I used it briefly when I was undiagnosed, but they had an idea of what direction this all might be headed. It kept things at bay for a little while we were still navigating what exactly was...
After stopping playing English Premiere League soccer approximately one year ago due to Ulcerative Colitis, Darren Fletcher, a player for Manchester United, made his return today. He played very...
This is real?...
Same thing just happened to me. Worried about how this Remi will take....
I was on 4 in the beginning. Did the trick for me!...
It took a while for my Remicade to start working. I still experience the odd bout with d even after nine doses and almost 4 months of comfortable/manageable bathroom habits. From what I've been able...
Sounds like no drugs will interact with one another in that case... Can't seem to identify any MAO inhibitors associated with the drugs I'm currently taking. I managed to get through to a pharmacy -...
Is it cool to take Neocitran or equivalent when suffering (almost remission... comfortably existing) from UC? It's a little late where I am to call a doctor or pharmacy, but would benefit from...
Keep in mind that your insides still have to heal as well. You know how cuts inside your mouth take so long to heal because you HAVE to chew food... but you can kind of increase the rate of healing...
For my infusions, they have made note that I prefer to have it in my forearm... You can make that request, I believe. They put it in my hand in the hospital and it made no sense to me based on the...
Haha I understand. Don't think too many people on this board have malicious intent... But ya, it sucks when you get on a high dose of the steroid and figure out they're barely doing anything and...
I started April of this year... I've had six infusions since and I've gone from hospitalization to today being my first day back at work since March. It definitely takes a few efforts to take effect...
Good luck! Not as scary as it's made out to be......
I'm on Imuran... I was a little worried about starting it in conjunction with a biological... (I am also on Remicade), but after about three months of Remicade doing something but not quite enough, I...
Ya, I had that issue. I now get my infusions every four weeks. Not uncommon apparently. We jumped right from eight to four... If things start to improve significantly, we're going to slowly decrease...
My third loading dose for Remicade had little effect on me for some reason (about 6-8 weeks in)... I have no idea why. I had another dose four weeks later as opposed to the usual eight and that one...
I haven't made it below 20mg since I was put on Pred (April). I tanked hard at 20mg and wound up back in the hospital shortly after. Not sure if there was any correlation, but as a result, I was back...
Remicade in Canada (I'm in Ontario)... I can touch on it... but nothing set in stone by any means. When I was going through the process of getting the financial end of Remicade set up, I had a...
Mezavant, I noticed, was really heavily coated... Probably the slow release thing is dead on. Pentasa wasn't coated (the one I had anyway), and I noticed if I didn't get it down right away or drink...
They could do iron infusions, blood transfusions, a few bags of saline for a re-hydration (which I've found super helpful), and ya some steroids too... If you feel you need to go to the hospital, I...
Thanks for posting a link to your blog. Nice to hear a success story....
Trying to avoid them if I can... I know they supposedly help a lot - my GI has also mentioned that this particular flare I'm past the point of rectal meds greatly contributing... ...but I feel like...
Thanks for taking the time and the encouragement. I have some fibre, fish oil, probiotic supplements handy that I had been experimenting with - different combinations of one to three of the above -...
Yeah, still tapering the Pred. That one's going to be killer to get out of my system. HOWEVER, the Prednisone never really contributed to the UC in any dramatic fashion. When I first started it, I...
I feel like I'm inching closer and closer to what appears to be what I will call 'Flare End Game' or reaching a point in my drug therapy that I appear to be turning a corner... My symptoms are...
I'm so stoked for that day too! I'm noticing some outbreaks. I'm a bit of a medicine soup right now though, so it could be any of the drugs I'm taking causing the outbreaks and skin issues......
I'm very fortunate in that for my latest flare (and pretty much my only flare thus far... although it has landed me in hospital twice), work has supported and will continue to support me in a...
I started to taper back at the end of May/start of June and then I had a relapse... It didn't really do much for me, but the doc bumped it back up to be safe I guess... Finally starting to taper off...
The first infusion they tend to give tylonal and benedryl as a precautionary measure as people can have allergic reactions... I did the first time and haven't had to since. I always have the drugs...
Always consult the doc on stuff like this obviously... but I've always been instructed to taper Prednisone by 5mg per week to avoid any withdrawal or harsh adjustment of any kind....
I've heard that it can take up to six months for it to really take and settle in. I'm at month two and I just had my third loading dose a few weeks ago... After two loading doses was feeling like we...
Don't think it's the iron sups causing my nausea... Didn't take one today... kinda forgot. And still threw up. In fact, I didn't take a lot of my usual meds/supplements today and it happened. GI on...
I have some light acne outbreaks and some dry skin... Knock on wood, no hair loss. Three infusions in....
I tanked last night - jinxed it. Oh well. Today has been good though. Only had one iron supplement instead of two... debating taking the second or not. That has been the only difference in medication...
Ya, it's the rare, untreatable cancer in 'young, adult males' that scares the bejesus out of me. I know there are always going to be risks and side effects with drugs of this nature - and I've always...
"Sadly, in Canada there are more Tim Hortons then Starbucks." I have never heard anything more offensive. I'm currently flaring and have cut out caffeine entirely. I was never a coffee drinker - I do...
How did you feel about taking Imuran and having Remicade infusions simultaneously? I'm taking the steps towards making that happen, but am still undecided if I want to follow through due to the side...
They are OTC pills, just as recommended by. Also, if I could get a prescribed pill for this, I would prefer it, as then my drug coverage would take care of it instead of paying out of pocket. Good to...
Also for the record, I have been relatively nausea-free today! I front-loaded my meds this morning instead of spreading them out so much... ...and don't want to jinx it!...
Appreciate the support. He suggested doing and IV iron infusion if this keeps up... I'm going to stick with these supplements a little while longer. I'd rather not have to go to the hospital if it's...
I'm taking an oral iron supplement, twice per day, called 'PALAFER' -- doctor prescribed....
Because my levels are low. Somehow got lower even while taking the supplement - no bleeding, or minimal if any. Thanks Q...
Wait - that's not 100% accurate, I've also tapered my Pred over the last week. Only by 5mg... and I have yet to have any adverse affects from tapering or any great affects from the steroids at all......
It's strange because the biggest variables have been whole wheat bread, added fibre from Metamucil, and then the third loading dose of Remicade. Everything else has remained pretty consistent the...
Thanks!...
Dealing with intense bouts of nausea of recent. Looking for preventative measures or any advice... Here's the scoop: Just had my third loading dose of Remicade (Thursday, May 30)... Taking iron...
Are you on Imuran and Remicade? What is your experience with that? You started Imuran first and then they did Remicade to follow up?...
ScienceGirl - I just had my third loading dose and feel the same way. "I tend to get very bad fatigue both as a symptom of colitis AND as a sign of healing. I'm going to assume that I'm tired because...
Sorry to hear this - it's a pretty tough thing to wrap your head around. "Things are improving, although slowly, but when he does have loose BMs they are at night which means he isn't getting a lot...
I was instructed to avoid echinacea at all costs while on Remicade. Anything that directly affects your immune system like echinacea can be harmful apparently....