I realize most people visiting here are currently experiencing issues with their condition. That's mainly because people who are struggling are looking for answers and those who have found remission...
they're 100mg/60ml I hadn't been on them in a long time but decided to start at this low point on the pred have about 8 days left...
4.8g Lialda 150mg Azathioprine (150lb bw) 2.5mg Prednisone Had a solid but thin BM this morning about an hour after eating breakfast, traces of blood on TP. re: Aza danger, my bloodwork has always...
I would say the Aza is working, in the past I couldn't get below 20mg on Pred before flaring, and I have spent the past ~4 months under that level with zero issues. I really think I put myself in...
Lialda is the stomach med Aza seemed to be working as I noted, flare happened after alcohol consumption. Just wondering should I tough it out at 2.5mg or should I go up to 10mg to hopefully beat down...
Start off with my Q then head into the backstory I am staring a new job on Monday and then will be out of town for training the week after that. I'm wondering if I should increase the pred back to...
The first sign of me having UC was waking up thinking I had somehow broken my wrist in my sleep. It was horribly swollen but not incredibly painful (nor was it discolored). I went to a urgent care...
Shire will help you, I have received 9 months for free so far, that's about $7,000 for me as I was going to be paying just over $650/month otherwise....
Had to take it for 10 days due to an infection, had no issues. Was on pred/aza/lialda at the time. Didn't use a probiotic....
Probably just shocked your system hell I ate horribly for a couple weeks then after 3-4 days on a super clean diet I had really bad D, GI seems to believe it was just my body flushing out all the bad...
I see where iPoop is coming from, other than some trouble sleeping and a bit of forehead acne, predinose has been a godsend for me. I couldn't get out of bed due to my joint pain and after starting...
Male, late 20s, was already balding, my rheummy reminded me I'm not allowed to complain about losing my hair b/c I already was. He's lucky I wasn't in a bad mood....
what does your taper schedule look like?...
I do this a bit every now and then, I also grind my teeth in my sleep so I wear a nightguard. Perhaps you could look into one of those cheap $20 versions at Walmart to see if it helps....
Could be you're not on a high enough dose, but you for sure should be in contact with your doctor during this time. I was fortunate, I went from awful joint pain and going ~6 times daily to being...
way too fast on the taper, you were tapering off 20% 25% 33% daily, that's absurd...
bi-weekly? That doesn't sound like Humira, I thought that was bi-monthly. How bad are his actual symptoms?...
That's the UC, mine migrated to a different major joint every 2-3 days. Had it in my hips, shoulders, feet, and wrists. Trying Azathioprine first before moving onto major stuff. I've been able to...
Sulfa is supposedly great for those who have joint pain associated with UC, unfortunately I'm allergic to it or I would have tried it before Imuran....
People are way too afraid of Imuran, just stay on top of your bloodwork and even if things go poorly, they're pretty much all reversible and you can quit the drug cold turkey....
I've been on 150mg for 3 months now, and I'm working off my pred. So far I'm down to "just" 15mg pred, last two times I tried to get to this level all my arthritis came back, so this has me hopeful....
I've been fortunate on pred, only side effects seem to be insatiable hunger and slight forehead acne. I was hanging out with a nurse the other week and my illness came up, I told her I was on pred...
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I was on 20mg for about 3 months, Doc has me going off 5mg every 4 weeks through 5mg, then we're supposed to discuss what to do from there....
have you mentioned how long (and at what doses) you've been on pred?...
Pred or UC in general, is there any swelling?...
UC can cause joint pain, I had horrible foot/ankle pain before I got DX'd and put on pred you need to taper slowly, better to do it once slowly than multiple times by trying to get it over too...
go ahead and eat everything you have been wanting to since your flare this is the time to live it up, because unfortunately it won't always be this way. When you're in remission you need to soak it...
It's the UC, takes a lot out of you pred tends to cause insomnia, are you perhaps not sleeping enough?...
my GI said no issues with reasonable drinking...
Went 2 months strict gluten free and I felt no difference, ofc I was on pred but I even tried tapering the pred and my joint inflammation came back going from 20 to 15g. I was doing it for the...
Did you gain the weight by eating more or was your diet good and you gained pounds? If you put on actual bodyweight through excess calories (I know I have b/c I'm always hungry on pred) then it won't...
Haven't had any side effects in the 4 months I've been on it, but I've had an infected ingrown fingernail and and ingrown hair on the back of my head. I soaked the fingernail and the infection...
The Clif Protein Builder Vanilla (as well as Chocolate Mint) is my favorite right now. 270 calories and 20g protein, not Gluten free though I think. There are some good gluten free bars, I cannot...
yep, plus I think they still might help those who are over but not by a significant amount I have received 6 months free already which with my awful private health insurance has saved me roughly...
my hope continues to be that Aza/Imuran will work long enough for more research to be done and better UC specific drugs to be developed. I'm very hesitant to go to the next step (biologics) if Aza...
My rheummy wanted to start me on methotrexate but he called my GI (actually during my appt) and he said it wouldn't help at all with the UC (I have bad joint pain from UC) so we went with Aza...
mine oozed white puss and blood earlier, usually a sign I'm in the clear, I just make sure to get it all out and then keep it clean...
could be hangnail, I used to have a problem biting my nails but i have tried to be diligent lately about not doing so now that I'm on Imuran....
thanks, I've never had one removed, one time i had to go on antibiotics well before I had UC but since then I've just soaked em for a few days and they've broken through....
I worked up to a full 150mg dose of Imuran 2 weeks ago and have been doing fine, however I have a bit of an ingrown fingernail issue (tends to happen a couple times a year). Usually I can just soak...
same active ingredient, Imuran gets converted into 6MP...
I've been on Imuran for nearly 2 months now, about to get up to full dose of 150mg, done bloodwork every 2 weeks and it hasn't changed so I get to stay on it. No side effects yet, but I'm still on...
could be an infection like CDiff? not trying to scare you, but you should probably get some stool samples done if it doesn't clear up....
I've worked my way up to 125mg of Imuran with the eventual goal being 150mg I can't say I've had any side effects, had a couple days where I was fatigued but frankly that's probably just from UC and...
you're tapering off the pred before working up to the full dose of Aza? How are you feeling now?...
Mid/late 20's, best shape physically and financially of my life that changed in about 90 days...sigh...
It's probably from the colitis, mine is, hoping Azathioprine helps b/c once I tapered the pred it came back....
my GI told me every 8 years, was quite pleased to hear that...
today is my 23rd day on Aza, move up too 100mg on Monday bloodwork every 2 weeks, no side effects so far...