Hey All, I have been doing great for past 6 months on generic mesalamine enemas made by Perrigo. Today the pharmacy refilled my RX with enemas made by Gavis Pharmacueticals. The ingredient list is...
Adding curcumin pulled me out of my second flare. Gave me a nice 3 month remission until a virus set me back. I still take it since I have seen the benefits firsthand. Currently taking 2grams/day of...
This makes my day! I know it will still be a while before it's available but at least the wheels are in motion now....
Update: Fever and rash are still here. GI said to stop the sulfasalazine, but didn't give me any other options for meds, so I have no idea what I'm supposed to do now. Frankly, I am concerned I could...
If I didn't have bad luck, I wouldn't have any luck at all lately... Started sulfasalazine 2 weeks ago. Instantly started helping my UC. Awesome! Until 3 days ago. Friday I felt extremely tired, had...
Started sulfasalazine 1 week ago, and noticed immediate improvement. Thought this was going to be a success, and that just maybe I could get into remission and have a break from this disease for...
When first diagnosed, I got into a 5-month remission with just Boswellia. It's good stuff....
I just started sulfasalazine yesterday. I am supposed to take 8 per day. After reading other posters suggesting to ramp up the dose slowly, that is what I am planning to do. I took 2 yesterday, so...
Yes he is thinking this is IBS, and I could see IBS causing mucus and an extra BM, but the tenesmus seems like a UC thing. I am not on any maintenance meds other than my supplements, as we have not...
Have been flaring almost nonstop since January. Got some temporary relief from cortenemas but those are losing effectiveness. Went to the GI, he was going to start me on sulfasalazine or Imuran, and...
I'm not on the LDN anymore, I need to edit my signature. I don't think it was doing anything for me. The formed stool is not particularly thin. When I had to collect the sample for testing, It was...
Current symptoms are occasional tenesmus, 1-3 bms, mostly formed but sometimes loose, mucus. No blood. I'm thinking that my UC was flaring, but the cortenemas brought the inflammation down and that's...
I know I should be on a maintenance med (that's what the boswellia and turmeric are for). I tried lialda and rectal mesalamine and flared despite both of those. That's why I went to the GI, and we...
So I have basically been in various states of flaring since January. Had a couple mini-remissions thanks to cortenema but symptoms always return shortly after weaning off. Saw my GI last week to come...
Don't get antibiotics, they could send you into a tailspin. You can get a nose spray with DMSO and iodine that will have an antibacterial and antiviral effect without much of it getting into your...
Sigh. So here I am at this place I have dreaded. Although I had a good run with the natural treatments they aren't cutting it anymore. Lialda and Rowasa have not been helpful either, in fact I'm...
I suggest trying Boswellia and Turmeric. Both have documented efficacy in UC without nasty side effects....
Well, maybe this is a blessing in disguise. It stinks that your symptoms are back and you have to deal with that, but now you can move toward surgery with a much greater peace of mind. Sounds like...
So I worked up the courage to try a cup of coffee yesterday. Haven't had one since my first flare almost 2 years ago, during which it was clear that coffee would send me straight to the bathroom....
I'm in that situation now. I have had 3 remissions since being diagnosed in 2011. The first lasted 5 mo, the second lasted 3 mo, and the third only 2 mo. This current flare has been going since Jan...
I suggest Boswellia and Turmeric. Those are my "maintenance meds" since I can't take mesalamines....
Anyone have success with slippery elm? If so, what brand do you use?...
Haven't been brave enough to try coffee since my first flare, during which I noticed it did aggravate my symptoms. I do fine with tea, and have 1-2 cups of tea per day for my caffeine fix. Would be...
I have been pondering this question lately. My case of UC, symptom-wise, is relatively mild. But each remission keeps getting shorter, and the constant rollercoaster has me mentally exhausted. I have...
Yes, a cold can certainly set off a flare. In fact I am experiencing that right now, I was almost in remission, then today I woke up with a cold and bam, symptoms returned this afternoon. Grr. This...
In my case, I originally only took boswellia and turmeric to control my symptoms. Then a virus caused me to flare right before we were leaving to take our kids to Disneyworld. Out of desperation I...
Curl, that is great news! How far into your FT's did you feel you achieved remission? I started flaring Jan 1st, did 8 FT's using my daughter as a donor in Feb, and it didn't help at all. Had to use...
I highly recommend Boswellia and Turmeric. Those are my "maintenance meds" since I can not take mesalamines....
Feels really low, like near my bottom...not sure what part of the colon it is. It seems like sometimes I can have these noises and nothing comes of it symptom-wise, other times it seems to correlate...
Well, nice to know I'm not the only one...do you guys find any correlation between the noise level and flares? I feel like my current flare is finally ending but the sudden increase in noise over the...
Ok, I just have to ask if anyone else has this. I get this mostly in the evenings after dinner, it feels like my colon is rumbling. It is NOT my stomach, it is much lower. I believe it is caused by...
Please keep us posted - Wellbutrin is next on my list of things to try, so I am curious to see if it helps you....
As for supplements I highly reccommend Boswellia and Turmeric, I have had good results from both. Also a high-quality fish oil. Good luck!...
This is my first post here...hope I don't offend anyone by asking this, but it has been on my mind a lot lately and I need some help processing my thoughts/options. Basic story: Mild/moderate UC for...
Try to hang in there with the diet...the first couple of weeks are the hardest, and then your body adjusts. I also didn't last long on the strict intro, but found that making sure to eat some veggies...
I just started cortenemas 5 days ago. From the previous posts I read on here they sounded like they would produce miraculous results very quickly. While I have seen some improvement over the last few...
Yes, I will be using an unrelated adult male donor. Hoping that will give me better results. Right now I am leaning towards using the antibiotics beforehand...if I don't, and the FT still doesn't...
I did a total of 8 infusions, and it did not help. I am planning to try again with a different donor in a few weeks, just trying to decide whether to do the antibiotics beforehand. I didn't do them...
So I did a DIY FT using my daughter as a donor, and it did not help me. In a few weeks I will be trying again with an unrelated adult donor. I did not do antibiotics prior to my first FT experiment....
Lialda (another oral mesalamine) made me significantly worse. I took it for 4 months and kept wondering why I couldn't get my symptoms under control. As soon as I stopped taking it - instant...
I highly reccomend Boswellia and Turmeric. Also make sure to get on a good probiotic....
This morning's bm was not perfect but definite improvement over yesterday, so I feel a little better about it now. I also am starting to feel like I am coming down with a cold, which always triggers...
In terms of natural treatments, both Boswellia and Curcumin are powerful anti-inflammatories, there is research to back both of them in the tratment of UC. I personally have found them very helpful,...
I did not do any antibiotics beforehand, have been on GAPS for 4 months which is very similar to SCD so hopefully that helped kill off some of the bad bacteria....
I am on day 7 of an at home FMT protocol. My question for those who have done it is this - did your symtpoms fluctuate throughout the process? The first couple of days things got worse, then I had 3...
Pinterest is a great source for gaps recipes, also many Paleo recipes are GAPS legal or can be easily modified. I am currently following GAPS and have recently started a blog with recipes if you want...
So I jumped on the FMT bandwagon today. Using my 6yo daughter as my donor, she is very healthy, never had antibiotics, eats lots of yogurt & fermented foods daily so should have good gut flora....
I have been on 4.5mg oral LDN for 6 months. Not sure if it is doing anything for me, but since I'm not having any side effects from it I continue to take it....
I highly reccommend Boswellia and Curcumin, they are powerful but natural anti-inflammatories and agree with what others have said about a good probiotic. Best of luck to you!...
Laughingduck- how much do you take of each?...