Hi just an update. I've been in remission for 30 months since September 2016. In 2018 I got diagnosed with hypertension and take an ACE inhibitor . Also switched from lyrica (made fibromyalgia worse...
Thanks for that comprehensive explanation. I gave all these things a fair try. They worked for a while then quit. I no longer take dhea or wormwood. Progesterone cream does nothing now except make me...
A number of biopsies were done on the large bowel only. Just to be clear, the initial diagnosis was Ulcerative Colitis. Specifically pan-colitis. Biopsies were taken at the last colonoscopy, despite...
the pathology showed granulomas...
Hi just wanted to revisit this thread for an update. I am still in remission from colitis. My GI doc has confirmed by colonoscopy that I am in still in remission, yet I have cellular indications for...
Great to hear wormwood worked for you! I agree it should be used sparingly and think of it like a conventional medicine. For example we don't take painkillers every day, only as needed. Ditto...
I read about a controlled study where wormwood was used to maintain remission in Crohn's patients. It produced a positive result and I hypothesized that a UC patient may benefit too. Enter these...
Don't know. And as there is only one of me, and no biopsy samples were taken when I was sick, we shall never know. Ideally an identical control subject with the same genome and symptoms as me is put...
sorry for your woes. this was me 5 years ago. Tried just about everything. Prednisolone was my only friend along with 6MP. Gave up on the heavy meds. here is what stabilized me for the last four...
sorry for your woes. this was me 5 years ago. Tried just about everything. Prednisolone was my only friend along with 6MP. Gave up on the heavy stuff. here is what stabilized me for the last four...
sorry for your woes. this was me 5 years ago. Tried just about everything. Prednisolone was my only friend along with 6MP. Gave up on the heavy stuff. here is what stabilized me....
Update. Colitis is still in remission. Now off 6MP for four months straight. Wormwood tincture is powerful stuff so I only take three drops once a week. Fizzy water takes away some of the incredibly...
** Additional information update ** I have begun taking wormwood along with guarana since Friday 18th November. All I can say it I feel more human than ever. I mean ,I feel completely normal. No...
Two month update Progesterone is now having a strange effect on me. It is causing nausea, tiredness and loss of appetite. To think that women go through the effects of this hormone a dozen times a...
After much suffering and reading many threads such as this I found a way to enter remission and maintain it. Bear in mind I am a guy so this information may not benefit the female patient. My story...
interesting read . to quote weirdal1968 : "Now before everybody reading this runs over their grandmother to buy some DHEA - YMMV" I take it YMMV means "your mileage may vary" My mileage did...
I wish you every success in finding a solution to entering remission. Remission really does seem linked to a specific set of criteria, something that varies widely between individuals. For example,...
Did you take the progesterone only pill (aka "mini pill") or the combination pill which contains estrogen and progesterone? Estrogen is suspected to make colitis symptoms worse. Maybe there is some...
I'm sure its a good link . It gives a brief introduction but I'm not paying to read the rest of it :confused: However there is a suspected link between estrogen and colitis. Here is a free link :-)...
I am male, approaching 40. Doc wrote off my GI complaints as IBS for many years. Showed first really bad symptoms September 2010. Dx with colitis November 2011. Read my signature for case history and...
Hi this is an old thread (thanks google....) but I suffer from UC (pancolitis) and migraines. The migraines started before I was a teenager, UC followed when I was in my early twenties. I was...
I am in remission from bloody pancolitis, but still have loose BM. I do get nausea that stops me eating and kills the appetite. It is possible that years of taking ibuprofen ruined my colon. My...
I came across this thread via a google search. Kinda wondred what it was but not too freaked as my colon has a mind of its own and pushes out some bizarre concoctions. (google this phrase : 'gut...
Researchers have found brain cells in the gut. They can do a test for alzheimers (a brain disease) by looking at these cells in the gut. (yes google will find that article for you) . Yes there is a...
I was on 100mg/day azathioprine in the summer but it caused pancreatitis after 8 weeks. Debilitating pain. So now on 50mg 6MP for the last 4 weeks. Doc said to take it every day but its just to...
Sorry I know the thread is 18 months old so disregard this if you like. I have been on 50mg/day 6MP for almost 4 weeks and today got an itchy red rash on my left hand and wrist for the first time. It...
@seasons21 I was on 100mg of imuran(azathioprine) for 2 months but developed pancreatitis so had to quit. I believe that the imuran was working to keep me in remission. Now on 50mg/day of 6MP for...
Imuran is metabolized to 6MP by the body. There are some by-products of this biological process that seem to aggravate the pancreas. About 60% of those with imuran intolerance seem to fare better on...
I agree with what probiotic said. Some people have adrenals that don't work or are surgically de-activated. They seem to thrive for many years on 5mg prednisolone with minimal side-effects. I believe...
Afraid it is the imuran. Elevated lipase is a typical indicator of an inflammed pancreas. Although the patient is usually so deathly sick that a blood test merely confirms the source of the problem....
This question has been at the back of my mind for some time. I suffered in a traumatic and distressful home enviroment for the first 12 years of my life. My brother eventually developed psoriasis and...
My bum is broken. It has a crack right down the middle :smilewinkgrin:...
Just an update...have been on mercaptopurine (6MP) for 8 days now. Pancreatitis should have set in by now if intolerant....but nothing yet. My body is used to seeing 6MP in circulation so it would...
Hi Jovana, The pancreatitis would begin will a mild subtle pain. This would gradually build to the awful pain as described. This pain would slowly fade as the imuran was eliminated from the body. The...
Hi, I was on 100mg imuran for 2 months before pancreatitis set in. Also lost appetite. Your bloods will be different each week but will hopefully remain in range...
Hi Jovana, Your doctor is not being very informative about their procedures. This is infuriating/intimidating as we are already concerned enough with having the IBD. So it is time to blow the lid on...
For me diet had an impact on my symptoms. It did not make the UC go away (meds do) but certainly reduced symptoms. Sugary foods like biscuits/cake/sweets cause bleeding. Especially biscuits made with...
Just an observation...your username is 'allswell'. I take it that all is not well due to your (understandably) negative concerns. I have pancolitis and yes the cancer issue does enter the mind. Does...
I was told I had IBS for over 10 years. Stupid GP was too lazy to investigate and I was more stupid for not getting a second opinion. Anyway after about 10 years I started bleeding along with D and...
I don't regularly visit chiropractors and reluctantly credit them with temporarily resolving my UC this one time. In fairness they never promised to cure anything but my UC was resolved as a good...
Yes this is probably pancreatitis. I had to quit using imuran because of this. Its a pity because imuran was actually pushing my body into remmision. A blood test can confirm it if you are really...
I am on 6MP, mesalazine and pred. Alcohol has never been kind to me (even before UC) so by default its off the social to-do list. This means socializing with those who may choose to drink but don't...
If I miss a dose of prednisolone then I get a brutal headache. Simple solution is to take 10mg of prednisolone. After about 1 hour everything is stable again. No pain. No headache. Alternatively...
I have never smoked. Unless you count second-hand smoke. My flares were always D, 6+ times/day , occasionally bloody over about 15 years. Also suspect I have RA (no official DX yet) due to...
Imuran (azathioprine) gave me pancreatis. It is not for everyone. But I believe it did work for me until my body began to react badly to it. I haven't tried 6MP yet as I have just got remission by...
Sorry to hear you are flaring. Immodium was designed for diarrhea due to a short term tummy bug, not for those suffering from a colitis flare. Immodium can be a factor in causing toxic megacolon....
I found that after 12-24hrs intolerance shows up. Dark brown urine, fever, extreme fatigue. The culprit was mixing with ibuprofen. Nobody told me this was dangerous. 5asa's don't do much for me...
Its possible that chinese medicine/acupuncture would help but please,please,please get an official DX by colonoscopy from a reputable doctor. Just 50 years ago this dreadful disease killed a...
Just a heads up regarding my experience with coffee, before my colitis really got bad. I would wake up feeling absolutely wrecked before even getting out of bed... Needed caffeine just to get going...