 13 months. I nursed my first son until he self weaned at 15 months and my second until he was 10.5 months. I had to stop because I felt prednisone was affecting him. It was really...
When all the toilets in your house have those soft padded seat covers. Might as well make yourself comfy....
When I'm in remission I don't have accidents. I get really crampy, but I can hold it 20-30 minutes if I need to. I don't have full blown accidents even when I'm flaring either. I just shart at...
You must be so proud. Congratulations!...
For my last prep, I drank a bottle of mag citrate. Then I could only get through about 1/8 of the nu lightley jug. I physically couldn't handle anyone. I was throwing up with each sip. I went to the...
Ok I've got another one! You know you have UC when you've wished death upon someone because they took a long time washing their hands in a public restroom and you just want to poop in private!...
Bananagirl, In regards to your question about which meat to try first, I would start with fish and go from there. I was a vegetarian (mostly vegan though) for almost 3 years before I started adding...
When you've seriously considered opening a drive-thru restroom chain so you don't have to lug 2 kids out of the car and into strollers every time you need to go!...
If I'm flaring I don't touch coffee or alcohol. Both give me problems. However, when I'm healthy I enjoy half a cup of coffee with toast on the weekends and I might have a beer or two with dinner. I...
I put off taking pred for 8 months while I tried to get out of a flare on my own. I had heard so many horror stories about it, I suffered physically as well as mentally for way longer than I should...
I die laughing every time I hear the theme song. Its a grown man singing Toot and Puddle yeaaaah! How did no one say hmmm that might not be a good name?...
Thats good to know. If I flare again, Imuran is next on my list. How long did it take until you started seeing improvements?...
My first remission was amazing. I didn't even think about having UC. I ate what I wanted and drank alcohol. When I was pregnant I had ice cream every single day! I had a flare after giving birth and...
Does anyone else find this show title rather unfortunate? My son watches it on Nick jr. I turned to my husband when it came on and said "that sounds like my worst nightmare!" Lol the life of an...
Expect your levels to go up in 3-6 months. In the meantime, eat iron rich foods or iron fortified foods you can tolerate. You could even cook with a cast iron skillet. Oh and take your iron tablet...
Could you maybe go in for a flexible sigmoidoscopy in the meantime? You'll have the results immediately so your dr can at least prescribe something right away....
I like to get to the airport early and walk around. If I'm gonna go, walking helps move things along. I also eat very lightly the day before and day of the flight. The lines for the bathrooms tend to...
Is it possible for you to try the enemas in the morning? Or maybe a canasa suppository midday to help calm the inflammation then using the rowasa at night....
As far as the pregnancies went, I had completely normal ones. Babies were 8.1 lbs and 8.8 lbs. I got anemic at the end, but rectified that with iron pills. I flared afterwards, but got this last one...
Congrats on your pregnancy. I've had 2 kids since being diagnosed with UC and my experiences were different each time. With my first, I didn't flare until he was 8 months. It wasn't a terrible flare,...
I've had the same panic attack over watermelon!...
When I was tapering, I always noticed a tiny relapse for a day or two when I would drop down. I used the hydrocort enemas for those days, then changed to generic rowasa for the rest of the week. I...
4.8g Lialda and generic rowasa as needed. I think I may lower my Lialda to 3.6 as I'm doing really well at the moment....
I was on 40mg of pred for 3 weeks before I saw any signs of improvement. So hang in there for another week at least. Have a backup plan though. Get your blood tests lined up so you can start 6mp...