Crazy! Have you not experienced TPN? I found what it means to be no food in a very hard way, and that by nature, any living thing loves to eat, because I could not eat for 1 full month, and I was on...
So Tornado you are doing remicade from now on?? I hope you would be ok, no side effects. Please keep us updated! John, Gary, our signatres...oh well its a list of dangerous meds. I know some people...
You should wait until your GI is back. Your tapering too fast would cause you to be in flare, which can cause you more risk for miscarriage, and your body is saying that you are tapering too fast...
I just know Imuran takes 6-9 months until its effective. Falling hairs are common side effects among immnosuppressors. For enemas it take 8 weeks until your gut heals if the inflammations are bad and...
I am on Prograf (Tacrolimus), which my doc told me the better/newer version of Imuran. Imuran takes 3-6 months to be effective for UC, and I didn't have the time (for me it was either surgery or...
I knew a gal with UC, after taking Remicade, she developed drug induced Lupus but her conditions were she could not walk by herself and she had to use wheelchair, her joints swelled to the point that...
My GI told me because most health food or supplement does not list all ingredients, nor tested by FDA or government entities, I better be responsible and ask the doctor first before ingesting any...
C_G_K: I never tried Imuran because at the time I was in extremely bad flare (doctors standing by to take my colon out) I needed something that worked quickly or I get my colon perforated so they put...
Prograph is in capsule form as well. Yeah I hated steroid to the point I told doctors I dont want to ever be on steroid. If Prograph fails or if my kidney gives up on me, next step is surgery...so I...
Regarding FMT, there are tones of people for UC trying. You can join the Facebook group that is private from the following site: http://thepowerofpoo.blogspot.jp/ There are no. of articles and...
CanadaMark: I am more excited about FT now, after hearing about besides the bacteria. I figured that is why antibiotics and probiotics alone would not work, well people who beleive in FMT says its...
I dont think UC is caused by intake of refined salt. Our ancestors back in the old days they ate processed food in a cured form, such as ham, dried fish, cured pork...etc. from non-industrialized and...
Canada Mark: Yes in McMaster there is a clinical trial for FMT for UC, yeah, they say remission, but other people say they were cured...officially they cannot call it cure, but there are people who...
The root cause of UC is the decreased strains of available intestinal good bacteria that supress the bad guys to minimal, or a balance, like a forest with balanced ecosystem, or savanna with right...
Win UC, thats great. There seems that in this world physicians just label disease, and medications to follow, by looking up physician's dictionary of some sort. I heard a person who had UC and...
Is cyclosporine working? When I was reducing steroid, cyclosporine was another med. dr was gonna put me on, but by injection right? How is cyclosporine taken? He said he knew I hated keep coming back...
KillColitis: I know a gal from Montreal, she had to be sick for 4 yrs and she did not have an option to go for the surgery due to the long wait list. She finally had a perforated colon and the doctor...
During a flare (where I have symptoms), it helps a lot to eat low residue/low fat diet. I usually eat low fat chicken fillet, breast (no skin), white fish, tuna, tofu, soy milk, cooked apple (no...
I was not aware that having UC in States it can be that expensive!! I lived in different countries but never lived in States so was not aware of that. Having UC is hard I cannot imagine if I have to...
Hi, I am in Japan, and I had been hospitalized for 3 months in a hospital in Tokyo in 2012, so if anyone is wondering how they treat IBDs in Japan I am here. I am interested to find out the...
Isnt this the treatment for UC in States??...
I am having hard time to get my family (especially mom) understand about UC, and that I would like to get the surgery. I live on my own, and ever since I moved out of the house and on my own, parents...
This site has been wonderful for sharing things I could not with others who do not face an ostomy or J-pouch. I also shared my knowledge as much as possible to share with others of what I know, to...
So many people wondered here what caused their UC? For me I think about this a lot, what did I do that caused or triggered my UC in the first place? Some things come to my mind: 1) I was on the...
Hi Sue, you should ask your doctor to test you for the bone density, simple x-ray test. 9 months of steroid is a long time to take. Also ask him for the calcium supplement and how to avoid broken...
Hi, my name is Ellen. I am pretty new in here, first time asking questions. I have UC, and currently considering a surgery to be cured, but some people in my family and my non-surgeon doctors think I...
I think UC has no cure except removal of colon. Remission != Cure. There used to be that UC has increased chance of colon cancer, but nowadays generally speaking as long as you maintain remission,...