I really appreciate all of your feed back! Everything that's been said makes so much since and I've talked to my husband and as soon as we can make it happen we will take a trip to mayo. I have been...
I will check out jpouch.org. Thank you! I have had Pouchitis often and lately we have treated with xifaxin. - 2007 - Leviquin, Flagyl, Ativan, Canasa, Hydrocortisone, Bentyl - 2008 – Metamucil,...
I have taken lomotil 2.5 mg 3x a day for 7 years. My doctors keep asking "does it even help?" It does a little. I've been on it so long it seems like its loosing its effectiveness but I definitely do...
My Doctor just prescribed me Imuran... Scared of possible side effects. I had a Total colectomy in 2007 and had the j-pouch and take down surgery in 2008. I have never achieved remission and have 20+...
Thank you for your insight! I do feel that original diagnosis never seemed quite right and surgery was basically an emergency and I didn't have insurance at that time. It's 4-6 something, inches does...
Thank you all for your response! I have had 4 different GI doctors... I have modified my diet and I do keep a journal with GI Buddy that I track all of my bowel movements, foods eaten and meds taken....
Wondering if anyone has any suggestions... I had 3 surgeries to have a my colon removed, j-pouch constructed and reconnected. Prior to this surgery I was told that when I'm healed the UC would be...