What do your doctors say about drinking alcohol while taking Imuran? I hear mixed responses.. All you UCers on Imuran, do you drink? If so, how often? I definitely like to have drinks everyweekend...
Has anyone tired this diet? Success? Failures? I bought the book and the authors story is quite compelling as he had CD and nothing worked for him and had lost 80lbs. He then started readign...
where is your inflammation? If it is lower, than definitely give enemas a chance they helped me a ton when I had lower inflammation.. I have no experience with c-diff so cant comment on that....
What were your symptoms like pre-Imuran? Sounds like you were in the same position I'm currently in... I'm having 2 BM/ day always solid and for most part brown but sometimes blood is mixed in,...
God made a farmer!!! (Dodge)...
Awesome sounds like I might the right decision on my own! Really need to be our own advocates I am finding!...
I am in the same boat my GI is concerned with my several pseudopolyps in my colon too... all came back negative that she tested....
If you want to see a good preacher speak- watch, listen or read some of Dr. Robert H Schuller or Norman Vincent Peale, those are two true inspiring people, not "used car salesman" preaching money and...
I think he is a great salesman...
How far do enemas reach (i.e how much of colon can they treat?) I recently had a sig done and all my inflammation is between 10-20cm mark... my GI claims enemas don't reach this part of colon...
Isn't the point of going on Imuran because one is not responding to 5ASA's anymore? Thus, why stay on medication that isn't working? my 2 cents....
I agree get enemas, I was in the exact same position as you, I went on 4G enemas and the blood went away instantly and as long as I stayed on them I was good but went off and it is back so I decided...
I'm in the same boat, however, I'm avoiding it at all costs. I'm currently on mezavant and going to start salfaolk enemas too I also am taking VSL3. In the past this combo made me completely symtpom...
I was on 40 MG or pred for 12 weeks and did nothing (second time I had been on it) then dr put me on enemas and they put me into remission... did you get scoped? Where is the inflammation?...
I started taking VSL 3 once a day for 2 months, helped for sure (reduced the urgency for me) then I up'd it to 2/day and did that for 2 weeks but I think I might go back to 2/day and eat the extra...
Thanks all for your advice and opinions! I have started to double up my mezavant to 4.8G/day and am going to do that until my f/u appt with my GI in a few weeks. I'm leaning towards doing what I am...
She took biopsies to determine what exactly those ulcers will...keep you posted. Appreciate all your opinions and advice. If anyone else has some please speak!...
Hi Joanna, Thanks for your input as well! I am thinking the same thing and that brings peace to me hearing you were having 12bms a day. If that was my case then I would definitely go on Imuran right...
Gary, I couldn't agree more, that is the problem I am currently facing .I am totally fine the way I'm currently feeling now. However, whenever I see my Doc she puts fear in my eyes saying stuff like...
Hi All, I got back today from my Sig scope today. I had the full C-scope back in July and it showed inflammation in first 30cm of the colon. However, since then I has been on enemas and my daily 2.4G...
Consider yourself lucky.... I pay $115/month for it taking once daily and have recently up'd my dosage to two a day since it has been helping a bit. Does anyone know if the DS will be coming to...
The weird thing is it gets the worst right when I'm going to bed (about 2-3 hrs after my last meal) I don't know its so weird, I'm totally normal during the day for most part but then when I'm...
Hi All, I appreciate the responses and advice. Quicny to answer you questions, I was on enemas and tapered off them while starting VSL3 about 3 months ago and the VSL has kept me away from them since...
I would guess you might need to go back to the aza and maybe up the dosage? My mezavant usually worked first 4 weeks and if not then it will never.. maybe give the enemas a bit longer. Where is the...
Hi All, It's been a while since I've posted but definitely have been around reading posts. Anyway, I started taking VSL3 couple months ago as a last ditch effort because my GI wanted me to go on...
From my understanding (from ppl on here) if you plan to drink it is essential to get liver tests done often, as long as they keep coming back A OK give'r light it up and live your life!...
Let me be clear, as I must not have been initially :) I was on nightly enemas every day for 4 weeks straight (July/august) and they worked awesome and my doctor took me off them after 28 days of...
Sherry and imagardener2 what brand and exact probiotic are you on? Gary- thank you for that great post! I definitely agree with you on your two points. Good timing too because I'm just doing research...
Hi All, I am in a half ass remission right now. I was on enemas and was in full remission then went off them cold turkey and started flaring again. SO, I;m back on enemas now but only every other...
I don't think you are being shallow at all, these are legitimate concerns with all of us that have the disease. In my opinion, I like to keep it private as long as possible. If I'm with a girl long...
Pred worked amazing first time for me at a 40 MG taper then second time I was held at 40 MG for 4 weeks and did nothing! Enemas saved me....
I would say if you are off rec meds for 4-6 weeks and no symptoms coming back you are in the safety zone! I was one enemas for the first time for 4 weeks straight worked awesome then doc cut me off...
irsh- what do the doctors do in your instance with your elevated liver enzymes? How bad was a nausea and fatigue? Could you go to work, play sports, keep living life or house ridden?...
How often do you have to have your blood work done while starting this stuff? I'm very intersted in all your situations that are on this medication (I'm very close to be putting on it myself) What...
Hi I saw a natural path a few years back when I was flaring bad and refused to go on Pred (for the first time). I spent $1200 over 2 months with the ND. He gave me potions, diets etc all seem to work...
Hi Everyone, I want to give you some background info and keep this as short as possible! I really need all your advice and input on my situation. I was diagnosed with left-side UC in May 2007- went...
I intially thought it might be hemmroids because the blood was initially thin and bright red but now that I am on pred it seems to have gotten thicker and darker.. the blood accompanies the stool...
Khloe, thank you for your comments, I did mention that I was flaring and the receptionist recommended that I go to ER and that way I would see the on-call GI rightaway- I am debating doing this, but...
Kazbern, thank you for the response. I should have mentioned that yes, I have been on a daily dose of 2.4G of Mezavant since late 2008 when I was in the hospital (and I am still taking same dose...
Hi All, I'm brand new here as you can tell, but not new to UC. Little background story, diagnosed in 2007 went on asacol and got in remission right away (it was very mild). However, one year later...