Heya, So basically I'm flaring. I feel like shit. And I want to drown my sorrows tonight to forget about all this crap. Will it be terrible of me to have a few g&t's tonight???? It's not a regular...
Heya Everyone, Promised I'd keep you all updated. So basically I saw my GI consultant and he gave me a flexi sigmoidoscopy and abdominal xray which confirmed what i already knew that I am flaring...
I totally agree with StealthGuardian. I believe if I carried on taking maintenance meds I would have stayed well, however as a result of me going into a stupid denial because I felt healthy and...
Heya, I'm a dental nurse training to become a hygienist who also has UC. It's common for wisdom teeth to never erupt at all or to be impacted or to partially erupt causing pain and inflammation under...
This 3 infusions rule is crap and ridiculous when it worked amazingly for me. I agree with garylouisvile that I am being looked at as a statistic and protocol and not as an individual who got her...
Heya ilede, how long have you been in remission for? And how severe was your UC?? Ulcerative colitis is a lifelong disease I'm afraid. I went med free after my first flare and made it for a year, I...
Thanks killcolitis, I'm definitely going to appeal tomorrow. I'm going to write down all these points and make the Dr look stupid for even suggesting steroids. I shouldn't be forced to suffer the way...
Yeah this is ridiculous! I'm fuming, I called the NACC (national crohn's and colitis charity in UK) and cried down the phone to the volunteer for the last hour (hate to see my phone bill!!) I'm...
Well I don't see I have any other option but to get the surgery now. My azathioprine isn't working and my Dr says that I cannot have infliximab as maintenance med as in the UK it is only licensed for...
Thank you for replies! I added my picture summerstorm! had a rotten day today, was first day back at uni after my Easter break since I've been flaring and had to run home at end of the day in agony....
Thank you everyone, feel quite emotional reading all your replies. Its so nice having so many people who truely understand and are willing to take the time to listen. I can relate totally to pluot, I...
Haha aaaw you guys are the best! thanks for all the replies! really appreciate it and your comments put a massive smile on my face! I've been hospitalalized twice with UC first time for 6 weeks,...
Heya thank you for replies!! :) I have only ever had 3 infliximab infusions first in noember 2012, the last in january 2013. which worked well for me and induced and kept me in remission, they were...
SOOO i kind of feel like i'm delaying the inevitable. I'm steroid refractory, mesalazine, azathioprine do not work either. The only medicine that works at the moment is infliximab. I feel like i'm...
Thanks for replies, yeah hopefully i'll get off the azathioprine soon as it hasn't helped. feeling pretty crappy now. symptoms of this most recent flare only started a week ago and that was literally...
I see! thanks for the reply. I had a blood test a while ago to check my azathioprine levels. Dr said that would take 4 weeks to come back, i'm sure the results are probably back by now but i never...
Back in September 2012, last year, I began a very severe flare which I was firstly given prednisolone 40g, mesalazine 4.8g and Pentasa enemas which I took at these doses for 2 months with no success....
Hurray! thank yoou, yeah i'm pleased with this news also. And your post is very reassuring thank you! hopefully i'll nip this flare in the bud and wont be on the infliximab long enough to build a...
Thank you for the tips, very interesting about the olive oil. Have taken omega-3 fish oils since diagnosed 2 years ago. But will be interested in adding the olive oil and seeing if it help. Also...
Thank you for your reply. Ah I hope the the Humira injections work well for you, steroids are the worst, hope you manage to stay off them! What diet changes would you advise?? Thanks...
Also quick question. I've heard that over time infliximab can stop working as your body builds a resistance.... Is this true?? and in this case is there a next drug up or would I have exhausted all...
Thank you for the replies, yes the NHS is frustrating. I spoke to a GI Dr from my hospital yesterday who said that with infliximab they have certain protocols they need to follow which means I would...
Thank you for replies, Yeah I agree with you all I also believe I need infliximab again. However because it is so expensive and I am from the UK, where we have the NHS. For ulcerative colitis the...
Realistically am I looking at surgery if Mesalazine and Azathioprine have failed? I'm steroid refractory also. Many Thanks for any replies Stacey...
Hello I'm Stacey a 22 year old dealing with UC for the last 2 years I haven't posted in a while because I thought UC was behind me now that i am taking my medicine religiously. I was diagnosed at the...
Thank yooou! Had my first infliximab this afternoon without any allergic reactions so far fingers crossed. Just need to sit tight and pray. Thanks for the positive thoughts everybody means so much...
Thanks for replies everyone, Just an update for everyone. I'm still a hospital inpatient for 9 days now. I've been on IV hydrocortisone 100ml a day for the last 9 days and deteriorated. My flexi...
Thank you for the replies, I love this forum! So nice to be able to talk to people who know. I don't have a supportive family so its nice to have this extended uc family to vent to. The reason I went...
Heya everyone, I don't know if you remember my last posts but I just wanted to update you on my experience of ulcerative colitis. I'm currently in my second flare up which has dragged on and on and I...
Heya I want to know this aswell. I need to start BC but am terrified it will make the UC worse. I am just getting over a flare which began in september and have been on 40mg pred, 3.6g mesalazine and...
Hello All, I'm interested in adding supplements to my diet in order to prevent me flaring again while I taper off my prednisolone. I am on 3.6g mesalazine and pentasa enemas also for maintenance. Has...
Thanks for the reply! Thought the pred might have something to do with it! thin hair, fat face all fun and games with prednisolone. Reassuring toknow it won't last forever! Need to start tapering off...
Hello all, I've been on prednisolone 40-30-40mg (one week at 30mg but flared so went back to 40mg) for just over 5 weeks now, and Mesalazine 3.6g daily, and Pentasa enemas every night for 4 weeks....
Heya, I'm not exactly sure how much of my bowel is affected by the colitis. It definitely affects the whole left side but haven't had a full colnoscopy. I've had 4 endoscopies which reached the...
Thank you for the advice I will definitely have a look at the threads for speciality diets. Thanks for explaining about gluten and dairy, makes more sense now. I thought gluten was just a problem for...
vitamins and diet for ulcerative colitis..l start tapering off of prednisone at the end of this week, going down 5mg weekly from 40mg. GI said I could start tapering pred as of today but I'm too...
Heya, I had my second ever flare up at the beginning of last month which came as a shock after being in denial/ med free for over a year. I was given pred straight away to treat the flare and got...
Heya moon face sucks, I had a terrible moon face last year during my first flare after being on IV hydrocortisone steroids 100ml for 6 weeks and then went on 40mg prednisolone tapering down 5mg a...
Thank you so much for all your lovely replies. You won't believe how much better they have made me feel and how reassuring it is to get advice from people who understand what I'm going through both...
I personally have blood mixed in my stool during flares, not just on the tissue. My motions have blood steaks or clots in them during a flare, and blood literally drips out of me into the toilet...
Hello everyone, I'm new to this site, read a lot of posts in the past but never had a go myself. Here goes, I'm a 22 year old female who was diagnosed last year with Ulcerative Colitis after many...