I saw a rheumatologist back early 2016. I had a flareup that lasted for six months. The muscles would hurt whenever I moved. I couldn't life my right arm. I couldn't move my neck. I could feel the...
I have gene mutations from both my father and mother for many many inflammatory conditions, including lupus, and I have many inflammatory issues. However, my ANA is negative. So I don't have lupus....
It was my rheumatologist who said I have "extra-intestinal, systemic inflammation of the soft tissues associated with ulcerative colitis" after he ruled out everything else. At the time, I was...
Paleo Diet and SCD. When my colon was flaring, I tried the SCD for one month. It didn't work for me. That flare got into remission with Flagyl. Later, I found out that giving up dairy containing...
I think the reason for the contradicting evidence has to do with the gut microbiome. Many foods that fed gut bacteria are good for the body if the gut microbiome is in balance. Some of them even help...
I was told long ago by my GI not to take NSAID's such as aspirin. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3369539/...
It depends on the type of exercise. Walking, stretching, tai chi are relaxing and should help the body to de-stress. Intensive exercise is hard on the gut and inflammatory. For those of you who don't...
I have a sister who is schizophrenic. She was originally diagnosed as paranoid schizophrenic. The diagnosis was switched to schizoaffective because she is also bipolar. But I didn't get schizophrenia...
There is more to the articles than the ending paragraphs. Studies are showing that marijuana is harmful. Doctors who view brain scans are telling us that marijuana is harmful. Personal accounts say...
Yes, it's good to know the risks so that we can make informed decisions....
My concern with Prednisone isn't the weight gain and isn't the moon face. It's the fact that steroids eat up connective tissue. As a result, steroids can cause osteoporosis, cataracts, ... But 5 mgs...
I'm new at this too. I have a very high creatinine level plus microscopic blood in my urine. I was finally able to see a renal doctor last Thursday. I was told that my kidneys have low grade...
https://www.webmd.com/pain-management/features/is-marijuana-safe-web#1 From personal experience, I know that marijuana harms the brain and the lungs. I used it myself when I was a teen, but I never...
CBD and THC have different effects. Marijuana use harms the brain. The younger you are and the more you smoke, the more damage it does:...
I have had mixed results with probiotics depending on the state of my gut microbiome, so I know that they don't always work all the time. I find that taking a different strain(s) or starting with a...
Hi Peter. Yes. It makes sense that you were able to get in remission with probiotics and CBD oil. IBD is caused by gut dysbiosis, an impaired immune system, and genetics. Probiotics improve gut...
Psyllium, caffeine, and jogging can all cause diarrhea. Gut bacteria thrive on psyllium. It contains cellulose and lignin and is mucilaginous. These may be great in feeding your good gut bacteria,...
In regard to the role of the gut microbiome in IBD, here is a very informative video: https://www.youtube.com/watch?v=xTtVxwt9Z5g...
The causes of IBD are gut dysbiosis, an impaired immune system, and genetics. Getting the colon taken out might fix gut dysbiosis, but it's not going to fix an impaired immune system (not unless the...
Yes. Crohn's and ulcerative colitis manifest in the colon differently. Ulcerative colitis is superficial and continuous. Crohn's is deep and patchy. Indeterminate colitis (IC) is when doctors can't...
Currently, I'm following both the Paleo and SCD Diets. This basically means that I follow the Paleo Diet and also avoid starch sugars and mucilaginous plants. Yes. These diets are very hard to...
Oh. I didn't realize because its a non-profit, volunteer-driven organization and website. I took the link out and added a link to my personal website instead. My personal website is relatively new...
Hi Uniform Charlie, That's a good question. I listened to the talk about the study from the person who was in charge of it at a recent symposium held by the Crohn's and Colitis Foundation. She...
I think that she was saying that she doesn't misdiagnose her patients because she doesn't tell them they have ulcerative colitis. She tells them they have what looks like ulcerative colitis. If her...
The Crohn's and Colitis Foundation has been supporting research into the causes of IBD. There are three: an impaired immune system, an imbalanced gut microbiome, and genetics. This organization also...
Drugs can have side effects that effect everyone. You might not notice the side effects until the condition reaches a threshold. For example, Prednisone breaks down bone tissue. But you might not...
I recently went to a symposium held by the Crohn's and Colitis Foundation. One of the speakers is an IBD surgeon. She told us that if someone is diagnosed with ulcerative colitis, gets their colon...
Fad diets. That's exactly why it took me so long to read about the Paleo AIP diet. Not only do I not like to follow fads, but the premise for the Paleo diet, the fact that it contains only those...
I, too, am deficient in vitamin D. I have found that eliminating pro-inflammatory foods isn't enough. For some reason, I also have to consume lots of vegetables, in particular spinach. Spinach is...
Hi Doggiedo, You don't need to worry about the lactose in aged, hard cheeses. Either it's nonexistent or practically nonexistent. Yogurt that has been warmed for 24 hours also doesn't contain...
Hi Owleyes, Sorry that the inflammation hurt your eye. I'm glad you got your vision back. I've never heard of astaxanthin. I read it's what gives fish its pink color. I will have to try it. Yes,...
Hi Owleyes. Your situation sounds a lot like mine. I too have Ulcerative Colitis. I went to this forum because I was looking to share information with people who have IBD and issues with...
Did you get your Sed Rate checked? It will tell you whether or not you are having systemic inflammation. My rheumatologist wasn't able to give me a specific diagnosis, but at least he could confirm...
Yes. In fact, I recently had a bout of systemic muscle/tendon inflammation that left me housebound/bedridden for a couple of months. During that time, I also got iritis. Thankfully, the iritis was...
I take Grow Bone from Garden of Life: It contains a few vitamins and minerals, all of which are important for building bone. It's made from plants. Plant-based supplements typically contain...
Yes. I feel very tired and I can't focus when my body is flaring. It's so bad that I don't understand how anyone can go to school or work when they are flaring....
I have Ulcerative Colitis and can get extra-intestinal manifestations such as systemic muscle/tendon inflammation and iritis. I have been on the Paleo AIP since my last serious flareup. I notice the...
I love cheddar cheese too. The casein protein can increase inflammation, so I eat hard cheeses and homemade yogurt only when I'm not showing any symptoms of flaring. I also love nuts. Macadamia nuts...
Veggie smoothies and juices. Smoothies help break down the fiber. Juices remove the fiber. You can find a ton of recipes on the Internet. I'm sure you already know this, but if you also blend and...
"Most common symptoms are blood and/or protein in urine. Blood sometimes is so slight it is not that noticeable and protein results in 'bubbly' urine." I have that. Plus, I have systemic inflammation...
So true about not buying lots of gluten-free products, especially gluten-free breads. A lot of store-bought, gluten-free breads contain pro-inflammatory ingredients. Great advice about switching to...
Yes. I am gluten free. The effect of gluten on the digestive system is not just immediate like other high-fodmap foods. High-fodmap foods ferment in the intestines. The fermentation results in gas...
It's always good to get a second or even third opinion before deciding whether or not to take certain actions. If you feel uncomfortable with or doubt your GI, then you can always ask for or see...
I had IBS for about 15 years before getting UC. My diet was very unhealthy. I used to get very bloated, and I had a lot of gas. I was also always having diarrhea. Then I got a serious flare and was...
Please stay on topic....
They are similar in that they suppress the immunity system. Plus, they have similar side effects....
Imuran can also cause weakness and shortness of breath. https://medlineplus.gov/druginfo/meds/a682167.html I had shortness of breath on exertion from Remicade. These drugs are very similar and have...
Physical weakness and shortness of breath are side effects of Humira. They reason your GIs can't tell you whether or not the symptoms are due to the Humira is that the symptoms could also be due to...
There is a very high probability that you are flaring. Yes. I rarely take meds when I'm in remission. Flares start at the bottom. It is important to not ignore the symptoms and nip them in the bud....
I have an excellent recipe that's high in fiber (of course, if you are flaring badly then fiber might be too rough on the system). You can customize the recipe by using more of the greens you like...