Search for a patient assist program for you medication. I was on one for pentasa and they helped me out tremendously with it. They sent months worth of medications every month until I got some...
I've been really scared since i had to take a course of amoxicillin for an abscessed tooth and am fearful that it may trigger a flare. I'm praying that this isn't an early warning. I took tons of...
Could these be a sign of a flare coming on? I developed one a few days ago and am starting to become concerned that it may be the signs of the beginning of a flare. Today, for the first time since I...
last flare i had was my longest at almost one year (9 months). for the most part of the flare i had c diff. once the c diff was corrected i went into remission. Pretty standard diet at the moment....
they also help me when im flaring. i feel more confident about getting out in public since it slows my guy down. and im not talking about taking a whole tablet. i would usually 1/4 the meds i had and...
I finally am and i have no idea what's caused it. i'm two weeks off of prednisone on 6mp, lialda and vsl3 and things are in good shape after 9 months of flaring. i think ridding my colon of c. diff...
I've been following your procedure updates as a guide to what I might expect. They have been helpful, and a little terrifying. I am extremely terrified of the idea of surgery and having the bag...
I have a couple of questions. Did you ever reach remission and was it long enough for quality of life to equal that which you have now that you've had surgery? I have spells of remission, but I feel...
I was on the hydro suppositories and Mesalamine enemas when I was having some rectal discomfort. It passed and I stopped both. I was wondering if starting them back up would help ......
Everything is pretty good, formed, no blood or mucus, 2/3 or fewer bms a day, but the urgency is still there. When it comes time to have a bm, I still need to be as near to a restroom as I can since...
sorry to hear it ban. it has been a long struggle for me so far. my doctor does fecal transplant therapy, so that is on the agenda next if this taper doesn't do the trick. so far so good....
i have been taking the vsl3 two packets a day. this along with the taper seems to have done the trick for me this time. the last two courses of ab got me well for about a week at a time, then i...
this is actually my third course. I was on flagyl for 10 days then vancomycin for 10 and now the taper. things have been so greater for the past couple of weeks, I really thought I had it beat :(...
I'm on the once every 3 days part of the taper, taking my dose yesterday. After about two weeks of everything being pretty close to normal, today the D is back. I'm thinking(hoping) it was yesterdays...
Loved one has come off meds (unsure what they were taking) and is in bad shape. Some days are fine, others are a nightmare. Severe mood swings out of nowhere. This is a very hard headed person to...
Vegetarian when i got diagnosed and for the first year or so afterwards. During flares and remission, eating meat seems to do me better than a diet full of fiber....
i use to see the asacol too and i never see the lialda....
I was scared to death too and ive had zero problems so far. As long as you have your blood tested regularly you shouldn't worry about a thing....
I've noticed this before. I think it has something to do with all the super minty/sweet toothpastes I was using. I switched over to something a little more mild and it got better. I tried Tom's...
Father had UC. He quit smoking and UC. I quit smoking and developed UC. I remember when I smoked I use to occasionally wake up in during the night with extreme stomach cramps and need to be in the...
I'm on 6mp and I haven't really seen any trouble with it. I do have a little nausea the next day after taking it, usually around this time, but it is very slight. If I take it too late at night I am...
I have nothing but the highest respects for people like you who are able to continue on while having this disease. I wish I were more like you. When I first started having symptoms I was pissed off...
I really wish I had some pain killers atm, but I am not in any pain and really didn't want to ask for them to be used in this manner. I have used them for this exact thing in the past....
This is what usually works for me, and it did the trick today. I just stopped eating/drinking all together until after the appointment. Also packed emergency clothing just in case, which actually...
I'm in a flare and have to go to the Doctor today. The stress of having to drive there and wait in the waiting room is killing me. I really hate having to do this knowing that at any second the urge...
I'm currently struggling with tenesmus myself. Tylenol and warm baths several times a day seem to help me. You might give those a try and see if they do you any good. The mesalamine enemas did seem...
I've been going through this as well. I'm just so sick of being sick. Doing my best to keep my head up but it is very tough sometimes....
I'm on the second day of 2.5 mg. I've been having slight symptoms since i dropped from 20 mg and it makes me sad. I'm not in full on flare but things are not as good as when I was on 20 and greater....
I am a guy who thinks about these same things quite often and I've actually stopped even trying to find a relationship because, "who really wants a partner who is sick". I also wouldn't want to put...
I've been on them for about 2 weeks once a day and I've really not seen a great deal of improvement. It has helped some, but it wasn't the miracle I was looking for. Two weeks is a pretty short time...
Does the lidocaine work for internal as well? I have some that I used when I had really bad external ones, but I've never used it for the internal?...
I am in your exact situation at the moment and have been trying to figure out the exact same thing. I saw my doc and she prescribed mesalamine enemas twice daily but I can only retain if taken just...
I know that I have an internal hemorrhoid, but I can't say for sure what the cause of my problem is. I've often suspected it might be the source of the bleeding, but this is usually how my flares...
I'm calling my Doc tomorrow to try and schedule an appointment to talk to her about rectal meds. My last bad Doctor told me that they would be of no use to me since I have pancolitis, and rectal meds...
I use it in rice. Put a little butter in there once it's done, then the tumeric, and it is pretty damn good. Not sure if it is of any benefit, it just tastes really good that way. :smile:...
I also suffer from depression and the first taper was the worst for me. I found that with each of the following tapers, things got a little better each time. Hang in there, it'll get easier....
:( , indeed. Prepping has to be one of the worst things I've ever done. Best of luck....
Probably the prednisone. I had the exact same thing happen to me at 40/30mg, easily irritated/angry during the day, severely depressed at night. At 20mg things began to get better and they both...
He is in pretty good shape, a hell of a lot better than when he was sick. He didn't have uc for long before he had the surgery. They could never get it under control. They tried very high doses of...
That's what they put me on while in the hospital and that's what I've been taking. I've also read that too about the pentasa and was curious. Something is working. I went from lost 55 lbs, unable to...
Lol, I'm actually 40. I hope that isn't a reflection of my grammar, sentence structure, or word usage. UC developed at 35 when I quit smoking. My fathers developed at 55 when he quit smoking ... I'm...
I hate taking medication. I hate it. Given my aversion to medication and my general personality, my Doctor suggested that I just take the plunge and have the surgery. My father had UC and had the...
Everything else is good. Its just healingwell.com that doesn't load....
I wasn't sure where to put this. I looked for a support forum but couldn't find anything. For some reason the forum will not load in any browser in windows 8. When you try to load the page in chrome...
I'm possibly starting it tomorrow if my blood work comes back OK. I'm scared to death of it, but as my Dr explained its meds or surgery are my only real options at moment. My uc is apparently that...
I just found a good doctor who, so far, has been taking the best care of me and I want to try to be as compliant as I can - to an extent of course. So far I can't really tell much of a difference....
No way in hell I would. I've been scared to death of the stuff ever since I was diagnosed and I did tons of research on it after; I know the dangers! I'm really scared of most of the uc medications,...
I hope you get to feeling better soon. Hang in there! Took my dose when I posted this and so far things are going good. I'm usually OK during the day, so well have to see what the night brings....
Thanks Cita. Hoping that I can soldier through. This week has been hell, so any amount of relief will be welcomed....
Well, I see her on Tuesday, so, there is really no hope in doing the 5 mg without seeing her first. That is the way she has them prescribed, 40 for a week then 30. I will certainly call if I begin to...