This will be my final update 2 years after the FMT. I would say I am 90% to full healing (or, put another way, a 90% improvement in my symptoms/condition). In two years I can count on one hand how...
Hi all, Had my 15-month checkup recently (12 months after the 3-month checkup). At this stage, after some testing, I can go two months without pentasa suppositories and 1 every 2 or 3 days is enough...
Hi everyone, Had my 3 month checkup today. Doctor said based on my current symptoms progress has been good. In summary: * My energy levels have increased. I never even knew I had energy issues until...
Hi, I have no other symptoms at all. Just some blood twice in the last week. I immediately treated each with a Pentasa and the next BM was healthy. My BMs are regular - basically 1 per day and...
So at the two month mark I have started seeing blood again. But only twice in 2 months both in the last week. For the first month I stuck with one Pentasa suppository a day. Was 100% normal. For...
Hi NotSoSicklyGirl, I don't think I would do it again unless I saw actual healing happen and in, say a decade, it reared its ugly head again. CDD is a research institute so they run lots of trials. I...
No worries Pete. This is an ignoble disease and I hope you get cured (everyone actually). Additional update - I moved the resistant starch to night instead of morning and the gas problem has...
Hi Pete, no problem. I decided to log the info here and how it goes because I could only find hearsay and incomplete reports from people. I suspected that many people stopped reporting here when/if...
Hi all! The doctor told me to reduce or not take meds unless I needed them. So I can manage the exact dosage and type within the given parameters which for me is - 1 to 2 pentasa suppository per day...
Hi all, I recently went through an FMT process and thought I would describe it here. I used the CDD in Australia for the process as I really didn't want to do it "home brew" and figured I would...
Antibiotic treatment is complete and I am halfway through my FMT process. I'll post separately on that but specific to the 14 day course of these antibiotics: *By day 10 of the antibiotics I found I...
Hi all, Halfway through the antibiotic treatment. Notes: *My symptoms have improved and I was able to reduce my medication *My BMs are a lot healthier and regular *On the downside I seem to have...
Thanks WorriedUC! That's helpful....
True. There success rate with UC is 80% over the 20+ years of providing the treatment. Almost 100% treating c.diff. I didn't ask about other diseases. I also know when they did their first trial back...
I am leaning that way personally. I was actually interested if anyone had used these antibiotics and had any observable bad side effects....
Thanks for the reply - to be clear, the antibiotics will not be taken during the FMT. They are taken for two weeks before, stopped the day before the first FMT via colonoscopy. Then there are two...
hi, The process for FMT was explained to me by the CDD. All seems fine except they want me to go on a course of antibiotics before the FMT. I specifically asked if it was broadband and they said no,...
Hi Helper2b, you found probiotics in pill form helped you? What was the regime you followed? Thanks!...
I just realised I never posted a followup. I ended being in crippling pain for two weeks and going to hospital. I could not do anything except stay home and suck it up crippled on the couch. Pain was...
Email sent!...
Coming back to this thread two years later and just curious if the OP is still in remission? I have a consultation in November with Professor Borody about getting the FMT procedure done here in...
These are the two I took doesn't look like they have those in there but not sure what inulin, FOS and MOS are? http://www.giprohealth.com/scdophilusnext.aspx and...
Thanks all. Yes I stopped immiedielty and its slowly getting better. I am happy for the mercenary army of probiotics to do the killing work of sorting out the bad bacteria if long term it helps me....
Hi Gary, How long did it last? I am hesitant to try any probiotics now. /mm...
I am just guessing its the probiotics as it was the only odd thing out. Though I did also take vitamin C tablet and a magnesium tablet that evening (first time for both) along with a multivitamin...
I am not flatulent. And would that really last so long? I just don't know....
Hi all, On Friday night I had probiotics for the first time with my dinner. So I had 1 tablet of Scdophilus 3+ from GIProhealth with dinner. An hour later I also had 1 capsule of Saccharomyces...
Brilliant. Thanks Doctor. They were a great read. Keep us all in the loop....
Isnt VSL #3 illegal for the SCD? It contains sugar and bifidus- bacteria. Correct me if I am wrong. /mm...
Thanks for the info any concern with VSL no being SCD legal? Seems it has bif- in it....
Worth a try. Thanks for the tips. Why are you opening the capsules and why are satchels more effective then capsules? Thanks....
Hiya, Cut out all dairy as of today. See how it goes. Would be good to know anyway. Happily live without it. I checked with a pharmacist last week and as far as they know VSL isn't available in HK....
Sorry just to add I was eating cheddar and yogurt. I have cut the cheddar out now. I am hesitant to cut the yogurt out since its the only probiotic I am having. I will switch to goats milk for the...
Hi InSoFla, Here is "my story". I was diagnosed with UP when I was 19 (21 years ago now). I was on those sulphur tablets and foam (maybe salofalk foam?). That was fine but I had to have about 9 to 12...
Hi Z, I have only recently realized how blessed I have been after starting SCD. It could be a lot worse I know. But I still want to kill the disease dead. Having said that I have learned more in the...
Hiya, I just get bleeding about once a week. I use Salofalk Enema to keep it in check. Sometimes its in the bowl, more commonly its just when I wipe. I use to get bloating and discomfort at day 6 or...
To clarify first - I'm a physicist, not a medical doctor. I've done some medical physics research, but not related to gastrointestinal diseases. [/quote] I was appealing more to the scientist than a...
Hi all, I have UP for the last 21 years. It responds well to medicine but I saw a major improvement after eliminating wheat 12 months ago. I also recently started the SCD (about 40 days in now). SCD...
What heartening news. As a doctor any views on what maybe happening with someone with ulcerative proctitis as opposed to UC and CD? I have had UP for 21 years but its well controlled by enemas. I am...