Vivomixx. So can someone please tell me what vivomixx is then?...
Thanks guys. Still awaiting reply from my wonderful GI professor. Noticed in 'resources' pinned-post that there's a list of antibiotics approved for UC. Can anyone explain where the list came from? I...
Hi there. Hoping MyUC or someone else might be able to assist. Have had severe flares in my life but luckily in remission thanks to Immunomodulators. Dentist wants to do root canal and use a topical...
Wonderful information. I sincerely hope someone is studying this....
Hi solomani. If you get a chance please email me : ironmanspanky at yahoo dot com dot au. I have good information for you regarding your upcoming treatment in Five docks...
Hi Dr Briggs Thanks ever so much for sharing your study. Is there a way I can PM you? Cheers...
Delta please email me using the icon undermy name...
Delta can u email me if you would like to chat....
Hi there. If a patient is taking 20mg oral prednisone, can anyone inform if 20g steroid enemas contribute systemically to that number? (ie is the rest of your body actually receiving 40mg or just a...
Hi all. 16 years of UC. Typically 25cm and two flares since first diagnosis. Each one worse. This flare treated with Rifabutin, Rifaximin, Ciproflaxin, Tinidazole for two months prior to first FMT....
I hate to be a skeptic but research done by 'Danone' (yoghurt company). :smhair:...
Hi again. It has been suggested to me that after 5 weeks of FMT, Remicade might be added to assist me in removing from steroids and suppressing inflammation to enable new bacteria to populate the...
Hi there. Im doing home FMT for severe UC to 35cm. Been in a flare since March 13 (worst of the three in my life, in last 15 years). Have been going for 5 weeks now and had the initial one done under...
I have had 3 flares of UC over 17 years. Recently this flare (4 months now) is the most severe. The bloods were taken at same time as the most recent colonoscopy at the start of May. The results took...
Hi all. I've just got the serology back from the blood taken at my colonoscopy 5 weeks ago and I have been told I'm positive for Yersinia enterocolitica. Has anyone had any experience with this...
Hi there. I'm a long time reader, short time poster.... LOL I'm heading in to see Dr Borody in a few days as my UC has flared up badly despite the maintenance dosage of Sulfasalazine I've been on for...
Hi there. I'm currently fighting off a severe flare. History only has sigmoid involved. I'm doing; VSL#3 (2 sachets, 2 x day) Homeopathic meds - for mucosal healing, stress and inflammation Slippery...
Hi there guys. I was posting about 2 years ago. Sadly I'm back! Long story - short. Diagnosed at age 18 with UC - history toilet problems but I never knew what was normal until seeing a Doctor....
Hi Cherchelza (and everyone else)! Just bringin this back to the top. Has anyone had these symptoms and if so what did you find out please?...
Thanks Quincy. I'll stay on the enemas. We don't have anyone who is a specialist gastro doctor in town which is a shame. I've started getting these extra heart beats again now I'm on the salofalk...
Hi again guys. I just wondered if you had time to lend me your experience again and help me get better before the wedding. An update; I have used the 2g Salofalk enemas for 7 days now and have been...
Best GI in Australia is in Brisvegas. Prof Tim Florin. Head of Mater Hospital IBD research division. He sees patients privately. If your condition worsens he is the man to see in Australia. Cheers...
Hi again guys. With thanks to those that responded to my last post for help, I wanted to ask for another question. When I last used the enemas nightly (i was on them for about a year 5 nights a week...
Thanks Quincy and all. Quincy I'm not sure of what you mean regarding why I m on sulfasalazine? It's what I've been prescribed. My GI says it has better delivery of the drug in the bottom half of...
Thank you all so very much for your instant support. For me, the sign of symptoms is hard not to get stressed about in itself. I'll go back on the nightly enemas until things return to normal and...
Hi there guys. Ive had moderate UC (25cm) which seemed to have cleared up about 8-9 months ago. I was taking Salofalk enemas and the usual dose of Sulfasalazine. Over the last 9 months I've felt...
Hi guys Can anyone help me with a question about the storage of the enemas. The package says that they should be stored under 25C degrees. If they were to be left in the back of a hot car would that...
Hi Ironwoman. I believe I can probably be of some help. Since I've chewed the exact same dirt as you are currently chewing. The training probably has very little to do with it. Take it from me. I...
Hi guys. I've been heading towards remission and not feeling too bad in the last couple of weeks. I tend to get migraines (maybe a couple a month). Last night I had to take aspirin (seems to be the...
Brisbane, Australia....
In Australia Quincy. I think I remember reading somewhere that mesalazine enemas were equally if not better than coricosteroid foam. I was just thinking it might be easier to integrate into life for...
Thanks guys. It's not that I'm against using the enemas. They seem to work. It's just not really that great a thing to do for me. I have to wait till my girlfriend is asleep. I just find it really...
Hi guys. I had a colonoscopy two days ago and wondered if I could get your thoughts/suggestions please. I'd love to hear from anyone in a simillar situation/ involvement. Gastro doctor (great guy -...
Anyone else get a perfect line of mucous along the length of your solid BMs? Keeps happening regularly. Can anyone tell me why it's a perfect line?...
STRESS! For both flares. I read in a book recently that UC has a high correlation with major emotional upset/trauma as a child. That was certainly my story....
Hi guys. I was wondering what proportion of UC sufferers have symptoms that involve an increase in the involvement (distance) over time. Roughly what proportion from initial diagnosis; A Stay with...
Hi there. Sorry to hear you are not feeling that well. I too get the same 24-36 hr headache (migraine really) twice a month. The only thing that gives me relief from it is aspirin. Does that work for...
Hi there guys. Not too bad a question this time. I'm only going to the loo once a day in the morning at the moment. The only problems im getting are that in the evening I get gas (after dinner). The...
Sorry but I just have to put this one out there! I know everyone must think about it. How long might a cure be coming for this darn illness? Will we see one in the next 10 years?...
Thanks so much you guys. It's this site that keeps my stress levels down (and therefore my symptoms!!!). In all seriousness it's great to be able to ask these ugly questions and feel like you aren't...
Hi there again. Not so disgusting a question this time? Can anyone tell me whether this particular probiotic is useful (in conjunction with sulfasalazine). Quite expensive in this part of the world...
Sorry to ask such. I know most are used to looking at the bowl before flushing but can someone please explain; Stool of normal consistency but has lines (along the stool) of dark brown mucous (maybe...
Guys can you help me answer the following please? 1. Is there any significance of the timing of mucous or blood with regard in relation to passing a solid bm? (ie if light brown mucous only is passed...
Hi there all. I just wondered if anyone has a statistical breakdown of this nasty illness with respect to time and severity. i.e. What proportion of people diagnosed have inflammation that; a) Stays...
Thanks Quincy. Have you ever heard of exact instructions for taking mesalamine (I'm on 3 x 500mg twice a day) around food? I.e. Take 2hr before food or with food etc.?...
Hi folks. I just had a question for those of you out there in the know with regard to delivering this drug into the large intestine. Under different brand names (I am particularly interested in the...
Hi Quincy I take an IBS support pro-biotic. Its quite an expensive one that I found in a health food store and it is kept in the fridge. Has the highest amount of bacteria on the market supposedly! I...
Thanks Quincy Unfortunately in Australia all of the mesal enemas require a special govt health board approval to be prescribed every time (for a 28 day supply). Have been taking them religiously for...
Thanks Quincy & Fruitgirl. Have managed to get in to see a great GI who is a professor studying/leading an IBD research team here is Australia. Going to see him in a a month so I will try to stretch...
Hi Quincy. Finished the pred two months ago. Haven't had any bad symptoms at all while I've been on the enemas (in fact been asymptomatic most of the time). Can be hard to tell after a morning BM...