Uceris could be an interesting option for sure. I'm already taking Budesonide Enemas so it would just be along the same line. The only thing is that it might be too weak. Last time it took me 45 MG...
That's what i plan on doing. I am just concerned that i will have to wait two weeks before i can start taking the prednisone due to leaving the house for my infusion. Worried that i might be bleeding...
Hey , hope all is well and everybody is staying safe. So as the title suggests, I am in a pretty bad flare up right now and feel kind of stuck about what to do do next considering the circumstances....
@Sara Already taking the Vitamin D and Calcium. Debating whether or not to take the curcumin capsules ,Metamucil and Probiotics. The warning on the Probiotic was news to me as well. Last time i was...
I highly suggest not stopping Remicade. I was in symptomatic remission on it for about 6 years and decided to stop cold turkey due to my stubborn/paranoid long term health concerns. While i was ok...
Hey everybody! So long story short, i flared up badly about 3 months ago after discontinuing Remicade.I was on Remicade for 6 years after my diagnosis and was in symptomatic remission for most of...
Hey, so the weirdest thing happened in the last week. I got the flu and with it , my issue completely went away!! While i was sick i was aggressively trying to get better as soon as possible , so i...
Thanks for all your suggestions!!! will definitely be calling my GI ASAP to see what my options are , really really do not want to go back on prednisone , that stuff is a nightmare to say the least....
Hey everyone , its been a while since I've been on here and tbh it sucks to be back LOL!! So I've been on remicade for a little over a year(every 8 weeks,standard dosage) and it has been very...
Hey everyone !! hope you're all doing great!! Just wanted to update you all on my situation and give those of you struggling with this stupid horrible disease proof that things can get better....When...
Really nobody??? please somebody answer, im desperate for someone who has experienced the same or similar things that i am at the end of the prednisone taper...
Well im really not doing so great , i cant stop shaking and my muscle spasms keep occurring.... Is it possible it's because of the pred taper??? Again , has anyone experienced the shakes , higher...
Hey everybody!!!! So im currently almost at the end of my prednisone taper and did things completely by the book , i took my time at every dosage level and i am currently doing the 5mg one day, 7.5...
Hey, thanks for all the replies!!! You all have really given me a more positive outlook on the whole situation and I'm so grateful that this forum exists!!! If the time ever comes where surgery is...
Hey everybody , so ive been going through a lot of the Healing Well UC forum topics and im feeling really down about having pancolitis. Im just wondering if surgery is inevitable?? I have...
Hey all !! sorry i didn't follow up sooner!! Anyways i ended up going through with the Remicade and i have no regrets. I have accepted the fact that sometimes you have to take risks if you want the...
No i haven't been on anything other than prednisone and thats what i've been thinking as well. Its kinda strange that i'm going straight to something as strong as Remicade but now that i think of it...
Hey everybody!!! hope all is well!! Anyways im getting my first Remicade infusion tomorrow and im starting to get nervous about the whole thing + starting to question if i even need it!! I was...
Hey forum participants!!! so im still slowly tapering off pred at 35 MG curently and going to go down 5 MGs per week,. I should be starting remicade in the next couple of weeks and what can i say im...
Hahah im really really enjoying it!!! trying to stay away from foods with high sodium content though and drinking plenty of water. I will be starting Remicade in a few weeks as my maintenance...
So the Prednisone is really doing the job for me lately in terms of pain , bleeding and so on, but my appetite is getting wildly out of control lol.Thats not such a bad thing though because im pretty...
@Kazbern, Right i hear exactly what you're saying , i have a lot of work ahead of me in finding out what works and what doesent but im already feeling more motivated and positive with the help of...
Hey soystud, Thanks for the reply!! I think for the next couple of days or week ill see how i do with the low residue diet and then if i don't see results ill start with the SCD. Its just tough being...
Hey Kazbern, thanks for taking the time to reply and giving me some valuable information!! Will definitely bring up maintenance med options when i go back to my GI in 2 weeks , hopefully by then the...
So i've just been diagnosed with certainty and it turns out i have moderate Pancolitis. During the couple of weeks prior to my my diagnosis i was put on 40 MG of Prednisone which seemed to control my...