Consider trying to get a lawyer if they refuse you. University Law Schools have law students who help people, for instance....
Do you wake up with these headaches? If so, if can be Sleep Apnea. The carbon dioxide goes up and causes brutal morning headaches....
Seeing 'people' can be LBD (lewy body dementia). It's important to know what type of dementia she has, as some treatments for AD can make LBD worsen....
Look for a book called "The miracle of magnesium". Drug companies cannot PATENT magnesium, so there's no profit for them to market it and make a killing. That is why doctors rarely know about it....
PS I notice that with using cortisone now (even my cortisone nasal spray for allergies or my Advair (cortisone puffer), my tendons flare so badly. Emma...
Do you know to NEVER EVER EVER mix Cipro and Cortisone (e.g. prednisone) or NSAIDS? The combo of Cipro + Cortisone or Cipro + NSAIDS can damage the body's Tendons. (This is how I got my Cipro...
I also get terrible back, joint and tendon pains when I stop using my Salofalk for a few weeks. I also have 'UC' (sigmoid-proctitis) diagnosed by colonoscopy and biopsies. I personally think that...
Diabetes and Sleep Apnea can both cause memory and cognitive issues. [FWIW, something like 70% of people with Diabetes have Sleep Apnea. They tend to co-occur. Same with Heart disease and Sleep...
I have Adenomyosis (found incidentally on MRI) and I have also had this problem. A few days before my period, I can wake up unable to pass urine. In order to pass it, I must either (a) stand up and...
Has your doctor sent you to a Neurologist? Having dizziness and tingling is concerning. That is not generally part of typical migraine (common; classic)....
I live in Canada (Ontario) andI am unclear about the coverage guidelines. It says "15 migraines/month" to be eligible. I don't get 15/month, but some of the attacks are several days, so they add up...
My strategy is to 1. Get tested for Sleep Apnea 2. Get tested for the APOE genes. 23andme offers the testing for a reasonable rate. You can run the data file via Promethease and it will tell you if...
Have you had a neck Xray? It can be 'Cervical Spondylosis'. I have this grinding sound, too. Apparently ~80% of people who are 40 have spondylosis-type changes starting to show on Xray. It's a form...
Some antibiotics (the fluorquinolones) are associated with Achilles tendon problems. e.g. Cipro is a bad one. I am having Achilles tendonitis. It started after I took it about 6 months ago....
Low iron can also cause shortness of breath, heart palpitations, dizziness, headaches, and even chest pains. Mine ('serum ferritin' iron) was down to ZERO, while they kept saying my Hemoglobin was...
Yes, the saying is that Crohn's is "gum to bum". UC is the large bowel (colon) only. Crohn's can feature 'skip lesions'....
Zinc is another deficiency that I notice they blood tested me for when my bleeding started. Apparently that shortage can affect tissue healing. Vitamin C, too....
Please tell me that Cortifoam (etc) can stop TAILBONE PAIN. =:O Gonna try to get me some. Emma...
I have the same condition -- Proctitis or Procto-Sigmoiditis. (Not sure if I have 'Sigmoiditis' because the biopsy is lost or missing. Need it redone.) The 'Triggers' for IBD can include various...
I am having this problem since February. It comes for days and sometimes remits. I find what I sit on has nothing to do with it. It is the sitting down and rising that is most painful. Ready to ask...
IBD can feature mouth sores. It can also cause body and joint pains. Colonoscopy can diagnose it....
The above poster is correct in suggesting asking for a Colonoscopy. So many IBDers seem to be labelled as IBS, and it's really IBD. 'Tailbone pain' is commonly reported in IBD posts here and in the...
Maybe you have IBD. Have you had a Colonoscopy with biopsies to rule out Crohn's and UC?...
I've been reading about the Turmeric & Black Pepper benefit as well. Apparently it boosts the action of the Turmeric. I'm torn on the supplement idea because it seems like when it wears off I'm in...
Dizzy and short of breath and even racing heart sensations can be low iron. Ask the doctor to check your Serum Ferritin. Some doctors only check Hemoglobin, but that is not enough. It can also...
The nighttime sleeping problems are called "Sundowning". You may want to Google it. It tends to occur as AD advances....
MINDFULNESS can really help. So does getting supportive counselling and learning about 'boundaries'. (e.g. where you 'end' and they begin.) There really are toxic people out there, and sometimes,...
A new symptom (less than two years old) in an old condition should raise eyebrows, IME....
Ask them to send a sample of the fluid to the lab and ask for a tissue biopsy....
I've been considering the Patch, too. I am a former smoker who developed UC after quitting smoking and having a baby. (Pregnancy can cause flares, apparently.)...
Anyone know how Specific and Sensitive the CRP and ESR tests are? I had my first attack of UC in Fall 2012. They found on Colonscopy that I had 'severe colitis' (colon inflammation) and 'a bad rash...
Me too. I took it in 1998. Got early UC symptoms by 2001 (flushing, diarrhea, mucus). Told it was IBS. Didn't have the blood Clots show up in the toilet until 2012, though. Colonoscopy and biopsies...
Be sure to ask them to check your levels of FERRITIN (the Stored IRON). It is a better indicator of "iron status" than Hemoglobin. Emma...
What about the Patch?...
When I was flaring badly with the UC (first episode last fall), I found that missing a day's doses of Salofalk (mesalamine) would make my joints hurt so badly. My knees felt 80 years old doing...
Has anyone else had super low iron levels? My hemoglobin level is 'good'. However, my serum ferritin level is apparently undetectable (zero). My doctor says it will not cause any symptoms, but I have...
My Colonoscopy doctor took biopsies from my whole colon, but missed taking a biopsy from the SIGMOID section. After, he came to see me in the Recovery Room and said 'my colon was very inflamed' and...
I have a POSITIVE (+) biopsy, but NEGATIVE (-) bloodwork. The bloodwork done included Zinc, ESR and CRP (inflammatory tests). What does this mean? Do I have UC?...
re: Infectious Diseases (ID) and rare/weird bacteria. Didn't they do stool cultures (checks what virus/bacteria grows over 2 weeks) and O&P (ova & parasites) with you? I had to give two vials of poop...
He sounds invalidating. Stress can make this condition worse. Have you considered getting a new GI doctor?...
re: Crohn's being 'patchy'. I think you mean it has what doctors call 'skip lesions'. I am confused about my Dx too. My Biopsies are +ve for UC, but my bloodwork is -ve for UC. SMH...
If your Proctitis is Ulcerative Colitis (the tissue biopsy results in the Biopsy Report your specialist shoudl have after the Colonoscopy)., then you should know that Sacroiliac (SI) joint...
I took Accutane, too....
I think Propofol is a white milky substance. I am pretty sure that's what I saw in the syringe that my anesthetist used for my c-scopy. Cannot remember a thing, other than getting on and off the...
I have this too 'black' stuff show up, too, after starting the Salofalk sups. I asked the GI doctor and she said it is not "black tarry stools". She said true black stools stink like "rotten meat"....
I am new to the UC forums here. I had a colonoscopy on October 27 after four weeks of blood and mucus showing up. The Surgeon missed taking a Sigmoid biopsy! Only the Rectum biopsy was +ve, the...
The BMs *can* be skinny because the walls of the colon are inflamed (inward). This means the passage gets skinny for passing BMs. Talk to your doctor....
Hello everyone, I am new here. I started having bleeding with mucus on October 1. Family doctor referred me for a Colonoscopy on October 27. The surgeon told me in the Recovery Room that my colon has...
I had trigger finger in my right thumb at age 39 after the birth of my son. It developed around the same time as I also had bilateral carpal tunnel. (The carpal tunnel Nerve tests at the Neurologist...