I used oversize alcohol wipes from ReliaMed to remove the adhesives and clean around my stoma. Then I shower and make a nice pool of water around it a few times. After I dry off I use tincture of...
I love my ileostomy and have no intentions of getting a jpouch. I empty the bag a few times a day; once in the morning, twice during work, and once at night. If I eat a late dinner the bag will puff...
...about your colon? I have been doing great since my proctocolectomy last May (wow, seven months ago!) and have been so pleased with my ileostomy that I can't see a future without it! I've got my...
Thank you Dan, I have irritated / sore skin under the stoma that I was advised to put powder on followed by dabbing cavillion ("protective skin barrier" wipe) until the powder becomes a paste. I will...
Thanks for the tips Liz, I will try leaning back in the seat to put the powder on... I will also need to attempt bag changes while laying down, that sounds perfect because it's just like standing up...
Hey guys! I have a quick question about using stoma powder. I've got some irritated looking/feeling skin on the underside of my stoma (currently name "Gurganus") - my question is: how do you get the...
I started passing mucus about a week after my surgery. I was watching a movie with my wife when I felt the urge to go, I looked at her and said "I think I need to poop?" I now refer to these BMs as...
So sorry to hear you're having a bad day and August does seem very far away but it'll be here and gone before you know it! I have similar feelings being 4 weeks out of surgery (Step 1 of potentially...
Welcome to the forum, good luck on your journey! This is my 16 year history with UC (posted recently) - http://www.healingwell.com/community/default.aspx?f=38&p=1&m=2736527 Maybe it's helpful, maybe...
Here's my story that I posted recently which includes my surgery fears and outcome. I had a total proctocolectomy with end ileostomy on 5/30 (just a week ago)!...
I was was on 6MP for more than 15 years and flared about twice a year over the course of my UC. My history is in recent thread here if you care to read through it:...
Sorry to hear of your prednisone side effects. They always sucked for me but generally got me through a flare. Good luck and feel better, get that Xanax refilled!!! ;-) -R...
Tiesto, I completely understand your mental anguish over choosing a surgeon for the surgery. I had the exact same concerns and was told that CC was "the best" for GI surgery (Mayo also scores really...
I have suffered with UC for the past 16 years (since I was 15 years old). 6MP and Lialda (plus the gamut of other 5ASAs) kept me "stable" for that time although I did have about 2 flares a year that...
I had my surgery one week ago today. My surgeon recommended a 3 step approach: Stage 1 - total proctocolectemy with end ileostomy, heal. Stage 2 - create the j-pouch, loop ileo, heal. Stage 3 -...
Glad to hear that your scope came back with good news! I was always more scared to stay on prednisone than I was when I had to decide to try 6MP... or Remicade... or Humira. I did achieve and...
I never kept track of TP usage... and now I don't really need to wipe in the traditional sense any more since I've got this stoma on my front side. I am going through a lot more Wet Ones trying to...
So sorry to hear about your first accident and try not to feel embarrassed or ashamed; it's not your fault. I've had to poop many places and sometimes I just couldn't hold it. Outside an airport...
I have taken prednisone a lot over the past 16 years and I have always tapered very slowly. I am on my last prednisone taper schedule now after having surgery last week and should be done with that...
Hello again, My surgery was completed successfully on 5/30/2013! I am recovering well I think. A lot of people were telling me this while I was in the hospital. It's hard to think that you're "doing...
I tried VSL#3 while I was in college. I mixed it with some Stonyfield yogurt. I only recall feeling gassy from taking it and never really found much benefit. I have also recently tried the Activia...
I went to my follow up visit with the GI yesterday (Tuesday). We went over my horrible weekend, my newly manifested low-grade fever that started on Friday, and my broken mental state. I've had no...
I made it to Wednesday! Thank you all so much for your support and suggestions! My symptoms were so bad Monday night that I refused to eat anything at all yesterday in the hopes that I would stop...
Greetings fellow UC survivors, the newly diagnosed, the left-sided and the pans: I want to start by sharing a short history of my life with Colitis. It's my hope that someone else can identify with...