bebushka

Try chinese medicine: acupuncture and herbs for your symptoms if you're not getting results from your GI and do several treatments not just one. seriously... I've had pretty severe UC for over 5...

Has/is anyone experienced hair loss with either Imuran or Asacol or both? How long did it fall out before it stopped? What did you do about it? And how was/is it falling out (clumps, lots of...

sounds like he's the one causing you the stress. you need support, not criticism. of course you're obsessed with it, duh, you're going through it. unfortunately, other people just don't get it...

I need to say that you nailed it right on the head, Burli, about a GI "with a personal interest in our health". I guess that's another reason why I've leaned towards alternative methods. I've talked...

There is no point in arguing with you, Burli. I'm sorry you feel the way you do about alternative medicine. From looking at you sig, I think it could actually help you, but you have to be willing to...

I haven't been on the forum for a while but when I got back on, I saw how many people responded to this thread and it made me very happy. To be honest, i was getting discouraged reading so much about...

I think you said it, Burli. In the end we're all different. But I guess we all just share what might've worked for us because, in the end, we're pretty compassionate about what others go through in...

I see that most everybody in the forum talks about pharmaceutical drugs and surgery. Anybody do any heavy duty exploration into alternative medicine to help manage UC? I'm finding a lot of good info...

I think the majority of hairloss is from anemia. I lost a third of mine last year. God, that was awful. That was after a few months of remission but I read online that alopecia due to anemia takes...

When I first got diagnosed with UC, my very wonderful naturopath told me that everyone's disease is different. That his or her UC is different than mine and that I should take everything I hear and...

I was gluten free all summer and fall this year and I still went into flare in July. I just started adding gluten to my diet now and have no problems with it. I think different people have different...

WI Chica--- I'm interested more about your experience at Mayo clinic. What else did they do with you? Rowasa has caused you to not pass stool well? What's a pelvic floor disorder? I'm interested if...

That does seem a lot. It might depend on your body weight and fat ratio, or at least it used to. I'm pretty small, about 120 lbs and 5'4" and I was as high as 60 mg in September. I felt like crap...

How long did it take before hair started falling out with Asacol?...

Every time you exercise, your drawing energy your body is needing to heal the gut. I was told to take it easy and go for short walks instead of bike rides or running. Heavy exercise is very depleting...

Ellen- That's awesome your family is willing to help out. My family is doing the same, too, and it's been a life saver for me. Definitely try the probiotic. It is the most potent one I know off and...

oops, sorry for the slow response there... I did start the probiotic mid-flare. I was having bloody diarrhea, undigested food, 20 lbs underweight, cramping, bloating, major urgency. BMs in the morn,...

High blood counts would trigger anxiety and it seems that this drug only puts people in remission for a few years and it stops working as in Burli's situation. In my case, I'd never get over the...

I almost had to pay out of pocket for it, well my family did, but my first two infusions were paid for by charity and the last one was insurance. Then I applied for a Remicade financial program but...

there's lots of it in it and it's raw. any nut butters will have a lot of oil. consume in total moderation....

Ugh, that's exactly what I'm afraid of with Imuran. I got my first blood labs back yesterday and they're normal but I do not want to tax my liver. I think red's right, there are other ways to stay in...

I'm pretty sure the combo of supplements isn't making you bleed more. You might, however, not be absorbing them as much because the GI tract is outta whack. But I've asked that question of mixing...

I started with four packets in mid-flare. Two in the morning and two at night. I mixed it with 2 tsps psyllium husk powder and 1 tsp of glutamine. Now I'm down to 2 packets. Once in the morn and once...

I'm on the same boat on that one. I'm experiencing the same symptoms minus the left sided pain and the bowels are pretty solid. Haven't asked my GI about it yet but as of last week, he still wanted...

I've been basing my diet on Ayurvedic Indian food and it's worked really well with me. I found out my dosha and have been cooking with spices and herbs according to it and not only is it great...