Good luck, I hope things turn out well for you, whichever route you and your docs decide to go down....
Thanks for the advice. So far, the pills seem to be working, at least I think so. May need to give it a little more time. It's something I will monitor closely though. ----- Doc #2 called me this...
Great info, I really appreciate that insight. My doc said I should know after a week or so if it's working, but I'm assuming the easiest way will be for me to get another round of blood work done....
This is a good post, thanks. Butt burn/irritation/pain has been one of my biggest complaints from the beginning. My skin heals and then breaks down again constantly. I have the same complaint...
It sounds like it man. I know you'll make the decisions that's best for you and your family. I did speak with my original doc yesterday. Doc #2 wants to also biopsy my skin to make sure nothing...
Not butting in at all. I'm hoping to get as many opinions as possible. I got used to the whole public toilet thing for the most part, though I always tried to find the cleanest, most convenient...
I feel the same way in regards to the amount of upkeep I'm needing to do with each bathroom trip. I was in and out much quicker with the ostomy bag. I hope things work out for you, and you're able to...
I use Natural Vitality's organic liquid multivitamin. It's plant based, and I've never had any issues with it affecting my gut in a negative way. Can get it on Amazon for around $22-24, and it'll...
Similar symptoms as ByeByeUC: difficulty emptying, body contortion on the toilet, some loud gurgling noises going on in my gut, the feeling of something bowling ball sized wanting to come out of you...
Re: Questran, it's tough to say. I think it helps overall, but if I'm having skin issues, it won't help much, and I'll have to rely more on ointments (which I use after each BM anyway). You also have...
I had my surgeries with Dr. Whitlow at Ochsner in New Orleans. He's been amazing throughout my entire process, especially as I'm still having some j-pouch issues. I'd highly recommend him to anyone!...
Yeah, I've gone that route as well, sadly. It's not a way to live, though. I just read through your other thread; it seems we have some similar complaints, some different complaints. At least I know...
In regards to the origination of the pain - sometimes yes, sometimes it starts from my midsection. So it varies. I believe your theory may be correct. I had similar pain after my first surgery, but...
I know my title may sound pessimistic, but I'm trying to remain as positive as possible. At what point do you give up on your j-pouch and go back to a permanent ileo? I'm 13 months post-takedown and...
Surgery will be on Tuesday, July 7th. Doc said we should know after a month if the surgery is successful. I should be mobile after the surgery. Hopefully this will provide me with consistency in my...
I had my CT scan done a week ago today. Got there 2 hours early to drink the contrast. When I get called to the back, I get a, "By the way, the radiologist ordered rectal contrast as well." -_- Cool,...
Yeah, I've been using a lot of Calmo, it just doesn't seem to always stop the issues, unfortunately. The Lidocaine has been doing ok, helps more I believe. But I can only apply it 4 times per day,...
Hey, here's a quick update: I spoke with my doctor yesterday evening and explained what's been going on. He prescribed me a lidcoaine 5% ointment to try, so I'll give that a shot. Also said we could...
Oh, and yeah I've used the foam for some time now, I guess since close to the beginning after takedown. It's possible it's not doing enough of course. I try to be as thorough as possible, but I'm...
I'll look into the bidet! And I'll also try the cotton ball trick. It wouldn't surprise me if there is some leakage there because I do still have nighttime accidents, 1-2 times per week. I try to...
Yes, Crohn's was eliminated. I don't have any issues that I'm aware of in my small intestine nor anywhere else, if that matters. When I say ulcerated, it's on the surface of the skin (anus and rectal...
Hey, I'm almost 10 months post takedown after my 3 step proctocolectomy. Since the surgery, I've had off and on issues with burning, which is I know is normal to an extent. I've also had some pain,...
I agree with InSoFla, the OP seems to have gone directly down the meds route. Other than prednisone they have done nothing for me and my Doctor finally stopped helping me and would only talk about...
Very good information man, thanks. I plan to look at your link shortly. As far as supplements, I had been on a green multi-vitamin from GNC, but I haven't taken it since starting SCD, only because...
Sadly, Pepto and Immodium have made me feel uncomfortably constipated, to the point where I was straining more than usual on the toilet, causing my chest to hurt. Not a good feeling trying to get...
Just wanted to update everyone quickly: I ended up biting the bullet and went to the ER yesterday morning because I was so dehydrated, and the diarrhea just wouldn't stop. I got 2 liters of fluids, a...
That is a good idea, thanks! May try this tomorrow. I've been looking more and more into the Specific Carb Diet. Anyone here have any successes with it?...
As far as severity, I have pancolitis. I just looked through my notes again to check, and that's what I found. As far as a timeline for Humira, my doctor never necessarily gave me a specific one. The...
I don't believe the Humira has been given enough time to really take affect. It's just that in the meantime, I am fairly miserable with my condition since nothing seems to be controlling the...
I had a colonoscopy done at the beginning of January. My colon was pretty inflamed...not sure how to describe it on a severity scale. My GI doc has said before it's one of the more severe cases he's...
I've had a few episodes where I've run a low-grade fever along with having the chills and just feeling generally run down. One time, my fever remained high for a few days, and I ended up going to the...
Hi, I was recommended to this forum by a close friend of mine who also has UC/CD. I'm hoping to get some answers/opinions about my current situation. I'm a 25 y/o male who was first diagnosed with UC...