What kind of polyp did they find?? How big was it? Was it inflamatory or adenoma?? Even though benign there might of been something that concerned him about the polyp. There are different types of...
I am the same as you. The only thing that really works is antibiotics. The problem is that you have to keep on them. The doctors don't like to keep people on antibiotics permanently. My feeling is...
emfraestobo btw... why do they think you are not a candidate for reversal?? Just because of PSC or something else??...
emfraesto I don't have PSC, but I am about your age and had a polyp removed a few years ago in the context of colitis and have had small focus of dysplasia detected since, so am considering this...
"I think there is some danger in latching on to the number 20%. The 95% confidence interval around that would range from 2.7% to 69.1%" Absolutely. I didn't mean to latch onto that number. I really...
"Personally, I think one of the best reasons for trying some type of FMT (pills, tube, scope, enema) is that there is a high false negative for c.diff. I suspect a lot of people who make anecdotal...
Certainly good points. This is an important area. Let's say it is effective for 20%. That would be huge. Now what if it is effective for 20% but hurts 20%... then we have a huge problem. How do we...
http://medienportal.univie.ac.at/presse/aktuelle-pressemeldungen/detailansicht/artikel/microbial-restoration-of-the-inflamed-gut/ "A positive clinical response was observed after 12 weeks in one...
In my case anything that alters the micribiome seems to help a lot... Both Cipro and Flagyl helped. I was treated with Vanco and that was very effective but discontinued because of concerns of long...
Old Mike Fecal transplant really helped me. I have little doubt about it. From what I've read anecdotally fecal transplant only helps a subset... 5 patients?? Not a lot. Interested to hear the...
How did he drink the thing?? Smoothie like concoction?? Or just really chow down??? Is there any evidence or logic why drinking it would be more effective?? Wouldn't the stomach acid kill it all?? Or...
I'd be careful claiming that fecal transplants are going to work for everybody. I believe it will work for a sub group and the emphasis should be on identifying the subgroup and getting them the...
I wonder if this guy has told his GI he is on distance healing?? GIs sometimes don't like alternatives. Hopefully they have another level of reaction for distance healing... it would actually be kind...
Mamacat - I'd ask about chromoendoscopy and endoscopic mucosal resection. If it is a minute spot that can be localized it may be possible to remove it during a colonoscopy. The reason to get the...
Dura-Ace How many times in the 15 years did they detect low grade dysplasia?? Do you think they were false positives?? Or do you think the dysplasia actually comes and goes?? Or do you think you...
Another important factor is how much dysplasia you have. One line of thought these days is that Dysplasia in colitis can actually be seen and measured and possibly removed. They use a technique...
Tap Were your flat lesions adenomas or inflamatory? Did the chromo find anything new?...
Great to hear things went well....
What did your doctor's say about you quitting. I am guessing you'll start flaring eventually but I hope not. If you are going to try anything like diet, probiotics, or fecal transplant I'd do it...
I pretty much do not use food for long runs even up to the 3 to 4 hour range. For a marathon distance (I am ussually around 3 hours) I'd take 3 gels. And also a water/gatorade as needed. I like the...
I would formulate a routine to get yourself cleared out before the race. This is pretty common for any runner even if they don't have UC. A lot of runners drink quite a bit of coffee before the race....
They are finding now that liver enzymes in PSC do fluctuate. However a return to normal is a very good indicator of prognosis. I had some signs of possible PSC 15 years ago. But liver enzymes have...
In terms of Vanco they put me on one 2 week cycle orally. It worked very well. So they gave me 3 more cycles. I think the last one was a month. Each time it worked. But each time symptoms returned...
Pathogen Killer I'm "sort of" in remission. Mildly active disease. I've been hit by atleast 5 pathogens over 12+ years with U.C. Blasto 1999, a "mystery" c-diff like infection 2002-2005ish, Lyme...
I have a long history of co-infections. Starting with blastocystis hominis in 1999. U.C. was diagnosed in 2000 (after failing Flagyl treatment for Blasto). I got documented lyme in spring of 2008....
When you say lyme can masquerade as IBD do you mean just symptoms or can it show up endoscopically as well?? I had lyme but no one ever mentioned it could cause IBD....
I was living in Canada when I got diagnosed at your age. I had a similiar experience. First they thought it was nothing. Then they started making appointments but it was going to be a few months...
If they have dysplasia (precancer) in them that is bad. If not then I believe the biggest danger is that it makes it harder to screen for areas of dysplasia. They probably did not take them out...
I have had an extreme positive initial response to Flagyl, Cipro and Vancomycin. Have been tested for C-dif, but no signs of that. Just mentioning that because when people here of my positive...
I doubt it will do any harm. In fact it may help. Personally I run alot, have done several marathons, and have found that excersise helps in many, many ways. For one it may even regulate the immune...
the UPS guy came this morning. He's a bit of a jerk and waits about 10 seconds before taking off. I live in the third floor and almost miss him every time. So I ran down to get the Humira and he...
I have done several marathons. In the morning before a run I relax, drink a couple of cups of coffee, and make sure I go to the washroom before the run. As much as possible I try get into the habit...
I've been on anti-biotics several times and they have helped more than anything. Have taken courses of Flagyl, Cipro, and Vancomycin. Vancomycin worked the best. Basically I would take a course and...
I started Humira a week ago. Some improvement. I was going about 10 times a day, with severe cramping. Now it is more like 5 with less cramping. It's only been a week. I hope to see continued...
I've been sufferring from UC for 10 years, but have run almost every day during that time. I found the biggest thing is to get my hemoglobin and iron (ferratin) levels checked regularily. This is...