Whoa, dude, calm down! LoL! I said "alot of people who get those surgeries (i.e. BCIR) are people who are unhappy with their ileostomy or j-pouch". I didn't say that alot of people who get the...
Thanks, Pro! I appreciate it. :-) I think whatever type of surgery a person chooses is highly individualized and personal. For me, the BCIR is the best fit for what I am looking for. There are only...
I would encourage you to look into the BCIR and k-pouch surgery options. A lot of people that get those surgeries are unhappy with their ileostomy or j-pouch. I am having the BCIR done on the 28th as...
Hey, hateuc - sorry, I just saw your question! Yes, I've been seeing a lot of improvement! My diarrhea, blood, and mucus are gone. Granted, I'm using Rowasa enemas, steroid enemas, fecal transplants,...
I've never heard anyone mention that mesalamines hurt the bacteria from fecal transplants. I believe I did read somewhere where someone said that steroid enemas might make it difficult for the...
I get my prescription meds (Asacol HD) from a Canadian pharmacy. It's soooo much cheaper. I was in the same boat as you - decent insurance that refuses to pay for Asacol HD or Lialda....
Just ask for Asacol HD 800mg, that's what I did with BigMountain Drugs with no issue. And I just told my doctor that I send my prescriptions into a mail-order pharmacy to get a discounted cost and...
My dad is my donor and I felt completely comfortable with not doing the testing. He doesn't have any health problems other than high blood pressure, poops like clock work (the man is a machine), and...
It'd be great to have the option of doctors doing it for us, but sadly, I figure it will be a while before that happens thanks to the FDA's latest move to make poo a "controlled substance". Until...
I've been doing it myself for over a week and have seen a lot of success... If you can't find anyone to do it for you, just know it's completely doable on your own! Shoot me an email if you want to...
My insurance won't cover Asacol, so I order my Asacol 800mg from Big Mountain Drugs in Canada and haven't had any issues. Thank heavens for Canadian pharmacies!...
From my understanding, they say the 6-weeks thing because, as most pharmaceutical companies do, they rushed the trials to get the product to market. So in essence, they say 6-weeks only because they...
Ask away! No, I have not yet had surgery. But I have been researching my options for a few years as I was diagnosed with this disease at 12 years old and I'm now 29. After 17 years of dealing with...
I hope you can get everything under control with maintenance meds very soon! But if you do decide that surgery is the route you want to take, make sure you research all of your surgical options. Look...
LoL, men... Teaspoon. ;-)...
I believe it's most commonly found in the colon, but it can be located in the small intestine. I've seen references to people with the k-pouch and BCIR that have developed C diff after being on Cipro...
It's true that the only constant in life is change. No matter who we are or what challenges we face, nothing ever stays the same. All we can do is make the best decision available with the...
I was 12 years old and am now 29......
I started it last Wednesday and it seems to possibly be helping. Hard to say because at the exact same time, I started cortisone enemas, a robust probiotic, cut out dairy and sugar, and am eating low...
She is a nurse practitioner and she didn't say that it happened to every patient. If it doesn't for you, awesome!...
I spoke with my nurse practitioner today who was VERY upset about the whole Delzicol debacle and is just sick over the whole thing. She affirmed what I had heard that the new pill is just an Asacol...
I was concerned about the same things that suebear brought up and did some deep digging to try and find an answer. The BCIR has an extra step involved than the k-pouch that lowers the risk of valve...
Happy to provide the information! If I have to go down this road, I'd prefer to use the best dang lemonade recipe I can find with the lemons that I've been given. ;-)...
Thanks so much!...
So sorry you're going through this tough time. I was diagnosed when I was 12 years old (I'm now 29), and having this disease as child, and for so long, just plain sucks. I've been flairing recently...
It's an inflammation of the soft cells... Usually, it's either caused by strep or staph. It can spread really fast though to the rest of your body and cause blood poisoning, so I have to take...
Using a neti-pot on a regular basis will help keeps sinus problems at bay as well, and it only takes a few minutes everyday and is super easy. I've heard the z-pack antibiotic is one of the least...
I've been thinking the exact same thing. I wish I could talk to the author of that article to ask him what he thinks... I know that after my grandfather had a total colectomy, he developed allergies....
Oh, they can still deny us for our pre-existing conditions. Happened to me a couple months ago. Leave it to a politician to word is just so you fall for the line... The truth is, if you're looking...
So sorry you're dealing with all this. It can definitely be overwhelming at times. You may want to search the forums for discussions on "resistant starches". They are supposed to be good for us and...
If you don't mind my asking, what did you use to filter out the "bulk" from the donation. A sifter, maybe? I'd rather not have to put someone else's chunks up my bum (not to be krass). ;-)...
You'll have to forgive my lack of enthusiasm for having the FDA claim sole property of this method of treatment considering most of their high level officials now worked high level jobs at Monsanto...
I had a family member pass away today from C. diff. because the doctors were too dense to consider FMT (and my in-laws are too passive to raise hell) and instead, just kept prescribing super...
Wow......
I'm glad to hear that you are on some meds, feeling better, and that baby is developing without problems! I would caution you not to be too hasty in deciding right now, or even soon after you have...
imagardener - I will definitely be watching to see what they do with Asacol HD when the patent ends this summer. I'm hoping they take the high road and let it expire... And yes, it's so not right...
Did you have to have your doctor write the prescription stating that it was for the generic version of Lialda? Or did they just write the prescription for Lialda and you told the online company to...
Thanks, imagardener! Our insurance has recently changed and Asacol, Asacol HD, and Lialda are not covered under this plan. My monthly maintenance meds of Asacol HD would cost us $600. That's...
How have you gone about asking your doctor for a prescription? I am on Asacol HD 800mg, 3 tablets twice daily. I want to get regular Asacol from Canada, so when I asked my doctor for a written...
This website gives a running list of clinics/practioners that perform fecal transplants for c. diff. and other bowel problems. Hope this helps! http://thepowerofpoo.blogspot.com/p/clinics.html...
I'm going through something similar, Amy. I definitely feel for you. My husband (a teacher) and I moved to another state and the school system's insurance that he is now working for does not cover...
Got sick at 11 years old, officially diagnosed at 12. I am 29 now. Looks like I'm the youngest diagnosed here so far... Woo hoo. LoL...
I totally understand where you're coming from on that procedure, Joanna. When I became sick at age 11, they did a barium enema on me which sounds like what you are describing. I've had two children...
I just read an article stating that some patients on mesalamine have experienced heart-related hypersensitivity such as inflammation of the heart muscle and inflammation of the lining of the heart. I...
I'm so sorry about your diagnosis, especially during a time that is supposed to be so happy and stress-free. But don't lose hope or get down. I've had this annoying disease since I was 12 years old....
Nice to see another West Virginian, Dr-A! I recently moved back to the Charleston area. I have an appointment next week to get set up with a local gastroenterologist. I've heard good things about Dr....
Did you look around at the Facebook group? The man running it did at home fecal transplants for his wife in September of 2010, using him as the donor. And to this day, she's still in remission. He...
I just read on the Facebook group "Fecal Bacteriotherapy is the Bomb" that a GI doc from the practice, Jackson Siegelbaum Gastroenterology, in Harrisburg, PA conducted a fecal transplant via...