I was scared to get on Imuran (known you're stopping this one) but my dr put my mind at ease. He said yes there are scary side effects to these medications but you are much safer taking these, then...
After my first loading dose of 4 pens, I woke up the next morning with no stomach pain (I had been waking up daily with it), but by the next day it was back. I think it was just the initial shock to...
My GI doctor is really good about calling me back same day I leave a message. His nurse has even contacted him about me while he was on vacation and he got back to her, same day. I don't always agree...
I wish my doctor would take this route. Every appointment I ask him the time line on how long I'd be on both Imuran and humira together, and he always tells me we'll eventually get off Imuran. But...
I have a story almost exactly like andrina. I am about 5'2 and before uc the most I ever weighed was 95 pounds, I was always told I need to eat and I was way too skinny. But I did eat! All the time!...
I used the prepopik for my last colonoscopy. I only used one other prep and that was the dreaded gallon, I don't remember the name. But I told my doctor I REFUSED to ever use the gallon again and if...
Franny- yes I've learned to not read the horror stories online because they make my anxiety worse! Before my first colonoscopy I read horror stories, bad idea. I was so nervous I was shaking so hard...
DB - yes my main concern is figuring what is causing it so I can try to fix it or make it better in the least. I never heard of the drug you brought up, but I will research it, thank you. Cupcake-...
I should add this 6 month round of steriods was my 2nd round. My first also lasting 6 months but in 2013. Don't know if that also makes a difference. Edit: And we have talked about that, but my...
In June of 2015 I went into a horrible flare that could only be treated by steriods. I was on them for 6 months. Within those 6 months I suffered a broken toe and 2 stress fractures in my feet. I...
I've been on humira for almost a year now and I love it! It is a painful shot but I take a half of a percocet about 45 minutes before I give the shot to myself and I don't feel it! It's been a life...
My post to you might be as long as yours, so in advance to you and whomever else reads this, I am sorry. I do not have enough experience with this disease to give you right or for that matter wrong...
well i finally passed out around 4 am this morning. probably more from boredom than my mind actually shutting up and going to sleep. I've already started tapering down on my pred, i started at 40mg...
okay so some of you may have seen my "might have cheated" post earlier where i explained i cheated on my "flare diet" with some very very bad foods. yes i have cramps now and a tiny bit of blood in...
well beets and greenbeans are okay for me. i can handle those quite well. its the sunflower seeds, vinegar, coke icee and slim Jim that im not sure my tummy is ready for. I've never had a bad...
okay, i may have cheated a lot. on my little "flare diet". yea, my colon is gonna hate me sometime in the near future. tonight, not only have i ate my dinner, which actually kinda stuck to my diet...
i am just so tired of the boring flare foods lol i was desperate to find some safe foods that didn't taste like a paper napkin lol. and i love seafood so what better food to try! i even left with...
i gave my salad to my dad, im not brave enough to try salad yet lol my boyfriend got some garlic shrimp that looked amazing! i wanted to reach over and steal some but i didn't want heartburn lol....
buffalo wild wings naked tenders with spicy garlic sauce. oh my goodness!! i should stop looking at this post, it makes me sad lol. why do the worst foods have to taste the best?? *sigh*...
speaking of pizza hut, i miss those boneless hot chicken wings! omg, they're great. i miss spicy anything really! im from new Orleans, we put hot sauce on top of hot sauce for crying out loud lol...
thank you guys. it feels great to feel great, even if it is short lived! lol r, I've never heard of IVIG before. what is that?...
mcdonalds big mac! i haven't officially eliminated mcdonalds from my diet, but been having a flare and haven't ate things like that. fast food will be one of the LAST things i attempt to add back...
totally out the blue, but i know us UC'ers are always looking for new foods to eat. well, maybe its just me lol i don't usually watch what i eat but since im flaring right now im trying to stick to...
well since this flare, pasta has been my go to food. i would boil some noodles put a tiny bit of butter and a pinch of salt, i would also do the same with white rice. they seemed starchy and seemed...
another update: haven't been on here in a couple of days. that mostly being due to just not feeling well enough to do so most days. let's see, things that have changed...well i feel great! (: Today i...
thank you quincy! i hope the same as well. i have always wanted to avoid pred but i knew at this point i really had no other option. i read a lot on here about people tapering off of them. i am on a...
I've had nausea since i started this flare about a month ago and at that point i was between medications so i wasn't on any. so for me, it couldn't have been side effects of medication. when i did...
when i was in school and times when i was able to work, Wednesdays were the worst for me! probably because Monday and Tuesday would feel like 5 days went by then i'd wake up Wednesday and think about...
update: i went to the doctor yesterday and he gave me two options, send me home with a prescription of 40mg pred or he can admit me to the hospital to take the pred there. but he said if he did send...
my gi has told me those sharp wave of pains is spasms. its very unsettling though so i know what you're going through. he also told me that the cramp medication he prescribed me would help with the...
also, what do they do for you if you're admitted due to a flare. besides give medication through the i.v to move things quicker, what else do they normally do? run tests? i know every doctor...
thanks you guys. my appointment is about 3 hours from now and it seems like time is going by so slow. its just hard to be positive right now when i know that my gi is doing what he can for me at this...
i had an appointment with my gi Dr for next week to continue to discuss what's going on in this flare but i won't make it till next week so ill have an appointment today. for the most part my...
soy, so sweating can be a side effect of flaring UC ? that's interesting. thank you!...
ive looked on webmd.com and drugs.com and it wasnt too helpful. id rather personal experience stories better than all of that anyways. anybody who has taken uceris, do you sweat terribly? not always,...
in regards to your last question about the food, in my opinion the less you put in at one time, the less you'll put out. maybe a "normal" size meal is too heavy on your stomach. im not 100% sure my...
well im currently on uceris. i have been for about 2 1/2 weeks. i would like to think my two "mild relief" days can be because of the uceris but because after i have a not so bad day( which is mild...
yes c.diff is one nasty ***** ! but the last time i had c.diff i was in unimaginable amounts of pain due to the severe inflammation. im in pain right now, yes, and it does keep me in bed most days;...
im always in touch with my gi. if i remember correctly we talked every day last week. he doesn't seem too concerned of my symptoms but he does insist we find the best medication for me (which i...
when i had my colonoscopy done in August it showed i had mild left sided UC. this whole month I've been flaring and it seems pretty bad with only 3-4 days of mild relief. i wake up in the middle of...
i get the same feelings. i mean when i sit and look at the big picture, i see clearly that my life is not over. but i do have days when in a flare that i feel "stuck" ill lay in bed literally all day...
i know for a fact food didn't cause my uc. my mother has it and it can run in the family. however, i also know that when im in a flare, there are many , many foods that i avoid. like spicy foods,...
that sounds yummie!!! might have to try that sometime soon. i absolutely love seafood!!!...
when im not in a flare i will probably never second guess decisions on food and am just gonna eat what i want to eat. but even if there's 100% proof that food has nothing to do with symptoms i would...
thanks everyone for such quick replies! like i said, i know not everybody will tolerate every thing the same but for a lot of people with uc things that are very spicy or milk products don't agree...
im slowly but surely recovering from (what i would consider) a pretty bad flare. but im craving sushi! cooked sushi of course, i never eat the raw ones! basically what im asking is if anybody has had...
im on uceris as well and i have horrible stomach pains. its a couple of inches above my belly button and it literally makes me cry. i ended up in the hospital Thursday night because of how bad it had...
Kat, well i thought it might be appendicitis, but the pain went away Friday, and has never came back. plus my white blood cell count wasn't elevated which elevated wbc is very common with that. but...
this past Wednesday i had posted on here about how excited i was that for the first time in almost two weeks i was having a great day! so great that i was actually able to get out of bed that day and...
notsosickly, yes i did very much appreciate the little things today. its good to have someone to fix your food for you but only when you're actually able to fix it on your own and they do it as a...