Omg I was on Mezavent suppositories for years till i had a flare up. I had to go on pred and then mezevant. I told the doctor that it made me feel worse in every way. I think he thought I was nuts. I...
An 8 week course of prednisone has turned into a total of 7 months. Weaned off it 4 days ago. It has been a terrible trip. My joints are still so sore. My maintenance meds are all rectal all I have...
Wow, I am very torn right now. I have only been on the zoloft 4?weeks and it has worked WONDERS. I am very afraid of the weight gain though. Is it possible to not gain too much wait on it? I am on 50...
Thanks science girl! My dr. Says I have to get offnthe pred and Remicade is a far better alternative. It justvscarybwhen you google it! Lol. I have never had such pain in my life as coming of...
i take clonazepam and it helps a lot!!...
I am coming off a 5 month nightmare with prednisone while it did work while on it, the tapering off from 3-5mg pills n have been a nightmare the worts joint and chest pain ever. i had to go back up...
I am in the process of tapering off prednisone and have had the exact same symptons. They have taken loos work and wonder if it is polyarthiritis. But it sounds like yours. I could not move or sit...
Thanks 45&crashing. I don't know what to do. On one hand it is so easy to go up another half and be able to function but it is so bad for you, even at 2.5 they say. I can handle some joint pain. But...
The last 2 tests I had said my red hemoglobin was down and to just start popping behind the counter iron. So I have been. Doesn't matter what I do, I still have blood when I go to the bathroom....
Hi, 2 questions. I was warned by everyone in the group about trying to come off pred. BOY were they right. What was supposed to be an 8 week course is going into it's 4th month. I started having...
3 to 5 in am. The odd one in pm. 20 in flareup....
Short recap until now: Suffered from UC for 17 years. Was lucky, after first flareup and diagnosis Salafalk suppositories with only at diagnosis has kept it manageable. My gastro who I have had since...
iPod, you have never had a remission? Were you just diagnosed ? Welcome to the club!!...
Lol throw a little PMS in there and we have a new type of monster. So far today I have done the crying thing, felt blah and now have Roid rage. All while losing blood all day. I am forgetting what...
Well I guess from reading, it comes with the turf. I just try to hide away on the weepy days. Not hard when you see a face the size of a globe looking back at you in the mirror. But I have my moments...
Sara14. That's how I feel. I have no control over it. Plus I have almost cut myself off from the public between the pred jitters and face and having to stay within 5 min. Of a bathroom. The weeping...
Thanks, it makes me feel better talkin in this forum. I realize it isn't just me!...
Thanks everyone. I was wondering if it was the prednisone that makes me cry for no reason. No reason at all! lol And just wish moonface was the latest fashion. But there are people fare worse off....
Has anyone ever found themselves starting to get depressed waiting or a flareup to heal. It's been 12 weeks and I don't know if it is the flareup or prednisone getting me really down nd weepy. I am...
Thanks fruit girl. I guess I will have to look into that as I need something for maintenance. What a crazy disease. I just hopoe I can come off the pred without having an oral med in place. Cut own...
Third time they have had me try oral mesalamine and each time it has made me so ill: cramping, bleeding and on the toilet every 5 minutes. Then I get chills an fever. I think my gastro thinks I am...
That is what is happening to me. It makes me cry as well. When I go under 6 a day, the flareup worsens again. I see my gastro tomorrow. I have a feeling what was supposed to be an 8 week course will...
Wow, a whole year!! Did it make you feel better right away and then wouldn't when you lowered the dose? How long did it take to put you in remission?? Thanks for the feedback !! I feel so frustrated...
So happy for you! It is great to hear stories like that!...
Thanks, yes they were at 100 percent. I guess an 8 week course was being to optimistic. I cannot tolerate the Meazavant oral for maintenance but can, the suppositories. Did the prednisone make you...
I used them for 17 years before I had got a flare up that got out of hand. Just try not to miss a day....
I have been on prednisone for the first time and had hoped it would work quicker than it has. I have been on 40 mg for one week, 35 for one 30 for one and then had to go back up again. In total I...
Well I had worked my way down to 5 pred. (first time on the drug) and now my dose has been upped again and start the cutdown cycle all over again. Has anyone else had to do that and it worked? The...
lol soystud. Well at least I know I am not the only one. What is Astaxanthin?...
I can't take the Mezavant oral. I had even more bleeding, chills and fainted. Yet, I was on the salofalk supp. for years which are the same thing. I can't stand the prednisone at 40. I am hoping a...
I will try that, thanks NiceCupOfTea. The poached eggs didn't seem to bother me. I love eggs and even with a supplement my gastro wants me to get as much iron and b vitamins as possible. My...
Thanks Don'tScopeMe. haha I love the name. I really thought the pred would start stop all bleeding and urgency within the first week. My first time with this kind of flare up. Is the gas from the...
I am in the middle of a flare up.....down to 30 mg. of pred a day with cortifoam and salofalk supp. I cannot tolerate oral Mezavant. My Iron is very low and am taking suppliments but am eating eggs...
I am betting excruciating gas pain, more trips to the toilet but not diarrhea , jut lots and lots of blood and gas. Then I get the chills. Plus pain high up in my chest area. This is the first...
I want to try. My gastro is on holidays until the middle of Jan. I am on prednisone for the first time. Is it normal to feel really bloated with a hard stomach on the pred.? Thnx notsosicklygirl...
As I say how crucial exercise is soy stud, I am lying down with my dogs and IPad. Lol...
Does anyone know why for years I could tolerate Salofalk suppositories so well for years but oral MEZAVANT is unbearable for me. Side effects! I thought they were made up of the same thing. thanks...
Lol I have been craving it all week as well, but have been to scared while in flareup. I think I will go for it!...
I get them about once every 2 years and always stomach problems at the same time, ever since I got colitis. nASTY. It runs it's course in about 5 days....
I am in the middle of my first flare ever requiring prednisone. I have always walked miles daily until this flare up. I have been housebound and hate it. I live in an apartment and just started...
Thanks puff rice ! Yes my first gastro 17 years ago gave me to cortifoam , procticyal (spelling) and the saofalk suppositories. It wasn't perfect but it was 80 percent. It wasn't until my new gastro...
Thanks puffed rice. 48 hours without Mezavant on just prednisone and still can't leave home from gas and blood BUT it is better than it was 2 days ago. 2nd try just to please the doctor and I will...
Wow Thanks so much Zdenka. I was kind of feeling like I was imagining it but I am sure I am not. I have to stick with my prednisone now. It has been 24 hours without mezavant. So much blood and gas....
Just started the probiotic yogurt, take prevacid and he told me to stop the Salofalk suppository until after the prednisone. What is Asacol ? Thanks Howdyho, what is Remicade?...
4 pills a day. I spent my 21st new years over the toilet and now my 52nd on the toilet! lol I have come full circle! I tookd the blood tests Quincy but could not do the stool tests at the time as...