A resource you might find helpful concerning diet is www.againstallgrain.com. Wishing you both well....
It wasn't until after my 5th infusion that I felt I was getting into real remission. It lasted a few months, and then I started having breakthrough symptoms again between infusions. They moved me...
Thanks y'all....
Hey guys, It's been a long time since I have posted, but I need your advice once again. I started Remicade last August, and for a short time, it seemed to bring welcomed relief from a very serious,...
During my loading doses, I was seeing only mild, short lived relief. My doctor told me to be patient, and that the more infusions you get, the longer it will be effective in your body. In my case,...
So happy for you! Hope it continues!...
I am still in the loading stages of Remi, but so far it has been a miracle for me. I started seeing progress almost immediately. Good luck to you....
Have you ever tried Humira? A friend of mine was in a similar situation with her insurance, and she found that although the Remicade was so expensive, Humira was much more affordable....
I used Uceris for two weeks while I was waiting for my Remicade to be set up. It cleared up the bleeding really quickly (which in turn took away some of the tiredness), but did nothing whatsoever for...
I have used blue before with no trouble....
I haven't had one without anaesthesia either, and I did wake up during two of them and it was extremely unpleasant. However, I didn't have any of the oral meds you discussed on board at the time...
Me.... Remicade...
When I am flaring sugary drinks do make my D worse....
UC-Mama, bless your heart! I have children, and I feel your pain!! Talk to your doctor about biologics!!! I recently started Remicade during the WORST 16 month long flare and it put me in remission...
Hi and welcome. Like Andrina said, unfortunately, there is no cure for UC, but it can be managed successfully. It sounds like the inflammation is limited to the lower portion of the colon, in which...
I'm always at my worst in the Summer. In the beginning, I would flare in the Summer, taper off in the Fall and then be fine until the next Summer. Now, unfortunately, it's year round for me, but...
Left side means immediate trip to the restroom for me....
How long ago was your last infusion?...
Hope you are seeing improvements soon!!...
Just curious for those of you who achieved remission through Remicade, did any of you develop any infection that required antibiotics while being treated with Remi? If so, how did the antibiotics...
Good luck with the Remi tomorrow, Josh. Keep us posted on how you are doing!...
Whoop whoop Red!! How long have you maintained remission with the Remi?...
I can SOOO relate to everything you said. When I am flaring that badly, and have to go out, I would wait awhile after waking ( get up early as needed) and get all the morning business out of the way,...
I sincerely hope you are doing better soon. Take care!...
Thanks for the responses y'all. @Psudoc, I hope your hair comes back more beautiful than ever! Josh, good luck next week with the Remi.... fingers crossed for you! Science Girl, thank you for your...
I notice significant gum tenderness when I am flaring at my worst. I have often wondered if it was UC related or not. I tend to think it is....
That is interesting Liz. I never thought about it from a malnutrition standpoint. Thanks for the input. :)...
Hi guys... Been in a HORRIFIC flare for 16 months. My various treatments listed offered little to no relief during this time, but I am so excited to say that after my first Remicade infusion on...
The heat always seems to make me worse for some reason. My first flares would always begin in the summer and taper off in the fall, with the exception of the current flare which began Spring 2012 and...
Feel better Josh!!...
quincy, The only ingredients were the flour, organic butter, baking powder, salt and buttermilk. I used unbleached all purpose flour several times with really no problems. I used the whole wheat...
I didn't know that InSoFla.... makes sense. It may be a gluten sensitivity after all. :)...
I am trying to eliminate wheat from my diet... not because of gluten per say. My GI tested me for Celiac through biopsy and it was negative. However, I am convinced I am allergic to something in...
I'm 39, and I have always had bathroom symptoms during my period even before developing UC (frequency, loose stools). Since UC, my period sends my symptoms into a tailspin. My doc said it is due to...
Good to know. Glad you are feeling better!...
I think they need to step up his treatment if he is seeing no improvement on the Pred. Has he been on 40mg for the entirety of the last three weeks? My GI started me out on Mesalamines, later adding...
Good luck to you Rabbit! I hope you see rapid, positive results!...
Thanks so much Andrina!! :)...
Congrats! Hope it continues for you!...
[quote="journey2health"]My remission is measured by the ability to pass gas without any wet surprises. LOL!! I do the same!...
Welcome simplified; as a mother, I am heartbroken that your son is dealing with this. Hoping you will find what works for him and he experiences relief soon. I applaud your efforts. Best of luck!...
Josh I hope it gets better for you soon! Cute name for your pup!!...
Thanks for the post. Happy to hear you have found relief!...
@Madcat.... when you finally went, was it back to normal the first time, or was it sort of a process?? @iPoop, I know exactly what you mean. Sometimes I think this UC has made me psychotic when it...
Thank you Liz. Yes, I thought it was odd that they didn't too, but she did say she would be sure to premedicate me next time. I think I am going to stay on the Zyrtec until my next infusion....
I had my first Remicade infusion yesterday, and I am shocked that it is 2 pm and I have not pooped ONCE today! This is amazing. Is it strange that I kind of want to poop to see if it's going to be...
I relate to everything you said. I was thinking this morning how nice it would be to go through the day without thinking or worrying about poop! Hope you find relief soon....
Same here, GI instructed to continue other meds as usual....
You should ask your doc for samples. My GI gave me a enough for one week, then my GP gave me enough for 2 more to take while waiting for my Remicade to start. After 2 weeks on Uceris, I have to say...