Hoping to hear others' experiences with the elemental diet...I'm not having much luck finding anything on the IBS board or through search. I have UC (7 years now) and was diagnoses with SIBO about a...
I started getting really bad foot cramps too for a while and it ended up being low magnesium levels, like Iamcurious said. Obviously you should be careful with adding in too much. What I did was...
I'm sure you've already made your decision but I wanted to reply because I feel like the paragraph above me is kind of making steroids sounds like the worst thing of all time. Granted they aren't...
Hi DJB, wanted to put in my 2 cents as the process you're going through sounds similar to what I ended up doing (although DBwithUC is totally right on with the "no roadmap" thing!) So first of all, I...
Ha! Holo, my brother was my donor...what he gets for beating me up when we were kids. We still have a good laugh about the whole situation every so often. DJB I just saw the thread you posted and...
Nana—thank you! That's smart I'm totally going to bring some ADA questions to my meeting. Miracles—interesting. So the prevpac antibiotic that you did for the h pylori infection (which I assume...
I was telling two friends about my FMT treatment last week and it got me thinking about all the funny reactions I've gotten when I tell people about it haha. These two were particularly fascinated...
Hi all—hope you're doing (relatively) well. Just wanted to pop in here to post an update. I was pretty active on this site mostly back in 2013 and got into remission from a combo of FMT, SC diet and...
Hi everyone, It's been a long time since I've posted here but I vaguely remember people saying they never hear back from those who've found what works for them. So, this is me saying hi from...
I've been feeling it for weeks now...just different little things that I felt long long ago when I went into my first big flare! Gurgly stomach, smelly and less formed BMs, irregular, just feel...
Thanks for the thoughts everyone. I ended up doing the second round 5 hours ahead of time because of what you said. Wasn't going to do it at all after reading these, but it wasn't clear after the...
Hi guys, This answer is probably somewhere else on the site, so sorry about the repeat thread. I'm getting a colonoscopy early tomorrow for kind of a check-in (praying for endoscopic remission!!!)....
Well, Doc I'm a huge advocate, so I say go for it!...
Thanks, embers and yes, I know...It's not going to be an easy decision to stop the rem if and when I decide to. I wouldn't consider it if I didn't get aches when I go to my infusions, so pluses and...
rb--So sorry about your son. My flare was about a year exactly, and I understand the times of hopelessness. It's a wonderful support for him that you're on here! gary--Here's my summed up...
Hi everyone, I haven't been on here for several months...maybe you don't even remember me. Haha. But I wanted you all to know that I'm still in remission since December 2013 because of FMT, remicade,...
Hmmm, Logos, I'd reeeallllllyy encourage you to email me, and I'll get you in touch with my dad. He knows more about FMTs than probably 90% of GIs out there and that's no exaggeration. He's helped me...
Has anyone mentioned a fecal transplant? It sounds like she might be the type of person who would consider that....
Hi everyone! I don't think I've had a vegetarian day for more than 5 months when I started the SCD. I am so SO sick of meat, but my doctor keeps telling me more protein. I used to eat a lot of black...
Thanks for all the responses, everyone! It's encouraging that I don't see anyone saying it will be terrible for me. Embers & ActiveUCer: Ha. Oh dear….I won't let gas deter me!! Delta, Eva: Thanks for...
Happy New Year everyone! After a 9 month long flare, I went for my first hike today! Well, I took a break at every switch back, but I finally breathed in fresh air and actually SMILED at other people...
What about making it thicker? Putting less in? I think it's more important to leave less in longer than a lot for only a few minutes. Do you lie on your left side with a pillow between your knees?...
Max, That's not what I was thinking. My suggestion is just to do a cleanse before your first transplant…not between the first two. So if you do a natural cleanse, just do it like you would a...
MaxMillian--I'm also glad you're giving this another try! My FMT process didn't work for me until the SECOND cycle I did. I hope that will be the same for you. I do have a piece of advice I think...
Ignore my sig, by the way…outdated....
Hi Qvist, I, like Tornado, reduced gas and bloating being on the SCD. I've been on it three months. When I started I had pancolitis and my doc said I would get surgery eventually. I'm now in...
Katmom--thanks. No antibiotics for me. CMark: Mine is on my face and neck, too and I have really dry skin lately (although that's always been an issue for me). I've only been on Rem since February,...
Has anyone ever gotten a rash (possibly and allergic reaction) from Rem or Asacol? I really hope you all say no......
delta, sorry the first one was tough...I didn't have any by colonoscopy, but I remember my first, like, 8-10 infusions sucked. It will get better I think. Hope you guys like it as much as I...
Hi all, Wanted to let you all know that the two cycles of FMTs I did still seem to be working. Not in total remission yet, but I feel like I'm really headed down that path. I hope I get back to my...
I totally understand what you're saying about independence. As a matter of fact, I was in basically the same situation as you...Rem worked for a few months so I went back to school and got a job, but...
This probably isn't really what you're looking for in a suggestion, but in all honesty, I really think you should quit the job. It's just one more thing for you to worry about and deal with--that can...
CMark--I'll look into her almond flour. I usually buy Bob's Red Mill because I'm from Portland and like that it's local, but I get what you mean about the graininess. It's more the taste of all the...
Whining is absolutely acceptable every once in a while. This prep is already super stressful and having health issues just increases anxiety. I hope you're getting through it. I only finished about a...
CMark--Awesome! I'll look through those at the bookstore tomorrow. And thanks for the link. I've done A LOT of cooking lately....
That makes sense, banana. I guess I just worry about it so much because of the potential of another flare up. Good lord, this disease has made me so paranoid. Bloom, I forgot about kale chips! They...
Oh, and I should add that I've only been on the diet for about six weeks. It's helping a lot and my symptoms have gotten a lot better recently, so if that makes any difference for the parsnips and...
I was looking through some awesome parsnip recipes the other day to replace my need for potatoes. Realized I had never seen parsnip fries/chips/recipes on any SCD sites, so I looked it up, and to my...
Larabars, dried fruit, granola, nut butter and apples/bananas. Also, I might just buy a whole cooked chicken when you get there and pick off of it for the week....
Hey there, Really hope you don't have to drop out--I'm in a similar situation and have really had to work with disabilities office to keep my student-self afloat. Here's my condensed story: Big flare...
Hi CanOpener, I don't really have any useful advice (I don't think I'm experienced/informed enough with Rx meds) for you, but I wanted to respond to "I'M SCARED I'M SCARED I'M SCARED I'M SCARED" I'm...
Ha bananagirl, that's exactly what I do. Someday our hundreds of wishes will work! Thoreau, I will pray for you and your house! Let us all know the good news when you sell, and congrats on the...
I'm so glad to hear that, fruitgirl. Of course he was worth it, and I'm sure I'll remember that you said that years from now when I actually need to think about it....
I'm only 21 and I already worry about this. I want to have kids if/when I get married, but even though it's such a long way off, the idea of raising a baby while being completely sick terrifies me. I...
Said a prayer for everyone on here last night...Felt called to let you all know that many prayers and good thoughts are coming your way. If anyone has any specific prayer requests today, please let...
Ha gary a little harsh.... joeyp: I know it doesn't seem like your symptoms are serious, but going 4-6 times a day isn't even close to normal or remission. You need to add something. I really wish I...
I've been doing some extra research on this. For anyone interested, I found a FANTASTIC recipe in Breaking the Vicious Cycle. High calorie, easy to digest, and it hits the spot more than anything...
Andrina--yes, I'm flaring and the sig is pretty much up-to-date. I guess that's true that I probably couldn't gain weight anyway...that makes me feel better. I just panicked yesterday on that scale....
I re-started the SCD a few weeks ago. At the time I was in major gut pain and throwing up every other day. I was about 108lbs (my healthy weight is 125ish). The reason I went off the diet the first...
So sorry to hear that it's not going well. I would have been in shock if my high school sports/health were taken away from me like that. Remember, this is just one piece of his life (a huge one right...