Do you guys think if I bring a couple of research papers on the condition highlighting the potential causes, tell the GP how my IBD consultant says it's not UC related that I could pressure my GP...
I did eliminate a lot of different foods including gluten, sugar, dairy etc but nothing made a difference. And my condition is not caused by food intolerances although malabsorption/malnutrition can...
Do you think if I come in to the A&E and state that the skin condition popped up within the span of a few days recently (ie massage the truth) along with my lymph nodes swelling up, and that I can't...
BTW the condition is "acquired ichthyosis" and it covers my whole body. If you google it, you will see the potential causes are serious. Especially the things like leukemia as I've been on remicade...
The problem is it's a cutaneous/dermatological manifestation. So going to the A&E for what will seem like a "skin issue" seems over-the-top? Even though the skin issue is a marker for whatever...
I have worries about an acquired disease that developed shortly after use with UC medications (prednisone & imuran). The list of causes are all very serious and the condition itself is very rare. I...
I developed ichthyosis vulgaris (brown scales and extremely dry skin) all over my body....
Hi, Sorry to bring up a really old topic but I was reading through and saw one where you said that taking Lialda gave you skin complications. I think this may be the case for me to although I would...
Hey malaika, I graduated from University of Nottingham 2 years ago. Sorry I know this isn't relevant to this discussion but I was so surprised to see it mentioned. Small world!...
I've never gone to the doctor for my lymph nodes. They usually go away by themselves. I've never had a swollen lymph node in my neck though. It's accompanied by some jaw pain and a weird feeling on...
Ever since I had UC I've always had swollen lymph nodes, especially during a flare. They are almost always in the groin and armpits and take months to go away. Today I felt one in my neck and I've...
garylouisville: I never claimed it was a cure. I know I would feel much happier going to get this treatment when needed than I would getting biologics (I did do remicade but that failed for me) as it...
I think they must be something different, I found those links in 2 minutes so if the results are that good, I doubt someone would conclude the success rate is close to 0. And, truly no offense, but I...
Here are some links you might find enlightening: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2981852/ (Table 2 is especially informative)...
The clinical trial I was on had more than a 70% success rate in over almost 140 patients. Could you provide a link to where it says the success rate was close to zero? I'm genuinely curious to see it...
Hi Anthony G, have you tried White Cell Apheresis? I was the same as you; 23 and unable to treat my flare ups or get into a remission that lasts a couple months before flaring again. Then I went on...
Thanks, me too!...
Hey, so the weirdest thing happened today. I went to sleep at 5.30am and then went to work and didn't need to go to the toilet until 10pm in the evening. And it wasn't yellow like last time but brown...
I would but it's 4.34am here and I have work tomorrow. The wait alone would take hours. But if I get worse later today I will. If not I will just go the GP route....
I should probably mention I'm from England. So going to the A&E is free. Also, we generally get our test results back in 2-3 days. Sometimes quicker. But I agree I need a stool test. I will see how I...
I don't have a fever or a particularly bad/strong smell when using the bathroom. These two factors are making me question whether or not it is C-Diff......
Question for you guys: should I go to the A&E and get seen to ASAP or is it okay to wait a few days while the GP gets my sample and sends it off for testing? I've had these symptoms for about 4 weeks...
bananagirl - that sounds exactly like my symptoms. I think I will call my GP tomorrow and order a stool test. I just want to get better before my brother's wedding in a month :/...
No haven't been on antibiotics for almost 2 years. I was just getting out of a flare, had 2 weeks of remission where I went to the gym and then one day I just woke up with these symptoms. I thought...
Yes, I was going to say - my stool is yellow. And there's a lot of yellow. But there's also mucus. Is mucus a sign of C diff? I haven't noticed a particularly strong smell though......
I have the same diarrhea you describe, I've gone 6 times this past hour. I have stomach pain and if I move my stomach a certain way I have to rush off to the toilet asap. Imodium doesn't help either....
Hi, I've been scouring the boards reading through all the C Diff threads and I can't seem to find one that answers my question, which is: How do you differentiate between a flare up and a c diff...
Hi pb4, thanks for your input. IBS is an interesting theory. My bloating has gone away now though. Is it possible for IBS to develop overnight? I'm starting to think that I might have eaten something...
Mesalamine enemas, prednisone enemas, any liquid or foaming and suppositories. Even when I was getting an enema done before my colonoscopy, I could only hold it in for 2 seconds before I had to rush...
Ah I hope you feel better blksteeda! Sorry guys, I forgot to mention I cannot tolerate rectal meds (unfortunately). I wish I could because they sound like a god send :(...
I agree with the rectal inflammation as my colon should still be healing from the flare up so inflammation in the rectum will be the last to go. But I am certain that that is not what is causing...
I have been flaring for the past 15 months and for the last 2 weeks, things started to improve. I even went to the gym and was able to work out. However, 5 days ago I started feeling really bloated...
I received this treatment in the UK on a clinical trial. In just 8 sessions once a week of having my blood filtered (and no drugs pumped into me) I was brought out of a severe flare up and into full...
Thanks Cavalier9, I knew I couldn't be the only one to have my skin react to 6mp. I may ask my doctor to put me on azathioprine instead (I know it's converted to 6mp in the body but it might not meet...
I had remicade three years ago before it stopped working, and have also been on pred multiple times (although thankfully not in the last year and planning to keep it that way!). My dosage of 6mp is...
I've had 6mp for 3 years now and I still flare up once a year. 6mp has caused me to develop ichthyosis vulgaris (scaly skin disease) ever since I started taking it. That, in combination with the fact...
My time to shine! My dad's birthday is 8th of March (today) My brother's birthday is 9th of March My mother's birthday is 12th of March and my birthday is the 18th of March...
I'm from the UK and have flown to California for my grandfather's funeral. I was flaring up for a while and the news of his death made me feel even worse. So I made sure to stockpile enough 6MP from...
I will be going on holiday in July to America (first holiday in 12 years!) and have been looking at flight travel insurance to cover my pre-existing health condition (UC). Unfortunately it's...
Doing my dissertation on pilot incapacitation and I guess all the reading got me confused between EASA and FAA guidelines! Was in the Royal Air Force contingent at my high school for 3 years and they...
GuardBummer how are you able to be a pilot with UC? Both the EASA and FAA health guidelines both explicitly state that if you have Ulcerative Colitis then you are disqualified from obtaining Class 1,...
Thank you Heather!...
Currently in a mild flare, but after having my last 4 birthdays & Christmases tarnished with flare-ups and hospitalisations, I'm determined not to let UC steal this day away from me. I'm officially...
Thanks for sharing this with us! How many times do you find yourself opening your bowels? Most people who've had the surgery state around 7-8 times....
I'm also taking Psyllium Seed Powder; maybe there's some contraindication between the two? I had it on an empty stomach, could that be a factor I wonder?...
I made the plunge and bought some Black Cherry Concentrate. An hour after drinking it I got this pain in my stomach that didn't go away until after a BM. And there was blood in my BM after taking it...
For the last 3 years, I've flared during Summer which at my age (20) means during Exam Time unfortunately. For the last 2 years I've had to take my exams at August after coming out of hospital twice...
Does anybody know where to get this in the UK? I first looked at that link months ago and tried to order it but it costs $70+ to get it delivered to the UK. Being a student that's way out of my price...
The joint pain & bone pain is a common side effect of the pred; it leeches the calcium from your bones. Taking it for prolonged periods can lead to osteoporosis. I'm not on Imuran but I do take 6-MP...
@garylouisville thanks for the advice. Did you ever get classic allergy symptoms; runny nose, itchy eyes and painful sinuses? Because I have experienced those quite a bit, which is why your post...