I have been in remission for ~5 years on mesalamine (currently Pentasa). I almost never think about UC now and my bowel movements are, as far as I can tell, normal. I was diagnosed in 2012 with...
Sorry to hear that. I have been in remission for ~5 years and got my second Pfizer vaccine shot about two months ago, and didn't notice any side effects, including no changes in bowel activity. Not...
There are about a million different brands of mesalamine drugs (and I've taken like half of them honestly) and mostly they are interchangeable but some are designed to target different areas of the...
Thanks for the suggestion, I think I would need to return to the US to do that though, to sign up for Obamacare and see my doctor to get a new prescription. That's an option, but I'm hoping I can...
Does anyone have any experience with doing this with UC? I am on an extended world tour and would like to continue even after my stash of Pentasa runs out. I know it's a bit risky but I would like to...
I think 10 grams 3x per day of L-Glutamine has helped me. Boswellia Serrata + Turmeric combos have helped during flares....
Maybe half a year ago. Everything comes out normal except I have low (but only borderline low) platelet count. Doctor always says not to worry about it unless I have associated symptoms like easy...
I was diagnosed with pancolitis in 2012. Since then I really haven't had much digestive trouble (using Pentasa and a limited subset of SCD) but it still seems like something is wrong with me in...
I have had significant success with L-glutamine (30g per day). I've tried tumeric and boswellia too. Boswellia may have helped slightly, or it could have just been a coincidence, and I noticed no...
The goal is zero blood. That being said, they say proctitis doesn't increase your chance of colon cancer, and a GI isn't going to prescribe you any serious meds if all you have is a little proctitis....
\ This is the reason that comes to mind for me. Reading about having a pouch, it sounds like being in remission and having your colon is better than not having your colon. On the other hand, being...
I make a lot of soup. It's pretty easy to make a lot of. It takes me like an hour to prepare enough for a 12 qt stock pot, then it's on the stove for three or four hours, then I take the rack out of...
I had some bloodwork done and the white blood cell numbers are a little low. They're actually within range, but just barely, and it says the target range is defined as being from the 2.5th to the...
I'm glad your situation isn't as dire as the topic title made me fear :) Let us know how the knew enemas work....
Technically SCD "most of the time" isn't SCD because SCD by definition requires total commitment. The book says you have to never eat SCD-illegal foods, ever. That said, SCD "most of the time" might...
I'm a software engineer from Austin, Texas. It's a good job for someone with UC. Lots of sitting, and easy to work from home. There can be a lot of meetings, but usually they are short. Stress level...
No, most people around will tell you that diet is a factor, and many will tell you that it is a huge factor. I think diet helps some people more than others. It's helped me a lot. There are a lot of...
I saw great improvement on day 1 of the intro diet and strongly encourage people to do the intro diet and not just jump right into the full diet. I had already been on full SCD for a long time but...
@pmitra0123 I got NOW brand L-Glutamine from Amazon...
It's great! And here's how I think it happened. But disclaimers first. I'm probably posting this earlier than I should. I've only been in complete remission for about a week. For about three weeks...
Drug induced Lupus goes away when you stop taking the drug that caused it. But yes, Remicade does have some serious side effects. I don't know what the options are when it comes to fistulas, but in...
My grandfather on my dad's side had diverticulitis. Besides him my dad told me, "all the males in my family had GI problems, except me!" but I don't know anything more than that since his side of the...
I eat around 4000 calories per day on SCD and that maintains my weight. I just eat whenever I'm the slightest bit hungry. For high-calorie SCD foods that I eat a lot of: Avacadoes Meat Canned fish...
I can say from experience that eating massive quantities of peanut butter (around 1500 calories per day) did not keep me in remission xD But maybe it must be in pie form!...
No hard data on this but if antibiotics triggered your UC, which sounds likely, then it makes sense to use probiotics to try to restore healthy gut flora. UC seems to be caused by different triggers...
When prednisone put me in remission my stool went back to how it was pre-UC...
I don't get vaccines and I don't get sick much, either. I had the flu once like six or seven years ago and I was sick for a couple of weeks. So what? People have been getting sick since the dawn of...
"Visual snow is a transitory or persisting visual symptom where people see snow or television-like static in parts or the whole of their visual fields, especially against dark backgrounds" It's like...
(Colicky pain is pain that comes and goes in waves. It starts, gets worse, peaks, and then gets better and stays fine until the next wave) I've had left-sided UC pain but this colicky pain is new to...
1. Some people have constipation problems with UC (generally when the UC is not very high up in the colon, I believe) and some people here use Metamucil for that. I have not used it myself. 2. The...
I tried jarred spinach and sunflower seeds and it did not seem to help me. However I am open to trying again with fresh or frozen spinach and sun butter. All of the possibilities you have listed were...
Anyone have experience on this? I just made it for the first time. It tastes like I heard it should. It's kinda tangy. It has some lumps in it and isn't as smooth as store-bought plain yogurt though....
Doctors say a lot of things, many of them very premature! When was Stephen Hawking supposed to die again? One thing seems to be true in these cases: those who keep their hopes up improve, while...
My definition of a flare is symptoms that inconvenience my daily life. My definition of remission is no symptoms! Right now I have blood but no pain or urgency. So I wouldn't say I'm in a flare or in...
Guess I better stop making threats and crude jokes...
Just wanted to share. Unfortunately I have been having blood in my stool since April. But besides that no other symptoms and my life is not inconvenienced. When I stop eating SCD my symptoms go...
It would be nice to get a cure but I don't think it makes sense to "hold out" for a cure because that can easily become an excuse to not fight the condition yourself. I know some universities are...
I made this yesterday: http://paleomg.com/ginger-carrot-soup/ Very few ingredients and quite quick and tasted great....
I'm using Pentasa 4000mg/day. I had some pain and more blood than usual (been in a """"remission"""" rather than a remission for a while) after the medicine in the hospital. But things seem more...
They didn't ask, I was in shock so telling them didn't cross my mind unfortunately. I feel better now though after taking care of some flatulence :-)...
Congrats. Isn't that like the SAT on crack? Sounds wonderful. I'm playing around with the idea of applying to grad school but I'm not sure yet. Did you do anything special to try to ward off the...
Hey I'm 21 too! I know this sounds cheesy and cliched but when my UC gets me down I just remember how many gifts in life I've been given and remind myself that if I were offered another roll of the...
I was riding my bike today and was hit by a truck pulling onto a construction site. I blacked out for a second or two and the next thing I knew I was under the truck with its giant tire about a foot...
I made a topic last week about how I might be off Asacol for a few days since I needed to get a prescription here in Germany and didn't know how long that would take. Well a number of factors...
Just thought I'd throw in that I had some irritation in my crack for months. One day I had a brilliant idea: wipe in the other direction. It went away in a few days. And yay for thread necromancy....
Well first off, if you're just using Prednisone, your symptoms will probably come back after you've tapered off the prednisone. You need some sort of maintenance therapy. You need to find a GI doctor...
I was diagnosed last December and I was 20. Doing well now on Asacol, no operations....
I've been doing this diet for about a month, two handfuls of sunflower seeds per day and five or six heaping spoonfuls on spinach. I didn't like canned spinach, but I found this jarred stuff that's...
Did that doctor cite a source or is he just tooting his horn? If you want a starchy vegetable eat some squash, that's SCD legal. SCD doesn't cut out all starches....