Update on my end: going well with prednisone, since taking it all in the AM sleeping through the night until at least 5A each day. No flare symptoms. Going to start taking Lialda once new insurance...
Have you tried any more long-term diet changes? It may take your body more than a couple of days to adjust to the elimination of foods that are causing issues. For me, totally eliminating all gluten,...
@juklie will up my spinach intake and pick up some prunes to try an help. Already ratings a ton of fruit and veggies but yeah, pretty backed up and not sure what to do. Only one real BM since Thurs....
Definitely for me taking it all in the morning meant I slept the full night through for the first time since taking it, which was a week and a half ago. I'll see if the time of dosage change alters...
Still comes to $267 with my insurance with the manufacturers insurance? Wonder why. Will try another pharmacy and see if there is a price difference, otherwise just pray new insurance is better that...
@jc Thanks! Just signed up now and will bring prescription and the printed out temp card and see what kind of magic we can do. Really really appreciate your help on this!!!...
Checking in with an update here- had my GI appointment yesterday. Plan is starting today to taper to 30m of prednisone for two weeks, then to 20 then I see him on the 14th. I got a prescription for...
@scarecrow Thanks for logging back in with us and sharing your experience. It's promising to read that you've been able to use just a few natural remedies to stay in remmission! @julie It's...
Ugh, just got off phone with my oldest friend and found out she just had a brain tumor removed. Really puts everything into perspective. My UC, meds and food choices are not seeming so dire right...
@julie Down on prednisone road with me and @gary ... good to read that is helping you a bit already too. Did you stop the CCherbal? I kept at it for a few days then decided yesterday to quick three...
Hey all, just wanted to check in here again on the CCherbal. Good to see the board alive and read of more success stories. I had a major setback I've posted about on another thread and am on...
@jc CCHerbal did turn the corner for me and I reached near remission until the all time ultimate flare up hit last week like a bat out of hell. I still believe its a good herbal remedy but what...
@quincy I'm just wondering since this flare involved a lot, LOT, of blood and extreme cramping, symptoms I never dealt with before, if that means possibly my UC got worse and moved up the colon. I...
@gez Thanks for sharing your experiences with lialda and pred. Sorry to hear about the side effects you are getting with pred but hopefully you can taper off soon. @gary I firmly believe paleo is the...
Hey everyone. Had Togo on pred in desperate situation last week where I flared worst ever, lost 8 lbs in 5 days, bathroom every ten minutes, tons of blood, d... Made an appointment with a GI...
With my latest flare las week I was put on pred for the first time ever and it worked within a day to calm the flare. It was the last that I wanted to do but I was desperate and at the time it was...
@julie Giod luck. The pred helped me almost instantly when I took it last week. Today I took a few steps back though, have more cramping, d and blood. Trying to manage my emotions about it bc I think...
I'm in the midst of my worst flare, after having nearly reached remission with natural remedies. Still doing my old routine but now on pred. It was the last thing I wanted to do, but as you all are...
@julie So sorry to hear you are suffering more today. How fortuitous that you already have a GI appointment scheduled. I had tried pepto bismol when the last flare started bc I thought it was just...
Stress is certainly a big trigger for us UCers. My first diagnosis and flare was at the height of my stress for wedding planning. Second major flare was on my first trip back east after moving across...
Quick update: last two days faring much better. Appetite back, no cramping, no more bloody d. First BM in AM getting almost back to normal then about 2 loose stools within the next hour then feeling...
@julie Glad you found us over here, since I went off on a small tangent, which ended up an actual big one (I was really hoping it wasn't going to, but each day got continually worse) I just kept up...
@gary Thanks for sharing, I hope you find some steady level of relief soon. It's so hard to figure out what causes what and what's really helping and when. @sherbear That is a good recommendation,...
@OM thanks for in the input. I hadn't thought that it was the CCherbal that caused such a crazy reaction since it was after a month of taking it. I really think it was a lot of cheese, and I mean a...
@gary I think so, it's not the game plan I wanted but it certainly is what was necessary and what is needed at this time. My body was just shutting down at an alarmingly fast rate. I'm still going...
Unfortunate update to this post: my condition went from bad to worse the last few days. For three days, I wasn't sleeping, literally I had to go to the bathroom every 10-15 minutes and had a lot of...
@julie Great to hear, sounds like you do a lot of road trips like we do. Last few days on my end have been tough. I would not call it a flare because its fairly different than how I have felt in the...
@gary Wow, thank you so much for the reply. I hadn't heard of histamine intolerance but makes sense and I'll read up on that and likely pick up some DAO in case I do go down cheese road again!...
Been feeling good and not experiencing any symptoms but occasional mucous then Thursday things got really weird. First, had 6 very productive BMs in one day. I was happy thinking I was cleaning up...
@andrina Hard to make a recommendation, on my part, I was off my RX meds for a few months before I started it. I dropped my GI out of disgust for his general apathy on the subject and have not gone...
@ucslayer Wish you luck, know how awful that is being a slave to the bathroom to the point where it's taking over your life. I wish you the best of luck. Keep is updated on this thread once you get...
@ucslayer Good question, hard to say with any certainty. I added the inflama-GI before the CCHerbal by about a month. I was still flaring pretty bad when I started the CCHerbal and ha results in the...
@franny Good luck to your son and keep us posted! Sending healing thoughts across the pond....
@gary thanks for sharing your full update with us. I hope you are able to find a way to totall end your urgency issues and am glad to read CCHerbal has helped too. One other question I have for you...
@franny Glad it finally made it! I started with the recommended dose which is one pill three times a day. I was very careful to always drink a very full glass of water with it. First day I had a...
@franny I was MUCH worse off before taking CCHerbal, I was going - well running - to the bathroom 15-20 times per day with mucous, blood, diarrhea, it was horrible. I'm down to just having 1 or 2 BMs...
@julie I know what you mean, it is hard to manage all the pills/supplements and what goes with an empty stomach, before food, with and after! Good to hear you seem to still be having some progress...
@julie I find that stress can bring on more flare like symptoms. My recent one hat I think I am just about out of got horrible when back home visiting my parents and in laws...go figure! Feeling...
@julie Congrats, great to hear about your progress! @franny first time I bought inflama-GI at a health food store back east when I was visiting home. Second time from amazon. Hey don't sell it...
@franny hope it comes soon! @julie glad to hear you are having good results. I did the same thing for our road trip this past week, I made a few snacks beforehand that would be diet friendly so I...
Thanks for checking in Julie and great to hear you are having some goo progress. Keep us posted as you continue with your supplemental treatments. What great news!...
@gary keep us posted. We arrived back home finally after a road trip that started on Wed. One of my supplements was delivered he day after we left, inflama-GI, and its not here. I am trying really...
@gary Sounds promising! Keep the updates coming. Just ended up eating a plate of sweet potato fries. Hope that doesn't do me in, they were so tempting. This road trip and its temptations will end...
@garyl Hope you will soon find done results, if not, then with new medication your GI prescribes. @julie Sorry to hear the headache is back, good to hear there is less blood. We live at 8500 ft but...
@julie I take it in AM with no food then the other two times it varies. I always take it with a very full glass of water. I had a headache the first day only and it has not returned. I am still...
@franny The inflama-GI is a powder I got when I was back east that had a bunch of herbs in it: turmeric, marshmallow, slippery elm to name a few. I just posted on another thread about my last few...
@garyl Thanks for keeping us updated. Your timing is smart to try the new herb knowing you already have a GI appt coming up. I hope you have some better results by then. I'm in similar situation, my...
@garyl Good luck! I had a headache the end of the first day that may or may have not been a side effect. Didn't experience it again. I make sure to take it with a full glass of water right away....
I'm on my first week of reaching remission without any RX medication (had taken them on/off since diagnosed in 2011). What's working for me right now is being extremely vigilant about what I eat and...
I buy organic fresh spinach and saute it with garlic and olive oil and it's really delicious and great as a side for any meal, even eggs when I was eating them (hope to re-introduce those soon...