Sorry, but one more question: Does anyone know anything about the Barbara Volker Center for Women and Rheumatic Diseases. It seems like they treat women like me who have been sick for a long time,...
Thanks so much. I really appreciate your support. I've never felt so awful in my life....
I'm not sure if this posting is going into a place where people will see it. I added it an old post in order to not start another thread, but if this is not correct, can someone please tell me. I...
Hello, I happened to read this thread and have a question about rectal budosinide for AIH. I had a terrible reaction to only 3 mg of it, so I'm looking for another way to take it. It made me crazy, I...
Another medication question- from everything I've read on this site, prednisone sounds a bit scary b/c the side effects seem to be so difficult to deal with. Yet people I've spoken to who use...
No, my stomach was so bad after I took the Uceris that I had to have an endoscopy, which found abrasions in my stomach. So now I need to have that heal before I can start again. But I was only on 3...
Hi, I would suggest an endocrinologist also,tho good ones are hard to find. i had Graves as a child, then radioactive iodine in my teens, years later become hypothyroid. Was on synthroid with no...
Thanks very much for your email. I'm sorry that you also are having such hard medical problems to deal with. As for Uceris, I know it is time-released, and I was on a low dose. I was surprised that...
Hi, Thank you for your encouraging words. I did find Ann's email and wrote to her, but I also just realized, by accident, when I found her email that all of her other emails were together on the...
Hi, I was just diagnosed w/ AIH after two years of being sick w/ several pneumonias. My lab values are not nearly as high as some of you report and my liver seems relatively undamaged. I just started...
Hello everyone, I was just diagnosed w/ AIH a few weeks ago (I also have Graves disease.) My doctor said my ALT and AST values were too high (around 160) -- tho I see from what some of you report...
I have a question and was hoping someone could help. I was just diagnosed and was put on Uceris/budesonide. I was told to take only 3 mg a day instead of the usual 9 mg. Yet I had horrible side...
Thanks you so much. I'm so happy I found this site, as I was really so upset and not sure where to go. Thank you to everyone for sharing your stories and advice. Sybil...
Hello Susan, I know you last posted a year ago, so I'm not sure you will get this. But I was just diagnosed w/ AIH and am going to a Dr. Klion from Mt. Sinai. But I'm wondering who you see there, b/c...
Hi Ann, Thanks so much for your comments. They are very encouraging. I'm so new at this I'm not even sure what to focus on. Yes, Uceris is budesonide. My doctor seemed surprised that i had such a...
Hello Dany, I'm very new at this and I think a bit naive. No, my doctor (a hepatologist) did not feel he wanted to do a biopsy, which was fine with me. I had a sonogram which did not indicate any...
Just diagnosed w/ AIH and very worried about how things will go. It occurs to me that having a VERY healthy diet would be good for me, and I'm wondering if anyone else has sought the help of a...
Hello, I'm new to this group and was only recently diagnosed with AIH. I was on Uceris for only 4 days and had a horrible reaction and had to stop. So I'l be interested in knowing what meds, and what...
Thanks so much, Dany. I also understood that Uceris caused fewer side effects and my doctor was a bit surprised, but after vomiting all last night and feeling so sick and crazy, he told me to stop...
Hello, This disease is new to me and I'm shocked about the dx. But haven't felt well in more than a year. Just started Uceris, 3 mg a day, and I feel horrible: can't sleep; nauseous, sick to my...