You probably know everything i'm about to say by now. Uceris is not like prednisone because very little of the medicine enters the bloodstream. The target release area is the colon, not the small...
How is everyone doing on the Uceris? I start it tomorrow/?...
This is great to hear!!! My dr. just prescribed this to me yesterday. Insurance is being difficult and say they wont cover it. My dr. has to call and explain that there is no other alternative or...
LDN is great! I have a ton of information about LDN. It has no side effects and it can treat many conditions. The FDA will never approve it for the numerous conditions because it's too cheap and...
maybe i dont feel like talking about my shit okay. Thats your personal opinion. Others would say it is a personal thing when you get talking about it. Look it's the principle of the way this whole...
no... i understand the purpose now. Making it difficult for members of this site to contact one another privately is done deliberately. This could have both positive and negative results for the...
its about FMT in the US....
So there is no way to send a message to someone directly? do they want to keep all correspondence between people that are active on this site open so other people can read it as well? Some issues,...
Yes, but a lot of the $ that is paid out isn't seen by the dr. There was part of the article that was talking about how a GI doctor was not able to tell the cost, total cost of a scope. You'd think...
i read this last week... Well it's because the US charges more for everything other countries get at reasonable prices. I liked the authors example.. like the $100.00 ice pack after Physical...
Has anyone found it difficult to ask a specific person a question that you sort of don't want to announce to the world? How do you do this if the person you want to ask a ? doesnt make their e-mail...
Hi daisymay, I'm very sorry you are going through all of this. It's good you have reached out. So many people try to get through life alone, but like all of us here, we aren't ashamed of our...
Hi Aussiet, can you mail me please? I'd like to ask you a few things about a FMT. Thanks...
You tried the FT i saw. Can you email me please? I have a question thank u...
[quote="colitis91895"]My longest has been to around 4 months. My worst side effects were weight gain, stretch marks( which i still have) and the moon face. I gained around 40 pounds on prednisone....
From reading your post, you're like all over the place and you dont stick with a treatment long enough to even let your body begin to take advantage of whatever it is you may be trying. Stick with...
That's great! I think I would undergo the worst of the worst if it was a guarentee that I'd get my life back the way it used to be. WHen I had a social life. Because my disease is now very low in my...
How did the fecal transplant work out for you? I'm looking into it, but I think the FDA has put a hold on procedures ... as always interfering with safe and effective treatments to do the nonsense...
Your lack of sleep has A LOT to do with how you feel throughout the day. I know how I feel when I have gone a day without sleep... depressed, anxious, foggy, not productive, slow, difficulty w/...
Well the lancing/cutting was horrible... I mean that was my experience. They numb the area... or at least try, but because there is a significant amount of puss/infection in that abscess, the numbing...
When our body has a disease or gets ill, it means something has got to change somehwere in your life.. USUALLY. I dont think there is any illness that doesn't require you to change something, however...
i was diagnosed with UC in 97... Been in remission a few times through the years and in 07, shit hit the fan.. my disease spread so much so that I was diagnosed with Crohn's colitis and pancolitis -...
YES!! Lately.. in the past week I have been experiencing blood clots and bleeding pretty bad. I have had UC ... since 97... then remission for 5 years or something wonderful like that.. Got sick in...
Right now I just feel hopeless and discouraged. I have moved back to my house and out of my fathers house and when I ran out of the LDN, I basically didn't make it a priority to drive home and get...
Babeinthewoods ... It doesn't allow me to send you a personal message/email. Can you PLEASE mail me or something. I have a question about a post from last year. This was the only way I could think of...
Thank you for this info. Good stuff to know. I have found that the Vitamin E does help.. I haven't tried it long enough though. I am having severe bleeding right now and just feel discouraged and...
Hey Joe...I'm sorry your not feeling well and stressed. Like some of the others said, you fine until Friday... Seriously. The stress probably isn't helping your condition much. Try to de-stress or do...
Are you badly flared ? It's working, but I think you need something else along with the steroid or an increase. I experience the same thing with the prednisone. When I take it in the morning... I...
Good!! Glad to hear that he's showing some improvement. Prednisone usually gets the inflammation down pretty quick. Hope things only get better from this point fwd :)...
Don't apologize. you have valid reasons for your concern. It actually takes some people a significant amount time to find the right medication(s) that work with your body chemistry. Not every drug...
That is so weird and I think anything is possible with the manufacturers and drug companies the pharmacist. People make errors all the time. It may have been the wrong dosage. That has happened to me...
So you're not consuming dairy products right? Go back to what made you feel well... no gluten and no lactose. It worked and helped you. I laugh when the doctor says you can eat anything. *smh* diet...
Listen to this... The glorious feeling of relief when it's over with. I'm 34 and have had about 10 of these procedures and doctors have gotten very good at doing them and you will not be awake for it...
bleeding for Years...Yes years. that's why I don't know what to do. In 2009 i was dx with Crohn's colitis & pancolitis. I was a mess. The last time I was scoped the dr said it was UC. My terminal...
Thank you. I will ask the doctor when I call on Monday. I don't think I have ever tried the budesonide enemas. The inflammation will usually subside when I use them. How often do you use them....
Where do you get the pascalite clay? Can't find it in the health food store. Oh dear...Suggestions - candles, many air fresheners, fans, incense, oh and matches (they say the fumes of the match...
Somedude - "his loss"??? there's no need to say things in a crass way. We are all trying to do the best we can and maybe he is going on what his intuition is telling him. My intuition is always right...
Wow Pluot.... thank God you're alive to tell your story. Ha and a lot of the meds i've tried in the past, did nothing for me neither. I'm currently dealing with the malnutrition/ malabsorption...
Wow herbgarden... You are very much educated and involved in your sons care. He's lucky to have a supportive parent like you . Lol my father doesn't even know that the disease is chronic. It's sad...
SOrry you have to deal with the stress of not knowing what to do next. Can you tell me what PSC is? SOrry for my ignorance. I was not thrilled with what the doctors at the Mayo Clinic told me when I...
i take xanax. you will feel the .5mg if youve never taken benzos. be careful, as they are highly addictive. it sneaks up on ppl....
urgency yes. No it's not either of those....
The mesalazine ones....
I am much better than I was years ago, but I can't seem to get the rectal/ anal bleeding to stop and heal. I can increase the prednisone, but it always leads to this same place. I have used and tried...
I'm glad I found this thread, it's been helpful and I learned a bit too. I had no idea the rectum was the hardest part of the colon to heal. I worry about my health, as I have been bleeding...
:shakehead: i can totally relate. What you have been doing for 12 months, I have also been doing since 2007. I quit the job, moved home 2 times throughout the years. Went through ALL the GI docs in...
:rolleyes: because we are still in caveman medicine. Some people may think the US is up on the latest medical advances, but we are far from it. We also have to recognize that we live in a country...
Thank you for your suggestions everyone. I really do appreciate any and all feedback! Thanks again...
yes...
can someone tell me how you know or are able to identify these? :eyes: or if you know of a good educational/informational site orweb page to learn about these things, lemme know the good words....