StewieCat - I'm interested in an update on how the Xeljanz is working for you. How long have you been on it?...
Hi - After the first two - 3 weeks, I seen about 50 - 75% improvement in symptoms. Then, I seems to revert back. I was told that at 8 weeks you should see the optimal effect of the drug. At week 4,...
Good to hear! I hope this med will bring you of the dreaded steroid. Best of luck to you!...
Thanks so much for your response. My meds will arrive this Thursday. I'm def hopeful after seeing your response as Entyvio and Remicade did nothing for me. I've been in a terrible flare for 6 months...
Thank you so very much for that link. Sounds promising. I'm really hoping that it will pull me out of this flare. I started Imuran again as that helped in the past but that takes so long to work. I...
I was just approved for Xeljanz after failing Entyvio and becoming steroid refractive. Any updates on the Xeljanz front would be greatly appreciated. I'm hoping it will help pull me out of this 6...
I was just approved for Xeljanz. Nothing else is working not even prednisone. Has anyone else been on Xeljanz and had success? Or, not?...
Thanks, Poppie!! My doctor said that the FDA will be approving Xeljanz for UC use in spring of 2018. He already has patients on it, so for now it has to be preapproved by insurance and that takes up...
Thanks so much, Poppie. At this point, I just want to start to feel better so I might have to do it. They just don't seem like the traditional route for UC treatment, so was looking for any...
Thanks so much, John. When they said they wanted to start this course of treatment I was def caught off guard. Of course the more I research online the more I freak myself out. I'm thankful for all...
Hi All - I was in the midst of a moderate UC flare, then I came down with E.Coli. Needless to say, this has left me in a not so good state. After a brief hospitalization on IV steroid and home on a...
Thank you so much, hateuc! I appreciate your response so very much. I was able to get in to see my doc on Friday. I hope they can do something without the dreaded prednisone approach. I have to many...
Hi - I've been experiencing a mild to moderate flare for the past 2 - 3 months which I've been having trouble getting under control with the combo of Entyvio x 4 weeks (just moved to the 4 week...
Quick Update - I started a bit of Imodium and Culturelle Digestive Probiotics twice a day. I have improved significantly and feel very good today. I hope this post can help someone in the future who...
Thank you all for your responses! I appreciate the info! I'm hoping this settles down soon!...
Hi - I had a colonoscopy three days ago. Since then, I have had a lot of watery diarrhea, bloating and cramping. It seems to be even worse after I eat. My colonoscopy actually came back with great...
Hi All - Seen my GI last night and he mentioned a drug called Simponi, similar to Humira for UC. I'm becoming more dependent on prednisone (on 30mg) and not sure if the Imuran (on 150mg) is working...
Hi - I am having reoccurring flares while on a mix of prednisone and Imuran. I am currently on 20mg of Pred and 125mg of Imuran. My GI said he want to increase me to 25mg and 150mg of Imuran. I tried...
I'm a bit embarrassed by this question but am freaking out about a new aliment. I have UC and in a chronic flare, which has caused a new hemorrhoid a few weeks ago. I've since have it under control...
I found this dr online. I'm trying anything before I have to resort to pred and Imuran. This sounds logical, but will it work? Has anyone tried his treatment plan?...
Thank you all so much for your responses. I guess my weight loss is normal considering I have been flaring for so long. It's becoming so noticeable that I was getting so worried. I guess I have to...
I've had UC for 20 years. I'm 35 petite female. At my heaviest last year, I was 146 and on Pred. Currently, on mes meds but have become intolerate, so still in a flare. At night I'm very bad, in the...
I've been diagnosed at age 13, now 35. I've always just tolerated my Symptoms, I've tried the typically drugs with no great remission. About a year ago my symptoms finally got so bad I could no...
WOW! I had no idea that posting on this site would bring in so much support within the UC community. I wish I would have done this a long time ago! I went from feeling completely defeated to feeling...
Thanks for the thoughtful reply, Garylouisville. And, yes, I've been on the herbal supplements for a month and have just about finished the bottles. I have stopped about 3 days ago, because I had the...
Thanks Sherbear 46. Yes, I've been on both Canasa and enimas in the past. The canasa used to be pretty effective for a few years, now its seems like it either isn't strong enough or not getting to...
Hi All - I am a newbie here, this is my first post :-) I have been on Lialda the full prescribing 4 pill dose for almost a year and it seem as though it has lost its effectiveness. I am in a full...