It’s been three years (April 2015) since my takedown and I still have so many issues. Bloating, gas/waste gets “trapped” above my ostomy site (scar tissue I assume), weakness, dizziness, faint...
I hope things work out for her soon. I know she is miserable. Poor thing. :(...
I had my second "digital dilation" of my jpouch during my doc appointment today and I can't help but feeling so violated. It's really upsetting. As far as I know it's a necessary step after the pouch...
I'm sorry your pouch didn't work out. That makes me sad for you. =( Oh! I don't know how I forgot. (Must be all the meds I've taken over the last year and a half. They mess with my memory.) My skin...
I hate you're having to go through this. It's awful. It's getting to be everyday now I have to change. I just seen the doc and stoma nurse. Nurse tried another brand of convex wafer and a piece of...
I'm literally losing my mind! I can barely focus to type this. I had my second surgery Dec. 9th. I now have a loop ileostomy. It's beginning to retract and it's causing my stoma to push stool under...
Thank you all for your replies. Very helpful. I'm on my way to Ohio now. My GI and surgeon don't want me to wait two more weeks for my originally scheduled surgery date. They said I'm high risk for...
Yes, I'll be getting the j-pouch. The biggest worry I've had is ending up with a permanent bag. It terrifies me but at this point it's more important to get back to good health. I want my life back!!...
Sorry it's taken so long to reply. I had another wonderful visit to the hospital for 5 days. GI is worried about my bowels rupturing so I think push has come to shove and the decision has been made....
Doesn't Psyllium Seed powder work like a laxative? Just what I've read. Never used it....
So, here's my story. I've been fighting this disease for going on eight months. Not long compared to some, I know. But I also know I don't want to spend the rest of my life in this shape. When I was...
Well, I had written a pretty lengthy post but lost my connection so it didn't go through. In short, I wasn't able to go to the doctor. I was too sick to get out of bed. I have another appointment...
I was not tested positive for CMV or Herpes or anything like that. I believe he's just going on a hunch that it might be a viral infection and is using the Acyclovir to treat it. The only symptoms I...
As far as the pet, I haven't done anything. He would be devastated if he ever had to leave his home. He's like my child so I could never in a million years get rid of him. I may have some type of...
Garylouisville, thank you for the post. I'll have my doctor test me for mono. NicCupOfTea, EVERY post is helpful and I appreciate every single one. While I was in the hospital last week my temp went...
I was tested for c diff several time back in Oct. Results were negative. I've responded to the Humira and prednisone, but now I'm on Uceris because doc said he couldn't keep me on prednisone forever....
I've been on Humira for about 10 weeks and on Uceris for only about 2 weeks. My symptoms have improved over 5 months from detrimental (unable to function, eat, shower, ANYTHING) to tolerable with...
I'm currently taking Humira and Uceris (along with other meds listed below) both of which suppress the immune system. I've had a constant fever for weeks, which is worse at night. Over the last two...
Anyone taking Acyclovir for UC? I was hospitalized twice over the last two weeks (8 days total) and my GI put me on Acyclovir, having a hunch that I may have a viral infection. My fever has quit...
Well you know, they say ten out of nine people need to see a therapist. Haha! I do need something though. I'm on an emotional roller coaster and my family usually gets the butt end of it. No pun...
Thanks guys! I really appreciate all of your replies. I guess I'm not in remission yet but on my way. Haven't had a scope since I was in the hospital last but doc said he will want another one...
What exactly is considered "remission?" Does the urgency, pain and diarrhea ever go away completely? Or do I need to just get used to it? I'm thankful my symptoms are less severe than when I was in a...
Keep them!! I admire your optimism, but you never know. I was lucky enough to have someone give me a bunch of clothes while I was at an all time low of 97lbs (I'm 5'4" btw) so I didn't have to buy...
I had terrible migraines while on high doses of prednisone. I'm down to one a day now so it's been a while since I've had one. I dunno if that helps but I hope you get to feeling better!...
I've had these symptoms since I've had UC and been taking prednisone, but they seem to have gotten sooo much worse with Humira. Has anyone had these symptoms while tapering prednisone? Maybe that has...
I've recently started Humira and I'm wondering if anyone has developed depression or anxiety? I've always struggled with depression but since the Humira, it's gotten significantly worse and I now...
I just type in the search bar above whatever topic I'm looking for. I didn't realize this thread was so old......
I have a near unhealthy relationship with spear dill pickles. I can eat a whole jar easily. I don't think they bother me, but then again, I eat without caution. It's hard for me to tell what is a...
That's terrible! I'm so sorry. How did you come to know you had a tumor? I'm so afraid of developing another condition in addition to UC and not knowing. I've read that kidney problems can develop as...
My BM's and urgency isn't so severe since I started Humira, but I dread showering due to hair loss and skin sensitivity from meds. I'm not sure which medication is causing it, though. Possibly the...