I’ve been taking psyllium for years. Currently 6 Metamucil 3in1 capsules first thing. Makes all the difference....
I saw this too. Any of the great minds here have any ideas as to what it might be logical to do if this research is right?...
Hi there - i stopped because insurance wouldn’t cover it. I don’t want to exaggerate it - it definitely helped but it wasn’t miraculous - it wasn’t enough on it own. But if you have way of paying for...
"Poo poo the idea" How apt!...
Just on the point of not discounting the mesalamine - which would be the case for any maintenance medication I guess - I get the reasoning. My only issue is that my faith in the doctors that I see...
I went to a nutrition type doctor here in NY and the food intolerance test was done through him but I think you can get it done anywhere in theory. I believe the company was called ALCAN. I should...
Yes - had a scope. GI said I had little to no inflammation. In my case at least there's not much ambiguity about whether there's inflammation or not. When there is there is usually some bleeding and...
Sorry - wasn't trying to be enigmatic - I've posted what I did on here before. And sometimes it sets people off on here when you say "I think this works". Also I think it's clear that different...
I don't post on here much, but felt that this might be useful to some people. I've got inflammation at the end of the rectum, about the first 12-13 cm. As you all know, that's all it takes for...
Don't know if this will be any help, but here's what helped me. I was in similar in low level flare, 10 cm moderate, occasional bleeding, urgency, 5-6 BM a day. Started a morning smoothie and for...
Like others have said, everyone's different, but I've managed to get down from 8 bm a day with bleeding to 3 or so in the morning and then okay for the rest of the day usually, no bleeding, by having...
Would really appreciate suggestions for juice/ smoothies that are okay while flaring. I've been in a non-stop low-level flare for years now, trying all sorts of things. My diet has become quite...
Right now I seem to have plateaued. My inflammation has always been about 10-15cm, but impossible to shift. Even pred didn't remove symptoms completely. I'm definitely a lot better than I was before...
I know my Dr feels it's more effective for UP, but I don't know what she bases that on. Re tapering, yes, the guidance is no taper because the systemic absorption is so low. Good luck....
I've posted on other threads, but in short, 2.5 weeks in. Have been flaring without remission for 7 years. Uceris quite rapidly largely stopped bleeding (a couple of small incidents), reduced urgency...
I believe your body does have ways of telling you what it needs, but I also think these can be fooled/ hijacked. For example, high-fructose corn syrup switches off your satiation reflex so you keep...
notsosicklygirl is absolutely right. Asacol releases based on the pH in the colon (the right side). Apriso, for example, releases at a slightly lower pH. The pH in the rectum would not be right for...
I tried this stuff for two weeks. Made me worse. I'm two weeks into Uceris now which is helping - better than I've been for a long time. I'm not in remission, but I will be if I improve as much over...
I think I've read this thread through, but it's long so apologies if I missed anything. My questions's simple - has anyone other than Canada Mark experienced unambiguous positive results with this...
I was at about 6-8 a day probably, with blood. I have a vague feeling the Uceris may make me a bit more frequent than I would be otherwise. What I'm seeing though is no bleeding and a gradually...
If it's any help, I'm 9 days in and definitely improved. Haven't changed anything else (still doing Lialda and Canasa). Bleeding completely stopped. Morning BMs from 5 to 6 down to 2. Urgency still...
I seem to be improving today. Definitely better than yesterday - but you know how it is, cause and effect with this disease is impossible. My understanding is that it's the inflammation in the...
I started two days ago. I was having very minor bleeding and that seems to have stopped, so that's positive, but frequency and urgency haven't really changed I think. But it's early days. I'm a bit...
Same here - made me worse....
I really like the idea of us using this forum as a tool to collaborate on promoting understanding about our condition. It's already a good place to hear about what works for others, and that's very...
I find it basically works out the same as eating healthy in general - fresh foods, lots of meat, fish, vegetables, rice - that sort of thing. I keep fruits to a minimum with the exception of berries...
Diet it important for me. Two major factors - first I have some definite intolerances, and I had a test done for them. Some of the things on the list they gave me don't seem to be a big deal. But...
I thought I should add something. As someone with 10-15cm proctitis, I'd always been confused by how that small an area of inflammation was causing so much trouble. I can see why it would cause...
If it's the same one, then you'll know why I hesitate to say who it is - it's impossible enough to get an appointment as it is!...
I was prescribed these as a suppository a few weeks ago. I had a flex sig two days ago and was told I'm healing. I don't feel so much improved, but the pictures on the flex sig were clearly vastly...
I had exactly the same experience during tapering. My doctor slowed the taper and increased me to 15mg for a couple of days, but it wasn't a big change. I continued to taper, but added 50mg of DHEA...
He did two illegal things - opened your mail and forged your signature. That means it's a criminal offence, not civil, so not a small claims issue. In your shoes I'd get in touch and say "Dad, I need...
I'm in a pretty similar situation. Started Pred on 40, down 5 per week. When I dropped from 15 to 10 symptoms started to return, although to be fair I only had about 1 genuinely symptom free day. But...
LiaM - we're in the same boat - proctitis 10cm moderate since 2007. Since then various things have helped at times and then stopped working at others. People will swear blind that if you eat...
I've had about 3 weeks on a new diet, and it seems very helpful, although I am a bit up and down. I did a food intolerances test which was based on them drawing a load of blood. One of the things...
Hi Nicole - just saw your post. I'm happy with my Doctor at Mount Sinaii (did I spell that right?). I'm told it's the best place in NYC at least. My doctor is pretty open-minded, and although she...
I've been taking this morning and night. Not sure it's done much for my UC but has done wonders for my heartburn. Can I ask why the 2 hour gap from other medication Levi?...
Just some thoughts - if you're measuring your progress against someone else, I think you might be jumping to conclusions. Some people are just better suited to distance running, like you said, so...
I exercise pretty hard and don't think it affects my UC. What definitely does is any sort of protein drink, and I think my brief trial with creatine may have provoked a mini flare....
Me too. I work in development and had three bouts of stomach parasites over a couple of years (once from Bangladesh, once from Angola and once from Palestine). After various courses of antibiotics I...
I think there's a good chance that this will infect a lot of people. Chances are as it spreads it'll get less dangerous (because mutations are normally successful ones, which in the case of a virus...
The whole anxiety of this disease is definitely one of the worst things. I have a 50 minute subway ride into work every morning, and it frequently stops between stations and just sits there, which...
Re your question I never crossed a land border. I don't know what to advise - Vietnamese customs can be capricious, and it's hard to know what they'd do confronted with something they didn't...
There are two/ three international medical facilities in Hanoi - I'm not sure about HCMC. The International SOS Clinic I'm sure would be able to get you what you needed - you can probably e-mail them...
2 Asacol twice a day + 1 Canasa at night time has been my remission dose. When I think a flare's coming (basically more frequent trips to the loo) I up to 6 Asacol twice a day (as instructed by my...
Contacted my doctor about this (at Mt Sinaii in NY). She said there's no problem with Asocol. That's a relief for me....
I'm drinking it every morning. Tastes fine, and I believe that curcumin is a good thing in general, so I'm happy taking it. I'm never able to say what the effect of each individual thing I'm trying...
Brooklyn here too - Park Slope....
My understanding is that canasa is basically okay to use indefinitely if you tolerate it well. Also, because it is topical (I'm assuming you are using it as a rectal med), it has lower risk than most...
I changed doctors a while back - I don't know if this one is necessarily better than the last, but the big difference is that I can communicate with her - she responds to e-mails quickly and engages....