Is there any evidence or possibility that Slippery Elm can block the effects of mesalamines? I read that mesalamines open in the colon and work like a topical med, but if the colon is covered by...
Has this helped anyone or made things worse? Does it feed good and bad bacteria? I am interested in it for butyrate....
Thanks Sibby, Culturelle has inulin with the Lactobacillus GG....
What about inulin - it creates butyrate to heal the colon?...
So hoping it works for you, how frustrating. My 12 year old son just spent 8 days in the hospital and was on 60mg of solumedrol for 5 days also. It did clear his up but ONLY WITH LIQUID NUTRITION...
Has anyone had luck with Culterelle with inulin? Been thinking about having my son try this. Good studies on both. /community/emoticons/idea.gif ...
Thx for all the input. I'm afraid to give him anything now. What about kefir or yogurt or small dose proboitics? I have an organic partially digested whey shake I make with almond milk, ingredients...
Thanks Bloom93 - The doctor's give me the iron pills - lol they never mentioned infusions. He had homemade chicken broth twice today and boiled eggs. It is hard getting potatoes away from him while...
colitis91895 - How long were you on MTX before they stopped it? I think mtx is making him worse....
Maybe we will try no potatoes too. He will starve though. Ate you eating cheese or yogurt?...
I haven't been giving him probiotics much lately only Kefir. Just giving him mainly multiple vitamin and his chewable iron pill, Folic acid and fish oil....
Do you think bananas, apple sauce are okay and VSL#3 while bleeding?...
I am scared to try anything at this point, gave him the enemas 4 nights in a row and each morning worse, so stopped them. Not sure??...
Mesalamine enemas seemed to make him worse? Nothing is working right now, so hard to tell. Thanks! Can you continue VSL#3 while your are bleeding everyday?...
I also recently read about extra virgin olive oil, clearing up uc inflammation, so trying that today. Have done a week of cortenemas already too....
My son is tapering Prednisone and bleeding again, down to 30mg a day, was 25 and back up. What has been your best diet for bleeding leftsided and lower UC? We are starting Vancomycin tonight, which...
Thanks for asking Somedude! He is okay except for holidays or birthday parties. Easter was the hardest for him, even though we put money in his basket and eggs, but he was on high dose of Prednisone...
I can only taper by 5 mg of Pred a week and if the mtx doesn't work, his doctor said Remicade is next. I want to try LDN, but the doctor won't prescribe. Thanks!...
He has only had 1 small dose of mtx, 2nd dose is Saturday. He did great last year on Vancomycin, cleared him up in a few days. His doctor is very stubborn in giving prescriptions of anykind! I think...
I can stop all probiotics and just give him Kefir. They also started him on folic acid, which I think can increase bm's. He is getting 1 fish oil, multi, iron, folic acid, D3, B12, Prevacid for Pred,...
The only new thing we started was VSL#3 early March. He has been taking RenewLife for 6 months, but that could be a factor since things got worse the last 6 months. He was taking fish oil 2 years ago...
That's great Josh and thanks Soystud. We will see how he does after the 2nd mtx injection. He is anemic Soystud, but we are taking iron chewables daily and he eats a ton of meat and shellfish....
He is going 3 or 4 times in the morning, with blood and not well formed. Yes, I am ready to cut out the rice, just so hungry being 12 on Pred....
iPoop - the only diet that helped my son, was very low sugar and no wheat, corn, or milk - stopped his bm's for the past 6 months to 1 or 2 x a day. (Until this week of course an then it's been 3 x...
Thanks so much! Why didn't my doctor give him Uceris then? Why do I have to suggest everything to this team of doctors, actually? We are going to a new doctor Monday at Children's in DC, that heads...
How does Uceris differ from Prednisone?...
Tapering by 5 a week, was down to 30 went back up to 35mg yesterday and today. He was on 40 for 10 days for same reason already. I will look into Uceris. Thank you! Is 10-12 weeks too long for a 12...
I have read on other forums that the effects of turmeric are hard to absorb in the body and there is another form that works much better. Meriva is absorbed up to 10 times better than standard,...
My 12 year old son has been tapering Prednisone, after dropping below 40mg a day, bleeding came back. Have to get him off it though, he has been on it for weeks, the total weeks will be 10 after...
Exactly what I thought! Dr's are so annoyingly stubborn....
His worse inflammation is the middle of the decending and down. All the drug informations say it is for left sided colitis. Dr keeps saying, it won't reach far enough...blah blah blah! Thanks guys!...
Will Rowasa reach the sigmoid and lower descending? Yes, right? I am tired of asking the dr for them!! He is on Prednisone for 5 more weeks tapering, currently 40mg. And they want to start...
How did u get the LDN and is all of this working for her? Is the inflammation gone?...
They don't want him on 6-mp but want to try Methotrexate. I had him on most of the alternative meds u list for your daughter and he got severely worse. The doc won't give us LDN and we havent tried...
Pathogenkiller - would love your Injera recipe made with teff!...
Enzymes really messed up my son (recommended by his nutrionist). Enzymes for protein can work on your ulcers and maybe too the enzymes for fats. HCI is in a lot of enzyme supplements and can bother...
Some potatoes are GMO's too! I would think it's also crappy oils in kettle chips!?!?...
I am going to try make him vsl#3 enemas with aloe juice....
I will pathogenkiller thanks so much. So far he is fine on the Pred, tummy hurts a little after he eats though, which isn't his normal unless he would eat crappy fried fast food....not! :nono:...
Last year he did great on Vancomycin but after a few weeks bleeding returned. Gi doctors aren't trained in this area. Did the people who tried the triple combo stay in remission?...
Notsosicklygirl- I have read of the triple antibiotic treatment but his gi is not interested....
Ridiculous.... asked him 3x if he swallows his gum?? I already have an appointment or Tuesday with an infectious disease doc who specializes in parasites and bacteria...can't wait! My mom works on a...
Just that he has always had attention/focus problems. The questionable critters all have pointy tales. Well baseball porty pots since he was 5 and we have been to a few lakes. The year before this...
And very sticky strings of candida that have to be scraped off the bowl, won't flush....
Wish I new how to attach pics....we have had lots of tiny pale pink 1/4 inch, one inch white ones but very hard like a bone, and sacks that look like eggs....
Every time I give him 1000mg of biotin plus oregano oil, there they are floating in the water. Clove oil is to be even better....
I swear my son has passed a few parasites, but tests never find them....
I saw a research in Japan and Australia? were they did find a rare bacteria called F. Varium in almost every patient in the study and treated it with a combo antibiotic....
Just curious! Has anyone ever went to an Infectious Disease doctor to rule out a rare bacteria? :turn:...
Slippery elm and marshmallow root....the best soothers! Have you tried natural antibiotics to heal? Oregano oil capsules , olive leaf capsules, grapefruit seed extract or bromelain is to reduce...