Why don't you just eat more of what you are already comfortable with? No problem with eating more rice and beans. You need at least 1500 calories a day. At that weight you must look sickly. It's not...
Does anybody know if there are probiotics out there that have an asacol like protective coating? I've always heard most oral probiotics get destroyed in stomach acid. A coating seems like an obvious...
Have you tried Simponi, Remicade, or Vedolizamab (just got approved by the US FDA). Seems like some biologics work much better for people than others. I don't think you are out of options at all....
I've been on Humira for about 15 months. I fully credit the medicine for pulling me out of a severe flare (15x times a day). I've been in perfect remission with Humira, 5ASA, and VSL ever since. I...
I've been in a remission for a little over a year with Humira and Mesalamine ( I also take Psyllum Husks). If you your GI believes you need a biologic in your condition, I would get a second opinion...
Humira has really worked well for me. I've been on it for about 10 months. Took about 1.5 months to reach full remission. It's super convenient to do a shot at home. I've heard Remicade is more...
I've heard Remicade is generally more effect for UC. Even Simponi has some pretty stellar UC trial results. However, Humira worked for me in about a month (after the 2nd loading dose). Here was my...
It's never too early to start thinking about surgery, but once that infection clears up I would consider a biologic medicine (Humira, Cimza, Simponi, Remicade). Many people have been on remicade for...
If you find a medicine that makes you feel good for a long time, don't get surgery. Perhaps Simponi is worth a try for you? The risks of failed surgery are far far higher than any serious side...
How long have you been on Humira? It can take up to 2-3 months to have full impact. I had gas and bloating for about 2 months after starting Humira, now I'm in full remission. I will def stay on the...
I've been taking Humira since early March. It's put me into full remission after a pretty awful flare (pred or enemas did not do the trick this time around). I haven't had any side effects with the...
I don't think there is anything terribly different with the medicine. I would keep away from taking it too close with any fiber filled foods or supplements. For a while I was taking asacol too close...
I mean the truth is, none of these drugs will have to be forever. However, I know of many people who have taken Humira (for multiple issues) for more than 5 years. There are several "safer" biologics...
Ipoop, have you always just had left sided colitis? Many suggest thecancer risk is much lower with left sided disease (correct me if im wrong)...
Anything that requires 25% of sufferers to have surgery is usually more than a nuisance....
ohherdcr, Did you start Humira yet? My GI believes that if c-scope comes back clean after 6-12 months of Humira, patients can wean themselves off Asacol/Lialda/Apriso and just rely on the Humira....
How bad are your symptoms? If they are tolerable (meaning you have a decent quality of life), then you could experiment with sulfasalazine before moving to Imuran. It is possible it could work when...
I always thought the same thing too. Before I was diagnosed (and still currently) I've gotten minor migraine headaches that seem to be related to hormones (I tend to get them more when I lift weights...
Bentyl caused those exact symptoms for me. I would place the blame on the bentyl. Hopefully you can wean off of that as the 6mp kicks in....
5-7 years is a long time. There will be new medicines out then for more options. I'm personally saving Remicade if I absolutely need it. Given your relatively minor symptoms I think some alternative...
You need to consider probotics as well. VSL #3 works well for a lot of people (including myself)....
Most people that have had long term success with Remicade are probably not posting on this board IMO....
I would not be surprised if your GI upped the Humira to once a week to get you over the flare. Call him immediately and ask along with starting the Uceris....
Have you been in remission at all since diagnosed off prednisone? Humira takes 1-3 months to work fully at times (you could always increase to one shot a week as well)....
I personally would exhaust all medications/alternatives before going under the knife. Surgery carries a much higher risk of serious complications over the biological drugs like humira and remicade....
I have been on Humira for a month and a half and it's put me into remission after a pretty awful flare. I think Humira is generally less effective for UC, BUT if it works for you it's preferable over...
Well, I wouldn't discount the remicade yet. It could be the reason that you have seen improvement the past week. I think you should stay on it for the forseeable future until you improve to the point...
Lemonhead, Do you take Vitamin C supplements? I've heard of people on Humira having issues with sinus infections and whatnot after a few years of use, but not after 3 months.....
Suebear, That figure doesn't really make a lot of sense. With the emergence of biologic drugs in the mainstream in 2003, the figure for surgery should have gone down and not up in the last 10 years!...
I'm sorry the Humira did not work for you. Did you consider using Humira once a week rather than twice monthly? Did you see ANY improvement in your flare on Humira? That may ultimately help your...
I did my loading dose of Humira in the hospital (so I wasn't in the best shape). I remember having slightly swollen neck glands and a bit of a sore throat, but nothing too bad. I'm on my 5th week now...
I'm pretty sure coffee is a trigger for flares for me. All 3 flares I've had in my life has been at the apex of coffee intake for me (3-4 cups a day). I stick to herbal teas and have given up coffee...
I can understand your apprehension with the subject! I would think positively though. Remember, there are many on this forum (and thousands off this forum) that have maintained remission with a...
Lemonhead, have you ever been able to obtain remission? Have you come close with Humira?...
Thought I'd chime in here. There does not seem to be a whole lot of Humira users (on the UC side of things) on HW. My GI was much higher on Humira than Remicade, but perhaps he wants to keep the...
Is there any benefit to doing this while in remission versus if flaring? Just curious.....
How long were you on Humira before you gave up on it? It's nice to know that us Humira users could still potentially get relief from Remicade down the line (despite almost every GI saying the chances...
Meteorologist...
Yes, I think the my GI was noticing how bad I was getting. Skipping over Imuran was based on my condition at the time (bad). My GI also doesn't like combining biologics and immunosuppressants due to...
Hello all, Thought I'd share my story first and foremost. I was diagnosed with Colitis (indeterminate, but really seems like UC) in 2008 after some minor constipation and blood. I've been through 2...
Does anyone know the difference between black cherry concentrate and tart cherry concentrate? I started tart cherry concentrate yesterday and it really seems to be helping with my Pred related neusea....