Anyone updates on people taking this? Do the doctors in Germany prescribe it as treatment if it works well then?...
No, but I take adcal and curcumin as supplements....
I have had ulcerative colitis since 2007. Originally I only needed asacol (mesalazine) which worked for about a year or so, then I started having flare ups. Since then, I've tried prednisolone which...
Has anyone here had a virtual colonoscopy in the UK? If so, could you tell me your experiences please? I specify UK as the ones in America seem to take 20 seconds whereas the ones in the UK take...
Thanks, will do!...
Ok, but general anesthetic is different to sedation. Sedation just makes you drowsy, anesthesia puts you out whether you fight it or not....
Yeah, I think I'm going to have the sigmoidoscopy there with sedation and painkillers (hopefully they work), then a virtual colonoscopy and then change hospital. I still have to wait for my...
Yeah true....
No I didn' but I'll probably have the sigmoidoscopy in a few weeks then a virtual colonoscopy. They might have to wait though cos I'm flaring since I came back from holiday, though it might be cos I...
Sedation hasn't really worked for me. I think it's the adrenaline keeping me awake - what do you reckon?...
Thanks! Cos I had a sigmoidoscopy before with just sedation and I didn't fall asleep, just was a bit out of it but felt everything....
Is it painful to have a colonoscopy when the bowel is quite inflamed just with sedation and painkillers? Or do the painkillers work?...
I know this is a very late reply but thought I should anyway! How did the biopsies go? From what I've heard, most people have at least one polyp anyway and they take a few years to turn bad but best...
Oh dear, you just feel sick or? I seem to have gone back to a dark liquid...maybe that was just the French soup. Anyway, had the last of the citramag and have to be at the hospital in about 3 hours....
At the beginning I had semi-formed stools yeah. But it's normal to end up with clearish liquid? Don't worry. Just do what I did. Small sips with pauses. Or sip with some water at same time to mask...
Thanks. I should probably have some diarolyte (electrolyte mixture for diahrrea)....
Just had a quick google. From the few hits I've seen, only some people have had a similar experience to me. I think citramag is gentler than other laxatives as I'm going like every half hour and...
Oh that didn't mention that on the information sheet I was given! I'm gonna have a French onion soup (without the onion), hopefully that's ok! Another thing, I have finished the pills and mixture...
Can you drink lemonade for example? I feel a bit sick now :( lemonade usually helps me. Jello? On my sheet it says I can't eat any solid food. I'm in the UK lol....
Ok cool. After taking the mixture you can still drink other clear fluids, not just water, right? I take the first dose of citramag in 10 minutes....
Ok thanks :) I already drank like 8 cups of liquid this morning and still drinking so hopefully should be ok. Haha ok. What stage are you at now? I'm just waiting for the citramag to cool. It...
Don't tell me that, I have to drink the citromag in a hour! lol My uncle has had a colonscopy and he told me it's better to sip the mixture rather than down it/chug it. The citromag says it's lemon...
Thanks so much for your reply! How much do you go to the toilet on average? Like 10 times? Do you drink while on the toilet? lol For some reason, Americans seem to have to drink like a gallon of the...
Can I just add, I'm having my first colonscopy on Wednesday too cept my prep is different: 2 days before, only selected foods from a list allowed, clear liquids. Day before, have big breakfast/lunch...
Thanks for your story. I'm sorry to hear you were hospitalised but glad to hear you're fine now. Prenisolone helped me when I was really bad too and I've a lot of flares, mainly mild to medium. But...
I know. It's just been a silly dream of mine. Yeah, I'm still studying (until they kick me out for lack of attendance due to illness). Are you?...
Ni hao, glad to hear you are near remission. Oh dear, that's not good. Probably not a good idea for me to go I guess. I'm an amateur martial artist and I was thinking of going to study kung fu with...
I was thinking of moving to China for a while for a different way of life and studies. I assume the standard of living is not as high as western countries, so I was wondering how people with UC cope...
I think that's true to an extent, cos I know I could become fluent in Spanish without a degree. But then again, many good jobs ask for a degree with specifying which one I guess because they think...
Yeah I agree I need to get it under control asap to have a normal life again, however, I will try all the drugs/herbal remedies I can to avoid surgery. I'm gonna try some prickly pear fruit extract...
I've tried salofalk which works sometimes and sometimes doesn't. At the moment, they haven't been working so I've stopped using them....
We have a lot more Spanish speakers now (though not comparable with the States) since the crisis where Spaniards have moved here for jobs, but they're mainly located in London. My parents have...
Generally here in the UK, universities don't allow/offer distance (online) learning, but there is a dedication university for it. However, the uni I'm at, it'd be like going from Brown or Dartmouth...
Ahh ok. I hope it's not a big needle cos I tried an experimental treatment where they put 2 big needles in each other and I felt so faint when they went in! I'll my doc about infliximab next week....
I know it's dangerous, but I try not to think about it as it's just a short-term, relatively quick fix and the docs ok it every time anyway. I'm glad infliximab worked for you. Was it hard to take...
I did put my meds in my signature but for some reason it doesn't show up :S I see a specialist at one of the best hospitals in London, but in the past I've been hesitant to start stronger...
Ah sorry. I'm from the UK. When I flare, it is usually described as mild. My ulcerative colitis is mainly on the left side and in the past I have used prednisolone to control flares which it is does...
I don't know if working for the government would make me happy, but like you say, I've heard they're more accommodating and it'd be fairly good pay. I wouldn't say I get my happiness from home, but...
I'm 26 years old and have had ulcerative colitis since I was 18. Since I was 19, I've been in and out of university trying to complete a degree but have consistently been interrupted by flares....
I've got some Prickly Pear (Nopal cactus) fruit extract but haven't tried it yet. Anyone had an experience with it? Hopefully it will help! Link for extract:...
Firstly, never stop taking your medications without consulting your doctor. If you're going to travel in Asia and are having a flare, I would stick to the big cities just in case you have any serious...
While on holiday, I sometimes take 1 loperamide a day to help myself. Yesterday I took 2 loperamide as I was going more frequently. Anyway, today I feel quite bloated even though I've been to the...
You mean diapers? I think I'm too proud for that haha. I'm only 25 so would make me pretty depressed to do that I think. I do wear 'pads' sometimes which help a little bit in an accident, but not a...
Anyone know where you can get medical marijuana in Europe, please? Also, how does it work in the States? Do you go the clinic and tell them your problems and they give you the MJ or do you need a...
So I'm due to go on holiday soon and I guess I'm flaring (about 4 times max, semi formed) with the main problem being that I still have urgency where I have to run to the toilet. I've managed this...
Ah ok. Weird feeling. Yeah, the first time I did it, I tried just putting it in a little bit, but then it nearly came out again and my doctor has since advised to push 3/4s of your finger in with...
Oh, wow, 25mg? How long do you use them for? Yeah, it's a similar combo I think. No, I never lubricate lol. I used to when I used other enemas sometimes, but not with the salofalk or suppositories....
Ah cool. Yeah, it's the same I think. I checked and anucort and prednisolone are both corticosteroids, whilst salofalk and rowasa are both mesalazine. Did it get you into remission and if so, how...
Does anyone take the pred suppositories in the morning with salofalk at night? My GP said it's ok, but my doctor at university said I shouldn't. Thoughts? Well anyway, I missed my salofalk dose last...
Yep. Soon after I wake up, about 9am-10am. I don't go too much, I guess. Like 4-5 bm per day, but it's the looseness and urgency that sucks....